Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will My Digestion Be Messed Up For Life?


jasonD2

Recommended Posts

jasonD2 Experienced

In addition to celiac I have all these food sensitivities and recent GI tests revealed candida & C.difficle overgrowth along with malabsorption markers. Ive been pumping myself with probiotics (Ther Biotic Complete & Symbion & S. Boulardi). I had to stop the boulardi cause it was causing bad constipation, however, the other probiotics are causing problems as well. I pretty much need to take magnesium or oxypowder every single night or i wont go at all. Will i ever be able to get my system balanced out? If probiotics are supposed to help then why are they constipating me? seems like most people who take probiotics have improved bowel function but not me


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

A lot of probiotics have dairy and I noticed your sig says you are lactose intolerant. Do you like saurkraut? If you do you could try eating that once a day for a bit instead as it has the same good stuff as the bottled probiotics. If you have issues with dairy that may be causing the C.

jasonD2 Experienced

No I take probiotics that are dairy (and allergen) free

ang1e0251 Contributor

As the PP said the fermented cabbage is excellant for the gut. You could look over the SCD diet that has a long thread under leaky gut. It is reported to be good for the conditions you have and the thread can tell you all you need to know about it. I think it would do you good. I don't follow it to the letter but I have improved my health with what I have learned.

jasonD2 Experienced

problem is if i cut out the carbs i lose weight- and i cant afford to lose any more

ang1e0251 Contributor

That is a problem. But it doesn't stop all carbs just has you focus on certain ones. I was only saying some carbs are a problem for me. But you could look at a few pages of the thread and see what you think. Maybe you could put some of your problems to them and see what those folks say.

The reason I mention it is many of the people who contribute to that thread tend to have similar problems to the ones you have mentioned. They have lived with it and are improving their digestion so I felt you might find some valuable info there.

burdee Enthusiast
In addition to celiac I have all these food sensitivities and recent GI tests revealed candida & C.difficle overgrowth along with malabsorption markers. Ive been pumping myself with probiotics (Ther Biotic Complete & Symbion & S. Boulardi). I had to stop the boulardi cause it was causing bad constipation, however, the other probiotics are causing problems as well. I pretty much need to take magnesium or oxypowder every single night or i wont go at all. Will i ever be able to get my system balanced out? If probiotics are supposed to help then why are they constipating me? seems like most people who take probiotics have improved bowel function but not me

In my experience probiotics helped normalize regularity. Whether I had hard stools or diarrhea, taking probiotics helped me have more 'normal' stools.

However, my doc discouraged me from using S. Boulardi with c-diff treatment, because several of his other patients developed yeast overgrowth even from that 'beneficial' yeast (SB). When I had candida (yeast) overgrowth, I was chronically constipated. So perhaps S. boulardi overgrowth caused your current constipation.

Also, my initial symptoms for c-diff were constipation, not diarrhea. So ongoing (or even recurrent) c-diff infection could influence your constipation. C-diff is often difficult to eliminate (25% of cases get recurrences). I had 3 recurrences even after taking flagyl and vancomycin in addition to probiotics. I'm now doing tapered or 'pulse' dosing with vancomycin, which studies have shown to successfully resolve recurrent c-diff. I have experienced NO constipation since I started treating for c-diff 4 months ago. That's a long time for me, because I had chronic constipation most of my life. I had also taken magnesium supplements for years just to have regular (yet hard) bowel movements. While treating for c-diff I needed to reduce how much magnesium I take to avoid diarrhea.

Do you have any other c-diff symptoms, like bloating, gas, cramping pain, dizziness or nausea?

SUE


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BlakeNYC Newbie

One comment -- I notice that you do not have celiac disease. So just curious, why are you posting on this site? It seems like your issues would be better addressed via a forum that deals with constipation and leaky gut.

Just trying to keep the forum focused.

ravenwoodglass Mentor
One comment -- I notice that you do not have celiac disease. So just curious, why are you posting on this site? It seems like your issues would be better addressed via a forum that deals with constipation and leaky gut.

Just trying to keep the forum focused.

All are welcome to post on this site as long as they are respectful of others and follow the board rules. In addition the poster actually has been diagnosed as producing antibodies to gluten which makes him gluten sensitive or celiac and he has a gene that is associated with it. DQ8.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    2. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    4. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

    5. - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.