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Musings On Compassion And celiac disease


Lisa16

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Lisa16 Collaborator

A few months back I heard an interview with Tich Nhat Hahn. One question was


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YoloGx Rookie

Hear hear to that, Lisa! Beautifully said. I totally agree.

Am just starting to write some memoirs with celiac as the underlying theme. Compassion out of suffering has got to be there...

Bea

darkhorse Apprentice

I agree with this completely. You may feel empathy toward others in bad situations and try your best to help or not make the situation worse, but you wouldn't understand or have compassion without experiencing something similar yourself.

My example of this would be that I am a teacher. One of my kids was diagnosed with diabetes over winter break last year. I tried my best to help her out and make sure she had everything she needed and the other kids didn't say mean things. I also tried to be empathetic when we had parties and things so she wouldn't feel left out. Looking back I know that I truly didn't understand even though I wanted to.

It wasn't until I found out I was gluten/dairy intolerant that I truly understood where she was coming from and what she was going through. It was only then that I saw how frustrating, disappointing, and sad it makes you to have tons of food available that you used to love and not be able to eat any of it. It was only then that I stated going out of my way to find alternatives that she could have as treats or for parties.

I am a strong believer that everything happens for a reason. The idea that we suffer so we can be more human, so we can feel compassion follows that same belief.

ravenwoodglass Mentor
And then I thought about this disease, because people with celiac disease do suffer. Sometimes horribly. Compassion, then, must be another gift of this disease.

Because just as this disease changes how you live your life, it also has the power to change how you see other people. It empowers us to reach out and help, to listen, and it forces us to understand. No horrible story or embarassing moment or desperate act is unknown to us or unimaginable any longer. Each one of those things affirms our own experience and existence.

This disease has made us all more human. And just maybe we can use that to make the world a better place.

I firmly believe this to be true. It doesn't just apply to disease but also to poverty, abuse and all the horrible things that happen to us. It also is a choice though, we can let our experiences make us bitter and resentful or we can choose to let them make us more understanding and kind to all. I think pretty much everyone here fits into the latter catagory. :)

maile Newbie

Word!

Thank you for posting that!

mushroom Proficient

Those who lead a charmed life have no idea how the the rest of the world lives. Nuff said.

chasbari Apprentice

So that's why this is one of the most compassionate and giving sites on the internet.... I knew there was a reason!

CS


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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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