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Seen At Cleveland Clinic For Follow Up

eeskew7282

By eeskew7282
in Coping with Celiac Disease

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eeskew7282 Rookie
eeskew7282
Posted

I was diagnosed with Celiac Disease in July after having positive blood work and a positive EDG. I have strictly followed gluten-free diet. I research and constantly read about this disease. I have not once eaten anything that I haven't researched and made sure there was no gluten in it. I do however eat out 3 times a week but order foods from a gluten-free menu. I wanted to get an evaluation from the cleveland clinic digestive clinic. I went there on friday of last week. I felt I got excellent care. I saw two physicians and a dietician. Multiple labs were drawn. The physician contacted me today and said my TTG was higher than before. It was 28 in July and now its 38 and my vitamin D level was 22. I was placed on vit d 50,000 units weekly for 8 weeks. She also said she would recheck my TTg in a few months. The only thing I can think of would be I took Augmentin for a sinus infection last week. I had to stop in the middle of treatment because I was developing the Celiac s/s I had before. I really work hard to eat all of the right foods. Not sure what I am doing wrong???

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ravenwoodglass Mentor
ravenwoodglass
Posted

Did you check with your pharmacist or the company to make sure the drug was gluten free? You have to check all meds, script or OTC. Generic drugs need to be checked at each refill as the binders can change. You also need to check all vitamins and supplements and do be aware that some vitamins labeled gluten free will have barley or wheat grass added and those are not something you want. Do read all labels carefully.

eeskew7282 Rookie
eeskew7282
Posted
  • Author
Did you check with your pharmacist or the company to make sure the drug was gluten free? You have to check all meds, script or OTC. Generic drugs need to be checked at each refill as the binders can change. You also need to check all vitamins and supplements and do be aware that some vitamins labeled gluten free will have barley or wheat grass added and those are not something you want. Do read all labels carefully.

Yes, we think it may be related to a course of Augmentin I took.

LDJofDenver Apprentice
LDJofDenver
Posted

Darn, that's so frustrating when you've tried to be so careful.

Did anyone also tell you, when diagnosed, that you need to get a new toaster, your own cutting board, colander, etc.? And also, if you'd been using any teflon coated pans to cook with (pancakes, other wheat flour or breaded items), you should ditch those, too, and get new pans.

Sometimes, even though ordering from a gluten free menu, you can pick up substantial cross contamination at a restaurant. My son and I both got nailed at local restaurant that was touted as really catering to celiacs (I think it's 20-30% of their business). We were both doubled over with belly cramps that evening. Been afraid to go back there after that experience! Anyway, it does happen.

StacyA Enthusiast
StacyA
Posted

Do you really have to get rid of teflon pans?? I'm newly diagnosed and will be having a shared kitchen. I have my own strainer and butter and I'm not using wooden spoons and I won't use the toaster. I thought that was pretty good. My cutting boards are plastic - wouldn't those wash well? And do I have to worry about teflon pans?

ravenwoodglass Mentor
ravenwoodglass
Posted
Do you really have to get rid of teflon pans?? I'm newly diagnosed and will be having a shared kitchen. I have my own strainer and butter and I'm not using wooden spoons and I won't use the toaster. I thought that was pretty good. My cutting boards are plastic - wouldn't those wash well? And do I have to worry about teflon pans?

Teflon pans get scratched easily it really is best to get one that is for your use only. The same goes for the cutting boards if they are also scratched.

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