Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be A Gluten Reaction?

MamaJo

Recommended Posts

MamaJo Rookie
MamaJo
Posted

My 10yo daughter came in not too long ago complaining of severe cramping. Cramping to the extent of tears. She has issues with not pooping enough so I asked if it could be that. I wasn't even thinking of food because I thought we were pretty good about avoiding gluten and dairy. Then my 14yo said something about us eating baked oatmeal for breakfast this am! UGH! We haven't had oats in a long time, and I didn't think twice about it when she asked to make that recipe for breakfast. If this reaction IS from that, would it have taken that long to show up?

BTW, I've never had her tested for celiac or any other allergies/intolerance. We've just went with it and found that they do better without it and that's been good enough for us. Do you think this reaction warrants further testing?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chiroptera Apprentice
chiroptera
Posted

Oh yes, it sure sounds like a glutening to me. My two daughters, especially one of them, who are 9 and myself had severe stomach pain/cramping as our main gluten intolerance/celiac symptom. We would be SO sick . My daughter went throught their entire second grade year like that and everyone thought she had "issues" like separation. I went through a very long period, years actually, where every single day I would be sick and live in the bathroom and when I wasn't in there I'd walk around holding my stomach/abdomen because of the pain. Sometimes the pain would come in big waves where I couldn't walk/talk/etc. That pain would be up high, like right below my ribcage.

Long story short, my daughters and I (also my son since August) have been gluten free since June 11 and we have never ever felt better! The stomach pain and other issues are gone! Really, I can't believe it. My poor daughters talks all the time about how she would hurt from the time she ate breakfast until the time she went to bed. She was having trouble working in school and playing with her friends.

I'm not saying gluten is the problem for everyone, but for us, it was.

We did Enterolab stool testing and found out the girls (who are identical twins) are also egg and casein intolerant. Now, that part has been very hard for us, as we don't eat much meat and depending on dairy and eggs.

Sorry for the long response, but I would say that your little one could definitely be so sick from oats, because they are most often cross contaminated with wheat.

I hope everyone feels better soon!

jststric Contributor
jststric
Posted

I think a pretty safe way around the oatmeal dilemma is to get true, Irish oats. I think the issue of cc is pretty nill to none with them.

Generic Apprentice
Generic
Posted

The problem with oats isn't that they just get cc. It is that some celiacs react to certified gluten-free oats too. My daughter tolerates them fine. I don't, it's as if I had eaten a sandwich of wheat or similar by the reactions I get from oats.

Some people react, some don't.

Rondar2001 Apprentice
Rondar2001
Posted

It sounds like it is the oats. We had tried our daughter on the certified gluten free oats and her reaction was worse than her typical gluten reaction.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.