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New To Forums & Idea Of Possible Celiac


dultimate1

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dultimate1 Newbie

I am new to the forums here and new to the whole idea that I may have Celiac disease. I have been ill all my life and it started when I was a toddler with severe stomach pain and stomach acid coming up in my mouth. Needless to say..after years of being ill I am now to the point of being disabled and can barely function. There are times in the recent past that I layed down at night to go to sleep and really wondered if I would wake the following morning. I have so many symptoms of this disease that its ridiculous that the doctors didn't check me for Celiac sooner. I was actually the one that discovered the possiblity, which is sad. I will post later with all my symptoms over the years and about what age I was when I first noticed them, in hopes it will get some of my questions answered and maybe help someone else that is like me. I had to blood test done for Celiac, but it came back negative, which is something I sort of expected since I have been ill with this for so long that my body no longer reacts as it should enough to show up on bloodwork. I did get my surgeon to set up an EGD, since I have to have that and the lower scope done on a regular basis, anyway, due to all the trouble I have with my digestive system. Anway, I will post the findings of the biopsies that were taken during my EGD. From what I understand, the surgeon found several bad areas and took a biopsy of each.

Tell I have more time to write......may you all be well.


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ang1e0251 Contributor

Your bloodwork could be negative if you are IGA deficient. If you want to know, you could post the results along with the lab's parameters here for someone to look at.

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    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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