Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Soon Do You See A Reaction?


positivenrgfairy

Recommended Posts

positivenrgfairy Apprentice

I have been slowly cutting out gluten for the last several weeks and I cheated last night and I'm feeling pretty crummy today. There's no way one cheesy biscuit could possibly be making me feel so bloated and depressed this soon.

...is there?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Some react immediately. Others take hours before symptoms begin. After a significant ingestion, my symptoms develop in about 12 hours and are serious for a few days then decline and are gone in about a week.

When I say a significant ingestion, I am not referring to CC, but something like eating the wrong cookie by mistake.

I don't suppose that was what you were hoping to hear...

positivenrgfairy Apprentice
Some react immediately. Others take hours before symptoms begin. After a significant ingestion, my symptoms develop in about 12 hours and are serious for a few days then decline and are gone in about a week.

When I say a significant ingestion, I am not referring to CC, but something like eating the wrong cookie by mistake.

I don't suppose that was what you were hoping to hear...

So you have a reaction if you eat ONE cookie?

JillianLindsay Enthusiast

I have a reaction if someone uses the same fork for something with gluten and then I use it. Yes, even trace amounts make celiacs sick.

It's recommended that people go off gluten "cold turkey" and not slowly wean off of it becasue of the harm that even crumbs can do, although it is completely your personal choice to make, and tapering off may be better if it makes it easier for you and will help you stick to the diet in the future.

If I even have one little crumb of bread (or anything gluteny) I am sick for 4-5 days (FATIGUED AND MOODY big time, sometimes GI problems, stomach pain, bloating, etc. also) and it takes a full 7-10 days for me to be back to 100%.

On the plus side, you can take control of your health :) The gluten-free diet can be a healthier, more adventurous diet and you will feel SO much better once you commit to it 100%! Keep coming here for advice and support, talking to your DR, getting educated and you will do great.

Good luck,

Jillian

So you have a reaction if you eat ONE cookie?
positivenrgfairy Apprentice
I have a reaction if someone uses the same fork for something with gluten and then I use it. Yes, even trace amounts make celiacs sick.

It's recommended that people go off gluten "cold turkey" and not slowly wean off of it becasue of the harm that even crumbs can do, although it is completely your personal choice to make, and tapering off may be better if it makes it easier for you and will help you stick to the diet in the future.

If I even have one little crumb of bread (or anything gluteny) I am sick for 4-5 days (FATIGUED AND MOODY big time, sometimes GI problems, stomach pain, bloating, etc. also) and it takes a full 7-10 days for me to be back to 100%.

On the plus side, you can take control of your health :) The gluten-free diet can be a healthier, more adventurous diet and you will feel SO much better once you commit to it 100%! Keep coming here for advice and support, talking to your DR, getting educated and you will do great.

Good luck,

Jillian

Are all celiacs like this? it seems that I've been finding people have a gluten sensitivity on many various levels. I'm very new to all of this. thank you for your help.

psawyer Proficient
So you have a reaction if you eat ONE cookie?

Yes, I do. I haven't had an incident in a long time, so it is hard to be sure, but in terms of an autoimmune trigger, one typical cookie contains a large amount of gluten.

emcmaster Collaborator
Are all celiacs like this? it seems that I've been finding people have a gluten sensitivity on many various levels. I'm very new to all of this. thank you for your help.

Yes, all Celiacs have sensitivity to the smallest amounts of gluten. The difference between Celiacs is whether you have symptoms at all levels of ingestion. 1/48th of a slice of bread is enough to cause villi damage - so ONE cookie is most definitely going to cause problems for you, even if you don't have a visible reaction.

I react within 2 hours if it is serious ingestion (like eating a piece of bread) and within 24-48 hours if it is cross contamination. My symptoms gradually decrease over a week and then will sometimes pop up for randomly and last shortly for the next week or so.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
I have been slowly cutting out gluten for the last several weeks and I cheated last night and I'm feeling pretty crummy today. There's no way one cheesy biscuit could possibly be making me feel so bloated and depressed this soon.

...is there?

ABSOLUTELY! "One" cheesy biscuit has a whole crapton of gluten, and you only need a TINY amount (crumbs), in order to start the immune reaction that damages the gut and causes the symptoms of celiac disease. Removal of gluten needs to be as close to 100% as you can do.

I tend to react somewhere between 30 minutes and 12 hours, depending on the level of contamination. I can't imagine how incredibly awful I would feel if I ate a whole bite of gluten-containing food. /urp

ang1e0251 Contributor

The autoimmune system in your body is microscopic so it can react to microscopic amounts of gluten.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    2. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    4. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
    • Jane02
      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.