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Musings On Compassion And celiac disease


Lisa16

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Lisa16 Collaborator

A few months back I heard an interview with Tich Nhat Hahn. One question was


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YoloGx Rookie

Hear hear to that, Lisa! Beautifully said. I totally agree.

Am just starting to write some memoirs with celiac as the underlying theme. Compassion out of suffering has got to be there...

Bea

darkhorse Apprentice

I agree with this completely. You may feel empathy toward others in bad situations and try your best to help or not make the situation worse, but you wouldn't understand or have compassion without experiencing something similar yourself.

My example of this would be that I am a teacher. One of my kids was diagnosed with diabetes over winter break last year. I tried my best to help her out and make sure she had everything she needed and the other kids didn't say mean things. I also tried to be empathetic when we had parties and things so she wouldn't feel left out. Looking back I know that I truly didn't understand even though I wanted to.

It wasn't until I found out I was gluten/dairy intolerant that I truly understood where she was coming from and what she was going through. It was only then that I saw how frustrating, disappointing, and sad it makes you to have tons of food available that you used to love and not be able to eat any of it. It was only then that I stated going out of my way to find alternatives that she could have as treats or for parties.

I am a strong believer that everything happens for a reason. The idea that we suffer so we can be more human, so we can feel compassion follows that same belief.

ravenwoodglass Mentor
And then I thought about this disease, because people with celiac disease do suffer. Sometimes horribly. Compassion, then, must be another gift of this disease.

Because just as this disease changes how you live your life, it also has the power to change how you see other people. It empowers us to reach out and help, to listen, and it forces us to understand. No horrible story or embarassing moment or desperate act is unknown to us or unimaginable any longer. Each one of those things affirms our own experience and existence.

This disease has made us all more human. And just maybe we can use that to make the world a better place.

I firmly believe this to be true. It doesn't just apply to disease but also to poverty, abuse and all the horrible things that happen to us. It also is a choice though, we can let our experiences make us bitter and resentful or we can choose to let them make us more understanding and kind to all. I think pretty much everyone here fits into the latter catagory. :)

maile Newbie

Word!

Thank you for posting that!

mushroom Proficient

Those who lead a charmed life have no idea how the the rest of the world lives. Nuff said.

chasbari Apprentice

So that's why this is one of the most compassionate and giving sites on the internet.... I knew there was a reason!

CS


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    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
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      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
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