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The Warning Label


jenvan

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turtle99 Rookie

Question re: labels

Do you any of you eat products that do not specifically say "gulten free" ?

For example many corn chips, do not have gluten-typle ingredients, would you still eat them?

Do you consider it risky to eat products that are not labelled gluten free?


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lovegrov Collaborator

Most of us eat many products that aren't specifically marked gluten-free. In fact, large numbers of products that aren't marked gluten-free are indeed gluten-free.

richard

MySuicidalTurtle Enthusiast

I eat those kind if I call the company first.

KaitiUSA Enthusiast

There are some brands like Kraft who will not hide anything but they do not list gluten free on the label. They will however list wheat,rye,barley,oats right on the label if they contain any.

For other brands who do not have that policy and don't list gluten free on them the best thing is too call the company.

I eat alot of products that don't say specifically gluten free on them.

tarnalberry Community Regular

I'll definitely eat things that aren't specifically labeled gluten-free, if the ingredients are gluten-free.

Guest gillian502

I will absolutely not eat any products that have a warning label on them, no way. They are basically telling you point blank the item is cross contaminated. I will eat items only if I have called the company and they tell me that particular item is not run on the same lines with a gluten containing food.

As for eating items not labeled gluten-free, we have no other choice. Few foods are marked "gluten-free" even though they may be gluten-free.

phakephur Apprentice

I would assume the absence of a warning label would indicate lack of awareness of the gluten free lifestyle, not necessarily the lack of cross contamination.


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lotusgem Rookie

Oh my! Assumptions can be very risky business. If there's one thing I've learned since going gluten-free, it is that you can not take anything for granted. Until we get actual legal guidelines for food labeling as regards gluten, it's always best to check and make sure that your "assumption" is accurate, lest you eat something unsafe. :rolleyes:

Paula

turtle99 Rookie

I hadn't realized that going gluten-free was such tricky business til I started. I ate a wonderfully yummy organic chocolate bar, when half way through , I read on the label that it was made in a facilitythat uses wheat! So I kinda lied to myself, thinking maybe this bar didn't come into contact with it......because it tastes soooo good. So I ate the rest of the chocolate bar, and my lethargic old self was returning. It wasn't as severe but I starting feeling off..... Ok, yeh , so I learned my lesson. I need to take these warnings seriously.

I think if we want to be absolutely sure we do need some kind of verification from the makers of the product. So that's a lot of companies to call! I'm starting to get so scared of what to eat, I'm just eating plain whole foods now like potatoes, cheese, rice, eggs, fruits, salad.

What about deli meats? sausages? Do they usually contain gluten?

Do any of you have bad reactions to preservatives and additives, and flavour enhancers, like MSG ?

baggotlane Rookie

I don't see how the defense could stand up! If they say 'gluten-free' then it must be gluten-free, no matter where or how it is produced. How can that statement mean anything else? What do they mea by facility?

It's all a farce. For me, if iIsee the warning I cannot trust the company. Therefore I will not buy it.

Andrew

Nadtorious Rookie

I'm not going to point fingers, but yes, there is at least one company that labels their products as gluten free on the front of the package, but has the CYA warning on the back about being produced in the same facility and that cross contamination may occur. I know a lot of people haven't reacted to these products, but I have, and I think its kind of shady that a company can get away with that. Many new celiacs, like me at one point, saw a gluten free label as worry free and don't bother to read the ingredients. It's scary to think that a company would want to take advantage of such a serious illness by marketing something this way. I never thought I'd say this, but maybe the FDA needs to get involved in this.

Peace-

Nadia

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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