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Celiac's Or Something Else....?

vampkestrel

By vampkestrel
in Related Issues & Disorders

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vampkestrel Rookie
vampkestrel
Posted

Isn

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ravenwoodglass Mentor
ravenwoodglass
Posted

Have you brought these symotoms to the attention of your doctor and insisted that they do a full work up for other autoimmune diseases? Autoimmune diseases can come more than one at a time. The weakness that goes away in an short time and the blue arm and leg are the most concerning to me. Especially if you already know you are prone to blood clots these symptoms should not be ignored. If possible the next time these occur you should be seen while the symptoms are active.

vampkestrel Rookie
vampkestrel
Posted
  • Author

well i currently see my gp, a neurolgist, and a rhemalogist (please forgive spelling there) it finally took me insisting my gp to test for celiac disease to even get that diagnosis other then that they say they have no idea and without swelling it's propably not a blood clot. oh for the record i'm a 27 year old female... it's very frustrating over all since none of my docs know what's going on and i have to rely more on diagnosing my self and the demanding the tests to back it up.

txplowgirl Enthusiast
txplowgirl
Posted

Extreme sensitivity to sunlight and heat intolerance. I had a cousin who started out with these symptoms. Have you been checked for Lupus? That is an autoimmune disease that runs along with Celiac and Thyroid problems.

vampkestrel Rookie
vampkestrel
Posted
  • Author

yes i a few times my ana is always a little off but they said not enough for lupus. I also had a crazy high sed rate but i'm guessing the ana and sed could just be part of celiac disease as well since apparently my doctors have no clue....sigh...my mother does have lupus though but it's not suppose to be hereditary per se

mushroom Proficient
mushroom
Posted
yes i a few times my ana is always a little off but they said not enough for lupus. I also had a crazy high sed rate but i'm guessing the ana and sed could just be part of celiac disease as well since apparently my doctors have no clue....sigh...my mother does have lupus though but it's not suppose to be hereditary per se

I had a high sed rate and a CRP of 81; neither of these figures budged on a gluten free diet or on the standard DMARD drugs for rheumatoid arthritis. It was only when I started taking Humira, a TNF inhibitor, for my psoriatic arthritis, that my CRP dropped to normal. Sed rate and CRP are both measures of inflammation, and I had been telling myself that my inflammation was coming from my gut and from my other food intolerances that flared into itchy rashes, but t'weren't so.

Your crazy high sed rate needs to be investigated further IMHO.

vampkestrel Rookie
vampkestrel
Posted
  • Author

ah yes me too i thought the sed rate was from my intestines and my doc said it "propably" was but he doesn't know anyting about celicas other then to send off for a blood test.

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      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      suggest gluten free food

      By olivia11 · Posted

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
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      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

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    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
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