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Anyone Have Troubles With All Grains?

Crayons574

By Crayons574
in Coping with Celiac Disease

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Crayons574 Contributor
Crayons574
Posted

I was just wondering how many people on here have trouble with all grains and find that they do best on a grain-free diet? Is this common among Celiacs--like does your body think that anything that even remotely resembles gluten is hard to digest? Or is this temporary and gluten free grains can eventually be reintroduced? Thanks! :)

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dilettantesteph Collaborator
dilettantesteph
Posted

I am very careful where I get my grains. Once I got a bag of millet and there were a bunch of grains in there that looked like wheat. My latest supply of corn also had grains in there that were not corn, though they were a lot bigger than the grains that I found in the millet. I also wash them before cooking.

ang1e0251 Contributor
ang1e0251
Posted

I have a hard time with grains. I do best with corn. I've cut way back to very few grains.

Wolicki Enthusiast
Wolicki
Posted

I can't tolerate grains either. Ithink this is a temporary problem that will go away with healing. I can now have rice cakes, but that's it so far.

YoloGx Rookie
YoloGx
Posted

A lot of people here have this problem--including me. Though for myself I think its mainly due to problems with fungal overgrowth. The simpler the diet the healthier I am. The specific carbohydrate diet thread here might be something for you to look into. I eat squash to replace a lot of the grains, though I still eat less carb. than when I ate grains.

Bea

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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