Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are Most People Gluten Sensitive Before Onset Of Celiac's?

StacyA

Recommended Posts

StacyA Enthusiast
StacyA
Posted

I'm discovering my story is rare in America - I was diagnosed within two months of onset of sxs. My PCP thought I had giardia in June (sudden diahrrea, night sweats, pain, wt loss, major fatigue) - the sxs cleared A LOT with flagyl - so I think her dx was right, but the diahrrea and gas and major bloating continued so she sent me to a GI doc who did bloodwork. My numbers were high enough for celiac's he didn't need a biopsy. So I'm thinking the giardia triggered the celiac's. I don't really think I had full-blown celiac's before June - those symptoms were sudden and extreme - but I think I was gluten sensitive all my life before then. I'd vomit most times after Chinese food (but not every time, so I didn't think it was the MSG). I had unexplained hives as a child (the Cleveland Clinic couldn't even figure them out.) I have mild asthma and I've always had a sensitive GI system. Is it common to be gluten-sensitive before celiac's is triggered?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nu-to-no-glu Apprentice
nu-to-no-glu
Posted

You very well may have had celiac all this time, but some of your symptoms may have gotten progressively worse. If you dig around on this site, you will see this is the case for many. This is due to increased damage to your intestines caused by eating gluten. If you look on the home page, there is loads of information to help you better understand.

OptimisticMom42 Apprentice
OptimisticMom42
Posted

I think most of us had a good case of hind sight visible gluten sensitivity. I had migraines as a child. The dentist said I was brushing the enamel right off of my teeth! That's one kind of funny! I'd like to go back in time and yell, "What kid brushes to much? Maybe I never had any enamel!"

jststric Contributor
jststric
Posted

I was reading not long ago that "sudden" intolerances and possibly even Celiacs seem to POSSIBLY be triggered suddenly by a traumatic event or experience. ????? It sounded stupid as I first read it...I mean, we're NOT a bunch of head cases!! But I thought back to when all my problems seemed to suddenly start and it was JUST AFTER we made a move I was NOT happy about. Now, we've moved ALOT and I took this one as well as I THOUGHT I had taken the rest of them, but I did have to leave somewhere I loved and the place we moved to is not in ANYONE'S top 50 places of places to live. But I hadn't FELT that UPSET by it all. But all hell broke lose with all kinds of new food-intolerances that I still wrestle with nearly 4 yrs later. So, I would say it's not out of the realm of POSSIBILITIES.

OptimisticMom42 Apprentice
OptimisticMom42
Posted

My first go-round with celiacs, I dropped to under 100lbs and a size 3 was to big, I'm 5'6". I was going through a divorce and working at a job I hated. The dr's decided I was depressed. I set some ground rules for the ex, changed jobs and got better for almost 10 yrs.

This time round, I suddenly became dairy and soy allergic when my eldest child was arrested and jailed for a stupid fuss over a really stupid girl. This wasn't an overnight at county, he's in the big house.

So, yes, in my case stress may have triggered my celiacs.

Being a control freak, I can understand how moving, against my wishes would stress me out.

Take care,

RA

missybean Apprentice
missybean
Posted
I think most of us had a good case of hind sight visible gluten sensitivity. I had migraines as a child. The dentist said I was brushing the enamel right off of my teeth! That's one kind of funny! I'd like to go back in time and yell, "What kid brushes to much? Maybe I never had any enamel!"

I have a question. I was diagnosed with DH but I'm questioning that because mine seems so mild compared to all pics of DH I have seen. Mine don't look like blisters. Do they have to look like blisters to be DH?

Susanne50 Newbie
Susanne50
Posted

I had only the mildest of symptoms-- bloating after bread products, slight knot under ribs-- until I went under general anesthesia for surgery twice in two weeks. Then major symptoms came on with a vengeance. 15 lbs lost in two weeks, couldn't eat anything, thought I was dying. There's no other answer except that the physical stress on my body from those surgeries triggered the full-blown onset.

Susanne

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.