Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Of Colitis?


willabec

Recommended Posts

willabec Contributor

Any of you out there have colitis? i know that there are a few different forms of colitis and i myself have not yet been diagnosed with it, but internet research suggests that maybei have it. for those of you who have it, do you also have celiac disease? what are your symtoms? i have celiac disease, have been gluten free for 7 years. lately (actually quite some time) i have had intestinal issues. more of loose stool, sometimes explosive D (sorry to be explicit) and for the past few weeks i have noticed a nagging "pain/cramp" in the lower left portion of my stomach, near my pelvis but on the left side. not sure if that pain is related to something else or what. for those of you out there that have both celiac and colitis, any information you can give me would be helpful. my gi did a stool sample test about a month ago, it came back with undigested food in the stool. he put me on a pancreatic enzyme for about a week. things got a little better but not enough for him to keep me on it. after that though, things did get better, the frequency and consistency of the stool was much better. however, now this past week, things seem to be getting like they were before. today i went to the bathroom 4 times before lunch, quite a bit and it was loose, not watery D, but not a formed, solid stool ( have not had one of those in quite some time). any help would be appreciated!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jststric Contributor

I am not diagnosed celiacs or colitis. In fact, should investigate colitis a bit more. But when my gluten-intolerances and other major food-group intolerances kicked in, my digestion was much like you have described. After many different doctors and research on my own, I concluded that I had a "leaky gut", which was described as the intestine lining becoming much like swiss cheese. The "cure", if you will, was needing more of the good bacteria, or probiotics, like you find in yogurt. But being lactose intolerant made yogurt impossible. It took awhile but I found a allergen-free supplement company that had dairy-free probiotics and started taking them. It took a couple of weeks, but things did improve greatly. I still have issues from time to time with fiber and greasy/fatty foods. I tend to not eat veggies/fruit on a regular basis so when I do, its hard on the system. When I do what I should, all works much better.

robinttu Newbie

I have colitis and celiac. I had a scope and it was confirmed that way before I knew I had celiac. It is painful. However, the drugs work well. Your GI doc may give you the meds without any tests. Who knows. Your symptoms are very familiar. I had up to 15 BMs some days. I ended up in the ER because my potassium dropped so low. So, be sure to stay hydrated. Good luck.

willabec Contributor
I have colitis and celiac. I had a scope and it was confirmed that way before I knew I had celiac. It is painful. However, the drugs work well. Your GI doc may give you the meds without any tests. Who knows. Your symptoms are very familiar. I had up to 15 BMs some days. I ended up in the ER because my potassium dropped so low. So, be sure to stay hydrated. Good luck.

are there certain foods you cannot eat? what meds are you on? i hope it's something that can be dealt with....sometimes internet self diagnosing can make your mind wander.....i hope it's nothing too serious. my gi dr. wanted to do a CT scan thinking maybe there was a blockage or that there was some sort of complication of the celiac disease. i did not have the ct scan b/c my symptoms got a lot better. but now they are getting worse today. it's very frustrating!

  • 2 weeks later...
srthomas21 Explorer

I have Ulcerative Colits and Celiac. My UC was so bad that I had my colon completely removed about 10 years ago.

My symptoms were:

anemia

SEVERE stomach cramps

Bloody stools (usually the most telling sign of UC)

Explosive D

Not fun stuff.

I get along great despite not having a colon (I have what's called a internal J pouch) which is basically a pouch formed from part of your small intestine.

I was diagnosed via endoscope and biopsys

There are milder forms of colitis that can be better managed than UC can.

The main treatment for UC is predisone (awful awful drug if on it for prolonged periods) or other immunosuppresant drugs. There may be other better treatments out there now but I don't have the symptoms of UC anymore because I don't have a colon and not having a colon I think may be a benefit with Celiac since if I get glutened it gets out of my system fast.

endrunner Newbie

Well, may I respectfully opine that no one benefits from Celiac because getting glutened out triggers the pathology in the small intestine, and as long as we avoid that, we are doing one very great thing...

I too have ulcerative colitis recently diagnosed by colonoscopy and biopsy. I probably had it for years before recent diagnosis. Mostly I had severe cramping and mucousy stools with something that looked like blood that raised my hackles. Actually I was in the hospital that day getting a liver biopsy when I discovered the blood in the mucousy stool and opted to get it checked and spent a few days as an inpatient.

I have three issues related to one another:Celiac, Ulcerative Colitis, and Sclerosing Cholangitis(autoimmune disease of bile ducts/liver). As such the issues go in tandem, meaning that at this point the immune system is bugging out even more than it used to.

I haven't consumed or tried to avoid gluten since 2002. I wish I had done it longer. Doctors are positively pathetic with Celiac. They don't know their heads on that from a hole in the ground. They have heard about inflammatory bowel disease--that's almost like "graduating to something they learned about." Still no cookbook treatment. I am on Mesalamine. It is helping moderately I would say. I may eventually need the surgery too. I am also on added antioxidant vitamins and selenium as per Sandra Cabot, MD to try to save my liver from crapping out due to the autoimmune stuff.

That's my story. Thanks for letting me share and if I can help anyone in any way, please let me know.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    4. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.