Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Heart Is Breaking

elle's mom

Recommended Posts

rysmom Rookie
rysmom
Posted

Just wanted to add my two cents....as I know how hard it can be for a mom who is sending her lo off to school for the very first time....and when our lo has celiac it can make it even harder. I also can bring the other side as I was a teacher before I had children.

I have been dealing with celiac with my middle son for over three years now. He is now 6 and is in the 1st grade. I will tell you from my experience, do not be afraid to just take control of the whole situation yourself. This is your daughter. Try to remember how clueless you were when you were first learning about celiac disease. The teacher may not have ever even heard of celiac before or if she has she doesn't understand the true depth of what it entails....not many people do.

It is absolutely ok and in your right as a parent to write a note to the teacher and to all the other parents explaining your daughters "allergy" and asking them if they wouldn't mind sending in a snack from the list when it is their snack turn. 99.9% of parents that I have been around have been more than helpful. People really want to help.....

Good luck!!! Hang in there!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Genna'smom Apprentice
Genna'smom
Posted

Hi

My 3 year old started preschool 4 days a week and due to her celiac's she has an OT and and counselor. I think I am lucky that the teacher is great. For thanksgiving she sent me home a list and I made Genna all the same things and brought in a special desert. She now gave me a list of all the craft things they would be doing in december so I can send in gluten-free ingredients for those days. She is working really hard with me to make her feel a part of the group. BUT she is leaving any day now to have a baby and I am worried about what the new teacher will be like. I will fight for her though.

OK - you should be mad and I would sit down with the director of the preschool. My daughter's teacher and staff check her list every time they have any kind of food or craft thing. Also I did wirte up a letter to all the parents and it got sent home during the 1st week of school about BD parties, etc. I have had several calls from parents trying to accommodate me.

Good luck..

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,346
    • Most Online (within 30 mins)
      7,748
    Thomas D Cosgrove
    Newest Member
    Thomas D Cosgrove
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      This Roller Coaster Ride Needs to Stop

      By Scott Adams · Posted

      Given your severe symptoms it sounds like you would be much better off going 100% gluten-free!
    • Ginger38
      This Roller Coaster Ride Needs to Stop

      By Ginger38 · Posted

      Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes would not be affected. WRONG. I have tried this several times since I crossed over to full blown diabetes, because I get so sick eating gluten that I end up getting frustrated and go back to gluten free to get some relief. I have a continuous glucose monitor so it is easy to see how my body and glucose are reacting to foods...
    • Wheatwacked
      Am I celiac or not?

      By Wheatwacked · Posted

      Just like you cannot be a little pregnant, you cannot be a little Celiac.  Here is an article I found that explains what the numbers mean. Are You Confused About Your Celiac Disease Lab Results? Here is another article about the non traditional symptoms of Celiac Disease. What Are the Symptoms of Celiac Disease? I've been taking 10,000 IU vitamin D3 since 2015.  My blood tests every 3 months for 25(OH)D have never gone above 93 ng/ml, even in the Florida summer.  70 - 100 is the body's natural homeostasis level. Surge of information on benefits of vitamin D "“When combined with supplemental magnesium, vitamin D repletion has dramatically changed my practice,” said...
    • somethinglikeolivia
      Am I celiac or not?

      By somethinglikeolivia · Posted

      Interesting! Recent labs I had done did show that I was low in Vitamin D so I just began supplementing, it’s hard to tell so soon but it does seem to have a positive affect! Thanks for the input!
    • Scott Adams
      This Roller Coaster Ride Needs to Stop

      By Scott Adams · Posted

      Your frustration and exhaustion are completely valid, and many in the celiac and gluten-sensitive community can relate to the overwhelming confusion you're experiencing. You’re being pulled in different directions by medical advice that seems contradictory, and it’s heartbreaking that your efforts to feel better are met with so many setbacks. Positive TTG IgA antibodies are not something to brush off, especially when combined with your long list of debilitating symptoms that clearly worsen with gluten exposure. A negative biopsy does not necessarily mean you don’t have celiac disease—it’s entirely possible that damage was missed, especially since biopsy results can vary...
×
×
  • Create New...