Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Maybe celiac disease? Definitely Frustrated.


br82uca

Recommended Posts

br82uca Newbie

I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Hi There, first off i'm not vegan so I can't help you with that one. As for the back pain, I have had almost every symptom you have also. The back pain was right between my shoulder blades though. It took agood 3 weeks before I started having any relief from my symptoms.

Now, I also have fibromyalgia. The pain is worse in the mornings for those of us with fibro. Sleep is a biggie with fibro too. Google fibro symptoms and see what you think.

But, just starting out there are so many ways to keep getting glutened that it takes a while. But even with my fibro and RA, my pain has eased up alot.

You might also have other food issues sauch as dairy, soy, etc. A food diary will help you keep track of those as well as cross contamination. I don't know if you realize but if you are toasting gluten free breads you will need a new toaster because your gluten free bread is being contaminated in it. New cutting board, new frying pan if teflon coated, etc.

I hope this helps you some and I hope you get to feeling better soon.

ang1e0251 Contributor

Do you eat a lot of soy? A lot of people have problems with it and you can have a problem with both, gluten and soy. A short test like you did isn't really long enough to eliminate gluten you probably need to try the diet for several months to be sure. You can ease a lot of pain with vitamin D and magnesium also. Not just the amount in a multivitamin either. Supplemental doses.

GottaSki Mentor

Your symptoms are very similar to mine. I am not vegan/vegetarian.

The blood tests that helped with my diagnosis were: tTG, Vit B12, D, K, Zinc and Copper. An endoscopic biopsy shouldn't be done if you are already gluten-free.

Since you have already gone gluten-free and seen some improvement, I'd suggest you stay the course. Healing time for everyone is different and you may have setbacks.

I've been gluten-free 5 months - some symptoms have improved, others have worsened. My most recent blood work did show improvement in all the labs listed above thanks to gluten-free diet along with multivitamin, B, D and Calcium supplements.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,893
    • Most Online (within 30 mins)
      7,748

    RyanDunn
    Newest Member
    RyanDunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JulieRe
      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
    • Scott Adams
      Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.