Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low-gluten Host

dbates

By dbates
in Introduce Yourself / Share Stuff

Recommended Posts

dbates Newbie
dbates
Posted

Hi this is my first time making a post on this forum. I was diagnosed as a Celiac about a month and a half ago. I have had some very bad symptoms without realizing where they came from for a really long time. I have been free from Gluten for about a month, and one thing I wanted to ask about is if I am maybe getting a little overboard. I am a Roman Catholic and since I learned I am a Celiac I have been trying to use low-gluten hosts from some Benedictine nuns that contain 100 ppms or 37 micrograms of gluten. I have come to understand that these have such a small amount of gluten in them that they should not bother Celiacs, but I am pretty sure I am having a reaction to them. I know that thirty minutes after receiving one I had bad migraines and then I was fatigued all the next day. I have had one person comment saying I am making myself believe I am going to get sick, so I start to feel symptoms, but I am pretty sure I can't think up migraines. My question is has anyone had a similar experience with the hosts, and is it possible to be that sensitive to such a low amount of Gluten?

I am trying to make sure that I am not getting gluten from anywhere else, so that I can test it, but since I don't know if it is even possible I am wondering if maybe I can think and thus feel Celiac Symptoms. Any comments would be great.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi and welcome to the board! :)

It is entirely possible that you are reacting to the small amount of gluten in the low-gluten hosts. I know I would react which is why I've never tried them. The person who said you could not possibly be reacting to such a small amount was incorrect.

If you feel comfortable, you can receive Communion by taking the wine only. It is perfectly acceptable. Talk to your priest--perhaps you could get your own small chalice for your wine or he can use one for you that has not had any crumbs from the large Host mixed in.

Best of luck, and I'm glad you found us.

dbates Newbie
dbates
Posted
  • Author
Hi and welcome to the board! :)

It is entirely possible that you are reacting to the small amount of gluten in the low-gluten hosts. I know I would react which is why I've never tried them. The person who said you could not possibly be reacting to such a small amount was incorrect.

If you feel comfortable, you can receive Communion by taking the wine only. It is perfectly acceptable. Talk to your priest--perhaps you could get your own small chalice for your wine or he can use one for you that has not had any crumbs from the large Host mixed in.

Best of luck, and I'm glad you found us.

Thank you, I am pretty happy I found this site as well. =) That is good to know that it is possible, now I don't feel like I am slightly crazy. I am still new to this whole thing so it is hard to know what does and does not have adverse affects. I think I will try first to recieve a smaller amount of the host and see how that goes, but if not I will talk to my priest about the wine option. Thanks so much for your response.

tarnalberry Community Regular
tarnalberry
Posted

You can definitely "think yourself" into a migraine. (I have chronic migraines, and have experienced this. It's annoying, because just because you can 'think' yourself into one, doesn't mean you can 'think' yourself out of one. And it's kind of misleading to phrase it as "thinking" into a migraine, because it has more to do with the idea that you might get one causing a physiologic stress reaction which does alter chemistry and physiology.)

BUT, you can most definitely react to small amounts of gluten. There's a debate about it on another thread, but I'll summarize what I've seen here and in published studies: *most* people don't react to gluten in doses less than around 20ppm (the exact amount in studies varies, and this conclusion is verified by intestinal biopsy), but some people DO react. We have plenty of representatives of the "really really trace amounts cause a reaction", and plenty who don't. Perhaps you can try having just a sliver of the wafer (an eighth of a piece or something like that) and see if you're in a grey zone, but perhaps you're better off with just the wine/juice instead.

Can you ever definitively prove if your reaction is psychosomatic in origin or not? Not really. But you have a good reason to think it might not be, so, IMHO, why not eliminate that reason?

  • 2 weeks later...
Cait6799 Rookie
Cait6799
Posted

Is it simply possible that the gluten is cross contaminating from the priest holding the other hosts first?

I know the issues behind being Catholic and their stance on the host. It was a disaster for my daughter's first communion.

While her sensitivity level is not one that is bothered by the trace amounts in the host I purchased, my concern is that because hers is separate - and she goes last - that there would be some left on his hands by the time he got to her.

  • 3 months later...
Squidge Newbie
Squidge
Posted

There are Catholic approved gluten FREE host wafers, supposedly. I'm sorry, I get really upset about situations such as this. Jesus never once commanded that the bread be made using wheat, rye, or barley. He also never commanded us to make ourselves sick trying to properly worship him. You do also need to have a serious talk with your priest about cross-contamination. Tell your priest the wafers are still making you sick and see what he can do. And 100 ppm is still a lot of gluten for someone with Celiac's.

  • 1 month later...
Nightingale8472 Rookie
Nightingale8472
Posted

It's definitely possible to think yourself into a migraine. I have chronic migraines and do it to myself all the time. Walking out of the house without my migraine meds is a surefire trigger. I start thinking "OMG, I don't have my meds... what if I get a migraine. I just know I'm gonna get a migraine, and I don't have my meds... OMG I'm gonna get a migraine." and BAM, I have a migraine because I've stressed myself into one.

I have no idea about the gluten in the hosts, though. I'm new at this gluten free thing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I have a positive blood test for Celiacs but have been eating gluten until I get my biopsy Wed. Then I plan to go gluten-free. Sunday, I realized this was my last communion host & I started to tear up. Suddenly, an eyelash fell in my eye & it was watering from it. I think God is trying to tell me its OK take the wine.

Brenda Bell Newbie
Brenda Bell
Posted

I have a positive blood test for Celiacs but have been eating gluten until I get my biopsy Wed. Then I plan to go gluten-free. Sunday, I realized this was my last communion host & I started to tear up. Suddenly, an eyelash fell in my eye & it was watering from it. I think God is trying to tell me its OK take the wine.

Most likely it is cross contamination... At our parish... the host is served first for Gluten Sentitive people at the handicap alter... The person who serves the Low_Gluten host does not touch the other host... Since they are following the precautions we are fine.... except sometime if I have the wine I get a reaction... maybe cross contamination there but I dont want think about that... Good Luck... We also keep Kinnicks Donuts in the freezer so the Celiacs in the parish can have coffee hour too.... just a thought

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,836
    • Most Online (within 30 mins)
      7,748
    maegan.s
    Newest Member
    maegan.s
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.