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Will My Digestion Be Messed Up For Life?

jasonD2

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jasonD2 Experienced
jasonD2
Posted

In addition to celiac I have all these food sensitivities and recent GI tests revealed candida & C.difficle overgrowth along with malabsorption markers. Ive been pumping myself with probiotics (Ther Biotic Complete & Symbion & S. Boulardi). I had to stop the boulardi cause it was causing bad constipation, however, the other probiotics are causing problems as well. I pretty much need to take magnesium or oxypowder every single night or i wont go at all. Will i ever be able to get my system balanced out? If probiotics are supposed to help then why are they constipating me? seems like most people who take probiotics have improved bowel function but not me

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ravenwoodglass Mentor
ravenwoodglass
Posted

A lot of probiotics have dairy and I noticed your sig says you are lactose intolerant. Do you like saurkraut? If you do you could try eating that once a day for a bit instead as it has the same good stuff as the bottled probiotics. If you have issues with dairy that may be causing the C.

jasonD2 Experienced
jasonD2
Posted
  • Author

No I take probiotics that are dairy (and allergen) free

ang1e0251 Contributor
ang1e0251
Posted

As the PP said the fermented cabbage is excellant for the gut. You could look over the SCD diet that has a long thread under leaky gut. It is reported to be good for the conditions you have and the thread can tell you all you need to know about it. I think it would do you good. I don't follow it to the letter but I have improved my health with what I have learned.

jasonD2 Experienced
jasonD2
Posted
  • Author

problem is if i cut out the carbs i lose weight- and i cant afford to lose any more

ang1e0251 Contributor
ang1e0251
Posted

That is a problem. But it doesn't stop all carbs just has you focus on certain ones. I was only saying some carbs are a problem for me. But you could look at a few pages of the thread and see what you think. Maybe you could put some of your problems to them and see what those folks say.

The reason I mention it is many of the people who contribute to that thread tend to have similar problems to the ones you have mentioned. They have lived with it and are improving their digestion so I felt you might find some valuable info there.

burdee Enthusiast
burdee
Posted
In addition to celiac I have all these food sensitivities and recent GI tests revealed candida & C.difficle overgrowth along with malabsorption markers. Ive been pumping myself with probiotics (Ther Biotic Complete & Symbion & S. Boulardi). I had to stop the boulardi cause it was causing bad constipation, however, the other probiotics are causing problems as well. I pretty much need to take magnesium or oxypowder every single night or i wont go at all. Will i ever be able to get my system balanced out? If probiotics are supposed to help then why are they constipating me? seems like most people who take probiotics have improved bowel function but not me

In my experience probiotics helped normalize regularity. Whether I had hard stools or diarrhea, taking probiotics helped me have more 'normal' stools.

However, my doc discouraged me from using S. Boulardi with c-diff treatment, because several of his other patients developed yeast overgrowth even from that 'beneficial' yeast (SB). When I had candida (yeast) overgrowth, I was chronically constipated. So perhaps S. boulardi overgrowth caused your current constipation.

Also, my initial symptoms for c-diff were constipation, not diarrhea. So ongoing (or even recurrent) c-diff infection could influence your constipation. C-diff is often difficult to eliminate (25% of cases get recurrences). I had 3 recurrences even after taking flagyl and vancomycin in addition to probiotics. I'm now doing tapered or 'pulse' dosing with vancomycin, which studies have shown to successfully resolve recurrent c-diff. I have experienced NO constipation since I started treating for c-diff 4 months ago. That's a long time for me, because I had chronic constipation most of my life. I had also taken magnesium supplements for years just to have regular (yet hard) bowel movements. While treating for c-diff I needed to reduce how much magnesium I take to avoid diarrhea.

Do you have any other c-diff symptoms, like bloating, gas, cramping pain, dizziness or nausea?

SUE

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BlakeNYC Newbie
BlakeNYC
Posted

One comment -- I notice that you do not have celiac disease. So just curious, why are you posting on this site? It seems like your issues would be better addressed via a forum that deals with constipation and leaky gut.

Just trying to keep the forum focused.

ravenwoodglass Mentor
ravenwoodglass
Posted
One comment -- I notice that you do not have celiac disease. So just curious, why are you posting on this site? It seems like your issues would be better addressed via a forum that deals with constipation and leaky gut.

Just trying to keep the forum focused.

All are welcome to post on this site as long as they are respectful of others and follow the board rules. In addition the poster actually has been diagnosed as producing antibodies to gluten which makes him gluten sensitive or celiac and he has a gene that is associated with it. DQ8.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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