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Food Allergies As A Result Of Gluten Intolerance


junevarn

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junevarn Rookie

Hi all,

I was self diagnosed through enterolab as having gluten intolerance, casein intolerance and one of the main genes for celiac. I also had fecal antitissue transglutaminase.Supposedly I don't have small intestine damage. I am awaiting blood tests. I get terrible seizure like attacks where my legs shake( actually my whole body at times), I have diarrhea and vomit uncontrollably for up to six hours at a time. I also get palpitations.

I started going to an alternative MD and nutritionist on my own dime because the doctors I have gone to in the past ended sending me to a psychiatrist.

I have been on an elimination diet for the past few weeks. So far I cant tolerate corn or chocolate. I had some gluten free bread with yeast yesterday and today and now I am totally bloated. ( Enterolab also said I had a reaction to yeast.) I also feel quite anxious and moody all of a sudden. :(

Does anyone else have reactions to other foods as well?I have been gluten and casein free since I found out in October. I guess I'll go back to the total elimination diet foods since those are the ones so far that I feel good eating. I'm just a bit depressed with all this. I need a bit of support. I'm getting so I'm afraid to eat!

At least I am seeing that I do have other food intolerances and that that is the cause of my body freaking out, but I still feel low about it.

Thanks for listening,

June


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cdford Contributor

Other sensitivities seem to be pretty common, especially at first. Hopefully you will be like we were and gradually see some of them go away. My daughter now only has one other than gluten. She origianally had a four page long list. I am down to only a handful.

kvogt Rookie

junevarn,

I've been where you are now. At one point, I felt awful after two out of three meals or more often. I didn't have your specific reactions, but everyone is different. It is entirely possible and probable for you to have other food problems. It can be quite hard to isolate because the reaction may not take place right after a meal, but the next day or later. Since you are apparently willing to invest in a diagnosis, I suggest you look at York food allergy testing. I took the comprehensive test and tested positive for an number of foods. The good thing is that I was left with a number of safe foods. Some have derided the testing and I admist I have held some skepticism, even now for some of the foods specified. But they were right about several like milk and soy. I've dopped some of the other foods and discover they may be right about others on my list. So overall, I feel well served by their testing. At least it gave me a place to start.

Hope this helped.

Guest nini

I think in the beginning of being gluten-free, the body is so hypersensitive, that you can react to just about everything. I even went through a stage where I was having anaphylactic reactions to artificial fragrances, especially the artificial baby powder smell. Now the smells just make me kinda nauseas. I was also having reactions to nuts, and shellfish... still not brave enough to try shellfish, but I'm back on eating nuts with no problem.

skbird Contributor

I had problems with nuts, especially walnuts and pecans, before I went low carb 3 years ago (and effectively, 95% gluten free). When I added gluten back in, the nuts started bothering me - small irritations or sores in my mouth, mostly. Now that's gone again now that I've been gluten free for 6 months (didn't take that long, BTW).

Shellfish will be out forever for me. I understand now that it's a different kind of reaction, an allergy, and it doesn't have anything to do with the state of my gut. Also pretty sure nightshades are still out for me - I did get a gluten free brownie mix recently at my Grocery Outlet (they were 79 cents! instead of $4 something...) with potato starch in it but after eating a couple of them (oh they were so delish!) I started having stomach aches like I do as a prelude to my nightshade intolerance.

I was having some trouble eating rice when I was not gluten free - would make me feel like I'd had tons of coffee, but now I seem to be ok with it. I can also tolerate some sugars now, natural ones (not processed white death) and more fruit without having as much of a blood sugar reaction. It just takes time and for me, none of it has been particularly dramatic.

Stephanie

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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