Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Started Gluten Free Mon. -- Update

sparrow

Recommended Posts

sparrow Rookie
sparrow
Posted

I had asked on another thread what anyone thought about me trying the gluten-free diet while I'm waiting to see a rheumy -- would it effect my upcoming test results -- like when they test for lupus, etc...not celiac. I just had my celiac panel done while still full throttle gluten and the results were a negative. The feedback from friends and advanced members was to go ahead -- it won't effect those other tests EVEN IF it's directly related to gluten intolerance...I still question that a little, not completely sure, but I can't sit and wait and feel like crap bn now and then so I'm trying it...

So I started the gluten free diet on Monday. Didn't expect really quick results, but started noticing a marked difference by Wed. I've been eating very simply, no other flours or processed gluten free stuff. Just fruit, veggies, rice, beans, some cottage cheese (thinking of cutting dairy just to do a test on that), nuts....I ate out at Chili's and used a gluten free menu last night and specifically told the waiter to make sure it's gluten free -- tell the chef. I ate salmon, rice and broccoli and immediately after, my neck/head started hurting -- how could that happen so quickly? I shouldn't be so sensative to gluten right now, right? I just started the diet monday. But I wasn't looking or waiting for it (not in my head)-- I was talking to friends. I was fine, I ate, my neck starting hurting within that 30 min. and it's just now starting to get better...about 18 hours later.

?? And by the way... how do I get that extra info on me and my journey to appear at the bottom of my post? I thought I did it but it's not showing up on my preview...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ang1e0251 Contributor
ang1e0251
Posted

Oh yeah, you can react to gluten that fast. Is that your typical gluten symptom?

sparrow Rookie
sparrow
Posted
  • Author
Oh yeah, you can react to gluten that fast. Is that your typical gluten symptom?

I'm assuming it is bc chiropractics only relieves a little and very temporary...it continues to get worse... and that was the first thing I noticed that went away, almost completely for 2 days -- it's something that radiates from my shoulder blades up through my head, like severe tension and achiness...

It's settled down, but isn't completely gone yet...I just heard that it takes longer to get to the point where you can detect a trace amount...funny, unh? I wonder if that means I am VERY intolerant...are there levels??

jerseyangel Proficient
jerseyangel
Posted
?? And by the way... how do I get that extra info on me and my journey to appear at the bottom of my post? I thought I did it but it's not showing up on my preview...

Go to "My Controls" at the top of the page and select "Edit Signature"--after you put in what you want, don't forget to hit "update my signature" at the bottom or they won't show up.

lizard00 Enthusiast
lizard00
Posted
It's settled down, but isn't completely gone yet...I just heard that it takes longer to get to the point where you can detect a trace amount...funny, unh? I wonder if that means I am VERY intolerant...are there levels??

Some folks are super sensitive from the beginning, maybe you're one of them. Time will tell. In some folks the opposite happens; they get a little less sensitive over time. Who knows :huh:

The way my doc explained it was that a celiac/gluten intolerant person is just that; intolerant. Whether symptomatic or not, your body cannot tolerate gluten. BUT, there are varying levels of sensitivity, and that's where people differ with the disease. It's not that you tolerate gluten any better than the next celiac, but you may react differently than others, and more severely.

sparrow Rookie
sparrow
Posted
  • Author
Some folks are super sensitive from the beginning, maybe you're one of them. Time will tell. In some folks the opposite happens; they get a little less sensitive over time. Who knows :huh:

The way my doc explained it was that a celiac/gluten intolerant person is just that; intolerant. Whether symptomatic or not, your body cannot tolerate gluten. BUT, there are varying levels of sensitivity, and that's where people differ with the disease. It's not that you tolerate gluten any better than the next celiac, but you may react differently than others, and more severely.

Thanks! That makes sense...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748
    tessycork47
    Newest Member
    tessycork47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.