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Celiac And Taking Prevacid

tfrankenberger

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tfrankenberger Apprentice
tfrankenberger
Posted

Do any of your Celiac kids take Prevacid along with a gluten free diet?

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AJSmom Rookie
AJSmom
Posted
Do any of your Celiac kids take Prevacid along with a gluten free diet?

My DS is also on Prevacid.

Tigercat17 Enthusiast
Tigercat17
Posted

I'm not a kid, well, maybe a big kid... I do take Prevacid along with the gluten free diet. I had really bad acid reflux that wasn't controlled by Prilosec so they did the upper endoscopy. I was then diagnosed with the Celiac just last month. The doctor started me on the Prevacid two weeks ago. It seems I have a lot of damage to my esophagus & stomach for all the gluten I was eating. My doctor told me it takes two weeks to feel some relief. Also, he told me I'll have to be on it for 8 weeks to completely heal everything & then will try to stop them. But if I still have the reflux I might have to be on a "maintenance dose." I'm hoping not... I don't want to be on medication all the time. But, I guess, whatever makes me get better...

I hope you this helps. :)

Raven's Mum Newbie
Raven's Mum
Posted

Raven just started Losec, which is similar. She was on ranitadine for years but it wasn't cutting it. When they did the celiac biospy, that's when they noticed esophogus damage from reflux and decided to switch her.

Darn210 Enthusiast
Darn210
Posted

My daughter was on Prevacid for acid reflux and it wasn't completely controlling it . . . that's when they sent us to a ped GI resulting in an endoscopy and a screening for Celiac (among other things). We were completely surprised by the Celiac diagnosis. She remained on Prevacid for quite some time (4 or 5 months?) after switching over to gluten free. She's not on it anymore.

chiroptera Apprentice
chiroptera
Posted

For one of my twin now gluten free daughters, GERD was her primary Celiac symptom. Her identical twin had more of the "typical" digestive issues. My daughter was put on prevacid for a little while and she got somewhat better but not enough for me. She went gluten-free on June 11 and just now she is basically 98 percent free of GERD. We also did some Enterolab stool testing on own and found out she is also casein and egg intolerant. Being off those foods has really helped. If she gets some casein or egg (like in a baked product) she gets acid reflux again.

I was on prevacid for over 10 years. I also went gluten-free in June and oh my gosh, I have no GERD at all! I am SO amazed. Our family does not like taking drugs of any kind and am I was so upset that my child was headed down my GERD path. But no more! :)

I just want to mention to you (because no doctor told me) that prevacid and other ppi drugs can do a whammy on your stomach acid. It depletes it so much and what happened to me what that I was on an antibiotic and ended up very ill (in hospital for a week) with an overgrowth of the C. Difficule A and B toxins. I was a healthy 35 year old adult and the doctors were amazed I was so sick.

I'm certainly not saying this to scare anyone, but should anyone need to take antibiotics with their ppi drugs, please make sure you take some probiotics as well.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Many of us on this board have found that our reflux was CAUSED by the celiac.

Acid blockers controlled the reflux, BUT (and this is a BIG BUT):

Acid blockers tend to be addictive. Literally. There is a HUGE rebound effect if you try to quit cold turkey, which can convince you that you really NEED the acid blocker. This is not listed in the package insert, and my GI doc knew NOTHING about this(although she does now).

If you've been taking acid blockers long-term, you will almost certainly need to wean off. Cut the dosage in half instead of quitting outright. A week or two later, cut it in half again.

Another major problem with acid blockers is that they can cause B12 deficiency. Again, this is not in the package insert, and this was also something my GI doc had never heard of. But it's on every B12 deficiency site, and every Pernicious Anemia site as one of the top risks for B12 deficiency, because in order to properly absorb B12, you need acid.

Celiacs are already at major risk for B12 deficiency, due to malabsorption.

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NewGFMom Contributor
NewGFMom
Posted

My son has been taking it going on six months now to resolve some unexplained belly pain. It's helping quite a bit.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Have Tru Joy Sweets Choco Chews been discontinued??

      By MauraBue · Posted

      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

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    • knitty kitty
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By knitty kitty · Posted

      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
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