Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was Just Diagnosed...advice Needed

hazeleyez682

Recommended Posts

hazeleyez682 Apprentice
hazeleyez682
Posted

Hello all!

I recieved my test results yesterday and I came back positive for celiacs. For about a year i have been having digestion issues, skin issues,weight loss,and fatigue. Now i know why, but what's next. What is the best way to convert to guten free? It seems impossible i have been reading and its not just breads and such it effects everything IE the olives in my fridge that contain guar gum. I am totally overwhelmed! HELP!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


momxyz Contributor
momxyz
Posted

start simply!

Fresh fruit, fresh vegetables, chicken, pork, fish, beef all are inherently gluten free. So for dinner, a serving of meat or fish, vegetables of your choice, and some rice. Very satisfying and easy too.

I usually take the lefovers to work for lunch.

Breakfast could be eggs and fruit.

It does take a while to understand the ingredients and labeling so I found it easier to stick to freshly prepared food at home until I started getting the hang of things.

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author
start simply!

Fresh fruit, fresh vegetables, chicken, pork, fish, beef all are inherently gluten free. So for dinner, a serving of meat or fish, vegetables of your choice, and some rice. Very satisfying and easy too.

I usually take the lefovers to work for lunch.

Breakfast could be eggs and fruit.

It does take a while to understand the ingredients and labeling so I found it easier to stick to freshly prepared food at home until I started getting the hang of things.

GottaSki Mentor
GottaSki
Posted
Hello all!

I recieved my test results yesterday and I came back positive for celiacs. For about a year i have been having digestion issues, skin issues,weight loss,and fatigue. Now i know why, but what's next. What is the best way to convert to guten free? It seems impossible i have been reading and its not just breads and such it effects everything IE the olives in my fridge that contain guar gum. I am totally overwhelmed! HELP!

Welcome!

The good news is many, many things are gluten-free. We have successfully replaced or replicated all of our favorites.

As mentioned simple is best (meat, eggs, vegetables, fruit, rice, potatoes) until you get the hang of reading labels...which can be frustrating at first...but will become easier with time.

Besides the many gluten-free shopping lists to be found here, in books and other websites, the easiest thing for me when we were converting was to google or search this site...on google I'd put the product or ingredient name plus gluten -- most times it brings you directly to posts on celiac.com with plenty of info. If that doesn't work you can call or email the manufacturer -- we've found calling gets the answer quicker, but email works well too.

Will your kitchen be completely gluten-free? If so, start with clearing out the gluten items and wash well or replace items such as colander, cutting board, cooking utensils, etc. Replace your toaster or use a toaster oven by lining your food with foil. If sharing your kitchen with gluten, make sure you learn how to avoid cross-contamination issues...

Continue to ask questions...I found a lot of answers here and you will too.

Oh...guar gum is gluten free...so if there are no other ingredients with gluten your olives should be fine.

Good Luck!

Wolicki Enthusiast
Wolicki
Posted

I agree with simple! STay away from the processed gluten-free stuff for a while to give your instestines a chance to heal. Simple, natural foods will also prevent some of the secondary food intolerances many of us develop, IMHO. I would also reccomend a good probiotic and enzymes to help you digest better. Stay away from processed foods and foods that wer not a typical part of your diet before going gluten-free.

These are the things I wish I knew when I started. Hope it helps!

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author
Welcome!

The good news is many, many things are gluten-free. We have successfully replaced or replicated all of our favorites.

As mentioned simple is best (meat, eggs, vegetables, fruit, rice, potatoes) until you get the hang of reading labels...which can be frustrating at first...but will become easier with time.

Besides the many gluten-free shopping lists to be found here, in books and other websites, the easiest thing for me when we were converting was to google or search this site...on google I'd put the product or ingredient name plus gluten -- most times it brings you directly to posts on celiac.com with plenty of info. If that doesn't work you can call or email the manufacturer -- we've found calling gets the answer quicker, but email works well too.

Will your kitchen be completely gluten-free? If so, start with clearing out the gluten items and wash well or replace items such as colander, cutting board, cooking utensils, etc. Replace your toaster or use a toaster oven by lining your food with foil. If sharing your kitchen with gluten, make sure you learn how to avoid cross-contamination issues...

Continue to ask questions...I found a lot of answers here and you will too.

Oh...guar gum is gluten free...so if there are no other ingredients with gluten your olives should be fine.

Good Luck!

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author

Thank you very much this all is helpful.

I share my kitchen with my boyfriend and he has decided he will also go gluten free although he does not need to to support me and make my transition easier. I washed and sterelized all kitchen utensils and pans today. Also i will buy a new toaster. I will begin as suggested with fresh foods. But have found several stores such as whole foods, trader joes, and stop and shop that carry gluten free items. I dont know any others that have celiacs so i believe this site will soon become my link to others like me. Ill keep everyone posted with my progress.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


momxyz Contributor
momxyz
Posted
Thank you very much this all is helpful.

I share my kitchen with my boyfriend and he has decided he will also go gluten free although he does not need to to support me and make my transition easier. I washed and sterelized all kitchen utensils and pans today. Also i will buy a new toaster. I will begin as suggested with fresh foods. But have found several stores such as whole foods, trader joes, and stop and shop that carry gluten free items. I dont know any others that have celiacs so i believe this site will soon become my link to others like me. Ill keep everyone posted with my progress.

The first "prepared" gluten free food I bought was a breakfast cereal, mostly for my daughter, who was used to eating special Kay. It was made from brown rice, and it was OK, and she ate it enthuiastically at first. But we never ended up finishing the box. She ended up converting her breakfasts to puffed rice cakes and some fruit - usually a banana. I usually do yogurt and fruit. (eggs on weekends). But I still miss oatmeal and my mission is to find some that is prepared in a dedicated facility. While oats are gluten free, they are commonly processed in facilities where other glutenous grains are handled, so cross contamination is of concern.

There are two prepared foods that I would suggest to you because they are simple replacements and we really have enjoyed them.

Brown rice pasta is the first. We buy Tinkayada brand, but there are others out there. (and there is corn based pasta too). My husband does not have to eat gluten free, and he is a good Italian to boot, but he likes this pasta better than what we were cooking before. So that's all we have in the house! (We just bought a bulk order of 10 lbs from a food coop - we have our firewood, we just bought oil and we have good pasta - all set for the winter! :lol:)

The other item is a gluten free pizza crust mix. We like Namaste brand; there are others. Again, this is another product my husband honestly enjoys, and my daughter also has "converted" her boyfriend too. As a teenager still in highschool, this was huge for her - not being able to eat pizza with friends? Now we always have a mix in the cupboard for her to prepare and share with her buds.

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author
I agree with simple! STay away from the processed gluten-free stuff for a while to give your instestines a chance to heal. Simple, natural foods will also prevent some of the secondary food intolerances many of us develop, IMHO. I would also reccomend a good probiotic and enzymes to help you digest better. Stay away from processed foods and foods that wer not a typical part of your diet before going gluten-free.

These are the things I wish I knew when I started. Hope it helps!

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author
I agree with simple! STay away from the processed gluten-free stuff for a while to give your instestines a chance to heal. Simple, natural foods will also prevent some of the secondary food intolerances many of us develop, IMHO. I would also reccomend a good probiotic and enzymes to help you digest better. Stay away from processed foods and foods that wer not a typical part of your diet before going gluten-free.

These are the things I wish I knew when I started. Hope it helps!

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author
I agree with simple! STay away from the processed gluten-free stuff for a while to give your instestines a chance to heal. Simple, natural foods will also prevent some of the secondary food intolerances many of us develop, IMHO. I would also reccomend a good probiotic and enzymes to help you digest better. Stay away from processed foods and foods that wer not a typical part of your diet before going gluten-free.

These are the things I wish I knew when I started. Hope it helps!

What is IMHO?

Another question in my reading i have comne across information about a comprimised immune system. This concerns me with the flu going around. I am a teacher also...should i get vaccinated???

Wolicki Enthusiast
Wolicki
Posted
What is IMHO?

Anher question in my reading i have comne across information about a comprimised immune system. This concerns me with the flu going around. I am a teacher also...should i get vaccinated???

Sorry about that. It's short for "in my humble opinion."

The flu things i very controversial. I personally always get a flu shot because otherwise I get very very ill and end up hospitalized if I get it. Others here have very different opinions>

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,627
    • Most Online (within 30 mins)
      7,748
    kathrynhmarks
    Newest Member
    kathrynhmarks
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Inkie
      Thee

      By Inkie · Posted

      I  notice a reaction to tea bags, possibly due to gluten or other substances. Is this recognizable?
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you, really.  I took a test for DGP-IgA and DGP-IgG. Effectively, it is not enough to discard Celiac Disease. I was consuming gluten until then, I only started gluten-free some days ago, when the symptoms became horrible and now I feel considerably better, which is a second confirmation that gluten is the main problem. It's been more than 4 years I have the same suspect, when I first thought gluten was causing me problems, I made a gluten-free diet for a year, I felt really good as never before. However, neither I or my parents were well informed about Celiac disease, so none of us tried to make further exams. My father suffer digestive problems and other members of my family as well. Unfortunately, no one have ever been tested for Celiac disease. I'll have to restart eating gluten in the next weeks, so I can make a serious blood test in laboratory, hopefully between two or three months.
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable levels.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend beyond typical IBS. The negative home test is not reliable, particularly given your concern about sample contamination and the fact that you were likely not consuming sufficient gluten at the time for the test to be accurate, which is a common issue. While probiotics like Bifidobacterium Infantis can support gut health, they cannot resolve an autoimmune response to gluten or heal intestinal damage caused by Celiac Disease. Your declining blood test results, even if still "in range," further indicate a trend that needs a doctor's investigation. Please do not hesitate to seek a specialist; a formal diagnosis is the first step toward getting the correct treatment, allowing your body to heal, and finally addressing your weight and overall health concerns. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.