Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Got Diagnosis For My Bladder Issues

daphniela

By daphniela
in Related Issues & Disorders

Recommended Posts

daphniela Explorer
daphniela
Posted

I went over the symptoms with my OBGYN and he diagnosed me with Interstitial Cystitis. I am on medicaid and they won't pay for the test or the medication needed so he diagnosed me based on symptoms. I have to follow yet another strict diet. I can't have anything high in acid, any preservatives, nitrates, or artificial colors. It seems pretty similar to gluten free with added restrictions on fruits and other foods. Can anyone help me with what I can eat?? I am going shopping in a few days. I am wondering about tomatoes. On the sheet the doctor gave me it says I can have homegrown tomatoes but not storebought. Can I have organic???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
I went over the symptoms with my OBGYN and he diagnosed me with Interstitial Cystitis. I am on medicaid and they won't pay for the test or the medication needed so he diagnosed me based on symptoms. I have to follow yet another strict diet. I can't have anything high in acid, any preservatives, nitrates, or artificial colors. It seems pretty similar to gluten free with added restrictions on fruits and other foods. Can anyone help me with what I can eat?? I am going shopping in a few days. I am wondering about tomatoes. On the sheet the doctor gave me it says I can have homegrown tomatoes but not storebought. Can I have organic???

This is a great source. This was posted in 2006, but I assume the diet is still appropriate:

Open Original Shared Link

missy'smom Collaborator
missy'smom
Posted

So glad that you've found out what the problem is. Hope these changes will relieve you of your discomfort.

daphniela Explorer
daphniela
Posted
  • Author
This is a great source. This was posted in 2006, but I assume the diet is still appropriate:

Open Original Shared Link

That is a good list, but I was looking for more in the area of brands for bottled water that are pH neutral, cereals that are both preservative free and free of any artifical ingredients that are also gluten free, deli meat brands with same requirements, and candy with same requirements. I cannot have chocolate or coffee either.

OptimisticMom42 Apprentice
OptimisticMom42
Posted

Were you already gluten free previous to this diagnosis of IC? Could the IC be from sneaky gluten?

We have a family member who was diagnosed with IC and after reading the post written by Ravenwoodglass on the subject she went gluten free and all the IC stuff went away. She has tested it twice (chicken McNuggets and pizza) and yep it was just the gluten. She didn't have to worry about the acid stuff as long as she was really careful about gluten (she lives with me, eats what I cook).

RA

daphniela Explorer
daphniela
Posted
  • Author
Were you already gluten free previous to this diagnosis of IC? Could the IC be from sneaky gluten?

We have a family member who was diagnosed with IC and after reading the post written by Ravenwoodglass on the subject she went gluten free and all the IC stuff went away. She has tested it twice (chicken McNuggets and pizza) and yep it was just the gluten. She didn't have to worry about the acid stuff as long as she was really careful about gluten (she lives with me, eats what I cook).

RA

No one else in my house is gluten free so I cook my own food. I sometimes don't eat cause there is nothing in the house for me to eat so I highly doubt the IC is due to gluten issues.

ravenwoodglass Mentor
ravenwoodglass
Posted
No one else in my house is gluten free so I cook my own food. I sometimes don't eat cause there is nothing in the house for me to eat so I highly doubt the IC is due to gluten issues.

Are you being really careful about cross contamination both in processed foods and in the home? I know when I feel really stressed or tired I have a tendency to eat more processed and thus more risky foods. I used to grab Amy's stuff a lot but my store now carries the Glutino frozen entrees and they don't seem to have the CC issues Amy's does. I don't know what your other restrictions are but I really like the chicken alfredo and the mac and cheese. I try hard to keep them on hand for days when cooking is physically or mentally out of the question. You would be surprised how little gluten can keep some issues going. It seems sometimes the antibodies don't care whether we have a crumb or a gobs of the stuff the reaction is the same.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,007
    • Most Online (within 30 mins)
      7,748
    Ellen Watts
    Newest Member
    Ellen Watts
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
×
×
  • Create New...