Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi! New Here!


glutenfreegal

Recommended Posts

glutenfreegal Newbie

Hello! My name is Alicia in live in PA and I was recently diagnosed with Celiacs. I have been struggling for YEARS. I was admitted to the hospital several years ago for an 11 pound weight loss in 3 days due to severe diarrhea but was told I had a stomach bug. I have always been food sensative...in fact a doctor told my parents when I was 9 that it was red meat that was bothering my sensative belly...so I am now 33 and have not had a drop of red meat since age 9. About 1 year ago I got fed up and started my quest to feel better.

1 year later I am almost there. I have been gluten free for 13 days. For the first time in my life I went 2 days w/o going to the bathroom (ahem..#2)...I am not suffering from bloat...not so tired that I could fall asleep at the wheel....Each day I feel alittle better. I LOVE to cook so I have to redo my pantry a bit..lol. But that is ok!!!

So anyway...just want to say HI! ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hi Alicia and a BIG welcome. If we can help you in anyway...just let us know. ;)

glutenfreegal Newbie
Hi Alicia and a BIG welcome. If we can help you in anyway...just let us know. ;)

Thanks! I am looking forward to meeting some people and hope to find a support group nearby...I kinda had a breakdown the other day when I couldnt enjoy dessert after Sunday dinner. So I think maybe I would benefit from some support!

Lisa Mentor

There are defined stages of dealing with Celiac.

At first, I was confused and had to learn what Celiac Disease was after my diagnosis. Then, I felt a sense of relief that I did not have a life threatening disease.

And I remember standing in the middle of the isle in the grocery story and getting so angry with my eyes filling with tears.

The learning curve is very steep, but many, many good people here helped me make my way through this struggle.

There are many support groups around the country. What city are you near and I will pass on some support links. But, this is the best one around.

glutenfreegal Newbie

I am only 40 minutes from Philly...Close to Conshohocken and Montgomeryville

lizard00 Enthusiast

Welcome!

I had a breakdown over pizza... :lol: We've all been there, probably a couple of times. This place was a huge help for me. Glad you found us!!!

this is the best one around.

So very true! ;)

ranger Enthusiast

Hi Alicia, and welcome. This forum has literally saved my life. There is much good advice, humor, and most importantly, understanding and community. What other group of poeple could you freely talk about poo but us! I'm 9 months gluten free and soooo much better. Ask questions, even if they seem stupid. Someone here will have the answer. Good luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    2. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    3. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,752
    • Most Online (within 30 mins)
      7,748

    shark4frg
    Newest Member
    shark4frg
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.