Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pittsburgh , Pa & Surrounding Areas

mamaw

By mamaw
in Introduce Yourself / Share Stuff

Recommended Posts

mamaw Community Regular
mamaw
Posted

I wanted to let you know about the date of the yearly GI Health gluten-free seminar this year.

Oct 17, 09 from 9-2 at the Marriott North in Cranberry Twp.... It is a free event with guest speakers: Jules SHepard & Connie Sarros plus others. Vendors also will be available for sampling & purchasing.

You must pre-register & it is limited to 300 attendees.

This is a good event for newbies. There is also a good support group for this area .. if anyone wants more info , let me know!

blessings

mamaw

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pd13 Newbie
pd13
Posted

Thanks for the information. Unfortunately I will be away at that time. Is there a website with information about this annual event?

Do you know of doctors and/or nutritionists in the Pittsburgh area with special interest in Celiac disease?

mamaw Community Regular
mamaw
Posted
  • Author

Yes, Three Rivers Endo Group in Moon Twp & also Cranberry Twp. Dr. Stanley is good.412-262-1000. The nurse is a celiac.

Where are you located? The support group in Butler has people attending from S Hills,N.Hills & etc.

This is only the third seminar so it is fairly new...I'm a mentor for celiac in this area.

hth

mamaw

  • 2 weeks later...
kimis Collaborator
kimis
Posted

Know any good docs closer to philly? I'm in conshohocken. I see Dr. Ronald Leonard...well, I use to anyway.

mamaw Community Regular
mamaw
Posted
  • Author

Kimis

I'm from the other end of the state but here are my suggestions. Contact Abington Hospital & ask their referral service. Another hospital would be Paoli..... the last suggestions is contacting the CSA from that area (Philly) & asking them....

hth

mamaw

kimis Collaborator
kimis
Posted
Kimis

I'm from the other end of the state but here are my suggestions. Contact Abington Hospital & ask their referral service. Another hospital would be Paoli..... the last suggestions is contacting the CSA from that area (Philly) & asking them....

hth

mamaw

Thank you for the info :D

LadyCyclist87 Apprentice
LadyCyclist87
Posted
Yes, Three Rivers Endo Group in Moon Twp & also Cranberry Twp. Dr. Stanley is good.412-262-1000. The nurse is a celiac.

Where are you located? The support group in Butler has people attending from S Hills,N.Hills & etc.

This is only the third seminar so it is fairly new...I'm a mentor for celiac in this area.

hth

mamaw

mamaw,

When is the next celiac support meeting? I really want to try to go. No guarantees that I can b/c this semester (I'm in school) is crazy for me, but I really want to try to go!!

Also, what are some topics that are discussed at the seminar? Or is there a website I can take a look at?

Thanks,

LadyC

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted
  • Author

Hi Lady C

The seminar is OCt 17 (412-262-1000 )to register for that. Speakers are Connie Sarros from Ohio, Jules Shepard of Nearly Normal FLour, & a few others. Vendors about 23 total will also be available for sampling & selling their gluten-free goodies....

This is the only event in this area

Our Butler meetings are on hold at present ..... the church we use is being re-modeled so we have no other place to meet. We are staying in contact & doing the mini co-op gluten-free food ordering ......we just had a gluten-free dining experience with the group from Canton, ohio.

We are hoping the church will be finished so we can meet in Nov but I'm not sure ... it is not my church so I'll just have to play the waiting game! I should know for sure by end of October so check back at that time with me......

I fI can help you with anything just ask, you alos can pm me anytime.

mamaw

Mary Blackburn Newbie
Mary Blackburn
Posted
Thanks for the information. Unfortunately I will be away at that time. Is there a website with information about this annual event?

Do you know of doctors and/or nutritionists in the Pittsburgh area with special interest in Celiac disease?

Doctor Richard Raizman, in Monroeville, PA diagnosed me with Celiac Sprue back in 1986, before anyone had really heard of it. I attribute him to saving my life, without his knowledge of the disease, I have no doubt in my mind that I would have basically starved to death.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
    3. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    4. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    5. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.