Suspected Celiacs, Plus Soy Problem?

[mrsbam]

Is it possible that I only react to Soy after starting gluten free, even only after a few days?

I have had problems getting a diagnosis for years, and I have tried gluten-free a few times with good results, but I always had a problem with the brain fog comming back and odd dizzyness after some food.

I had suspected Soy was the issue, but a Soy free diet always failed (never did gluten-free & Soy free). Then a few months ago, after what I remember was a gluten-free weekend (not on purpose) I had a severe dizzy, then opiate like reaction to dark chocolate (cocoa 70% + soy lechtin).

This time after going gluten-free for a few days, a dose of Soy from a pastry (tuesday night) gave me exactly the same dizzy reaction, and I still have a severe "brain fog" today (wednesday) that had lifted since starting the gluten-free diet on sunday.

When eating foods with gluten in them, I do not generally get this reaction, and no where as severe.

(everyday symptoms: fatigue, blood noses, brain fog, moods, bruising, weight issues, wanting for high energy foods, IBS (incl mucas), and others)

[mushroom]

Hi mrsbam, and welcome to the forum. The short answer to your question is, yes.

The longer answer is that many of us discover other intolerances after we eliminate gluten from our diet. It seems that the body is so overwhelmed by trying to deal with the gluten that it really doesn't have much time to tell us about the other problems going on until the gluten is gone. And then it says, oh, by the way, I also have a problem with soy, and I am going to tell you this by (choose one) itching, dizziness and brain fog, GI symptoms, etc. So you eliminate this and then body says, oh, and while you're about it, you might want to stop eating (choose one or more) dairy, corn, nightshades, caffeine, nuts, bananas, it seems the list here is endless of additional intolerances we might uncover. Fortunately most of us are not bombarded with them all. Many of these are difficult to track down, but you seem to be tracking with soy pretty well. I, too, cannot handle the soy lecithin in chocolate, which is very limiting if you are a chocoholic like me. But Fair Trade makes a soy-free/gluten free chocolate and Enjoy Life makes gluten/soy free chocolate chips, so all is not lost. And there are others besides.

Is it possible for to get the blood test for celiac done now? Because you really should do it while you are still eating gluten for the results to be valid.

[ksymonds84]

Soy was the missing link for me as well. During my first year gluten free, I still had problems and suspected soy since soy milk gave me bad gas. I eliminated soy except for soybean oil and lecithin. I got tested for soy back in early August and did show an elevated IgA to soy. This time around, I have eliminated all soy including the oil and lecithin and diligently read labels to see where it is hiding and I feel the best ever! For me, gluten causes the brain fog, arthritis, tingly face, and gastro symptoms. Soy causes quick gastro symptoms plus acne around my mouth so its easy for me to figure which one got me. A food journal helps tremendously in the beginning. I also second mushroom's advice that if you are still eating gluten to get all the testing that you want done now. Hope you get it all figured out!

[mrsbam]

I will be trying to see my doc on friday arvo, and a previous blood test came back negative, but that's before I knew about the 6 week thing, and my doc never mentioned it. I had been gluten free for a few weeks before, minus a week where I had started again, and the weekend before I did it without thinking.

Thanks for all the advice and help, now to see where this rabbit hole ends .