Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weak Positive Ttg Iga Test


dmurth01

Recommended Posts

dmurth01 Newbie

Hi All,

I'm new (obviously) and so glad to find this board.

I went to a GP last week for a check up, but also told her about my fairly recent symptoms (since this summer):

  • Gas
  • Constant abdominal bloating
  • Extremely distended, hard stomach (used to be flat!)
  • Major fatigue, even after a full night of sleep
  • Frequent constipation
  • Depression & anxiety with moodswings
  • Cloudy, "foggy" feeling, especially after eating
  • Ravenous hunger, especially worsened by sweets and carbs

*I haven't had a period in 1.5 years also.

She ran blood tests including a celiac panel, and my tTg iGA test came back as weak positive. The number was 21.

This is the reference used:

0-19 = Negative

20-29 = Weak positive

30+ = Moderate to strong positive

Other blood tests all came back in the normal range.

She's referred me to a GI specialist, but my appointment isn't for a month! I want to go gluten-free so badly right now but I know from reading things here that it might cause negative results at my next appt. so I'm staying on gluten for now.

Any advice for the next month? It's killing me to keep eating gluten while I know it's probably hurting me.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

If you want the endo, then you must stay on gluten- they say the equivalent of 3 slices of wheat bread daily, for an accurate result. If you don't need the official diagnosis, then say the heck with the endo and start the diet. As far as I am concerned, a positive diet response is pretty "official." Good luck with whichever you choose.

homemaker Enthusiast
Hi All,

I'm new (obviously) and so glad to find this board.

I went to a GP last week for a check up, but also told her about my fairly recent symptoms (since this summer):

  • Gas
  • Constant abdominal bloating
  • Extremely distended, hard stomach (used to be flat!)
  • Major fatigue, even after a full night of sleep
  • Frequent constipation
  • Depression & anxiety with moodswings
  • Cloudy, "foggy" feeling, especially after eating
  • Ravenous hunger, especially worsened by sweets and carbs

*I haven't had a period in 1.5 years also.

She ran blood tests including a celiac panel, and my tTg iGA test came back as weak positive. The number was 21.

This is the reference used:

0-19 = Negative

20-29 = Weak positive

30+ = Moderate to strong positive

Other blood tests all came back in the normal range.

She's referred me to a GI specialist, but my appointment isn't for a month! I want to go gluten-free so badly right now but I know from reading things here that it might cause negative results at my next appt. so I'm staying on gluten for now.

Any advice for the next month? It's killing me to keep eating gluten while I know it's probably hurting me.

Thanks!

That seems like a positive test to me! Just like a pregnancy test, no one is just a little pregnant! LOL

One thing to remember is that if you go gluten-free prior to your endoscope it might skew your results....

You do have to eating gluten for the endoscopy to be accurate...

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,199
    • Most Online (within 30 mins)
      7,748

    Andrea Spencer
    Newest Member
    Andrea Spencer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.