Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will My Digestion Be Messed Up For Life?

jasonD2

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

In addition to celiac I have all these food sensitivities and recent GI tests revealed candida & C.difficle overgrowth along with malabsorption markers. Ive been pumping myself with probiotics (Ther Biotic Complete & Symbion & S. Boulardi). I had to stop the boulardi cause it was causing bad constipation, however, the other probiotics are causing problems as well. I pretty much need to take magnesium or oxypowder every single night or i wont go at all. Will i ever be able to get my system balanced out? If probiotics are supposed to help then why are they constipating me? seems like most people who take probiotics have improved bowel function but not me

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

A lot of probiotics have dairy and I noticed your sig says you are lactose intolerant. Do you like saurkraut? If you do you could try eating that once a day for a bit instead as it has the same good stuff as the bottled probiotics. If you have issues with dairy that may be causing the C.

jasonD2 Experienced
jasonD2
Posted
  • Author

No I take probiotics that are dairy (and allergen) free

ang1e0251 Contributor
ang1e0251
Posted

As the PP said the fermented cabbage is excellant for the gut. You could look over the SCD diet that has a long thread under leaky gut. It is reported to be good for the conditions you have and the thread can tell you all you need to know about it. I think it would do you good. I don't follow it to the letter but I have improved my health with what I have learned.

jasonD2 Experienced
jasonD2
Posted
  • Author

problem is if i cut out the carbs i lose weight- and i cant afford to lose any more

ang1e0251 Contributor
ang1e0251
Posted

That is a problem. But it doesn't stop all carbs just has you focus on certain ones. I was only saying some carbs are a problem for me. But you could look at a few pages of the thread and see what you think. Maybe you could put some of your problems to them and see what those folks say.

The reason I mention it is many of the people who contribute to that thread tend to have similar problems to the ones you have mentioned. They have lived with it and are improving their digestion so I felt you might find some valuable info there.

burdee Enthusiast
burdee
Posted
In addition to celiac I have all these food sensitivities and recent GI tests revealed candida & C.difficle overgrowth along with malabsorption markers. Ive been pumping myself with probiotics (Ther Biotic Complete & Symbion & S. Boulardi). I had to stop the boulardi cause it was causing bad constipation, however, the other probiotics are causing problems as well. I pretty much need to take magnesium or oxypowder every single night or i wont go at all. Will i ever be able to get my system balanced out? If probiotics are supposed to help then why are they constipating me? seems like most people who take probiotics have improved bowel function but not me

In my experience probiotics helped normalize regularity. Whether I had hard stools or diarrhea, taking probiotics helped me have more 'normal' stools.

However, my doc discouraged me from using S. Boulardi with c-diff treatment, because several of his other patients developed yeast overgrowth even from that 'beneficial' yeast (SB). When I had candida (yeast) overgrowth, I was chronically constipated. So perhaps S. boulardi overgrowth caused your current constipation.

Also, my initial symptoms for c-diff were constipation, not diarrhea. So ongoing (or even recurrent) c-diff infection could influence your constipation. C-diff is often difficult to eliminate (25% of cases get recurrences). I had 3 recurrences even after taking flagyl and vancomycin in addition to probiotics. I'm now doing tapered or 'pulse' dosing with vancomycin, which studies have shown to successfully resolve recurrent c-diff. I have experienced NO constipation since I started treating for c-diff 4 months ago. That's a long time for me, because I had chronic constipation most of my life. I had also taken magnesium supplements for years just to have regular (yet hard) bowel movements. While treating for c-diff I needed to reduce how much magnesium I take to avoid diarrhea.

Do you have any other c-diff symptoms, like bloating, gas, cramping pain, dizziness or nausea?

SUE

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BlakeNYC Newbie
BlakeNYC
Posted

One comment -- I notice that you do not have celiac disease. So just curious, why are you posting on this site? It seems like your issues would be better addressed via a forum that deals with constipation and leaky gut.

Just trying to keep the forum focused.

ravenwoodglass Mentor
ravenwoodglass
Posted
One comment -- I notice that you do not have celiac disease. So just curious, why are you posting on this site? It seems like your issues would be better addressed via a forum that deals with constipation and leaky gut.

Just trying to keep the forum focused.

All are welcome to post on this site as long as they are respectful of others and follow the board rules. In addition the poster actually has been diagnosed as producing antibodies to gluten which makes him gluten sensitive or celiac and he has a gene that is associated with it. DQ8.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.