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Started Gluten Free Mon. -- Update

sparrow

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sparrow Rookie
sparrow
Posted

I had asked on another thread what anyone thought about me trying the gluten-free diet while I'm waiting to see a rheumy -- would it effect my upcoming test results -- like when they test for lupus, etc...not celiac. I just had my celiac panel done while still full throttle gluten and the results were a negative. The feedback from friends and advanced members was to go ahead -- it won't effect those other tests EVEN IF it's directly related to gluten intolerance...I still question that a little, not completely sure, but I can't sit and wait and feel like crap bn now and then so I'm trying it...

So I started the gluten free diet on Monday. Didn't expect really quick results, but started noticing a marked difference by Wed. I've been eating very simply, no other flours or processed gluten free stuff. Just fruit, veggies, rice, beans, some cottage cheese (thinking of cutting dairy just to do a test on that), nuts....I ate out at Chili's and used a gluten free menu last night and specifically told the waiter to make sure it's gluten free -- tell the chef. I ate salmon, rice and broccoli and immediately after, my neck/head started hurting -- how could that happen so quickly? I shouldn't be so sensative to gluten right now, right? I just started the diet monday. But I wasn't looking or waiting for it (not in my head)-- I was talking to friends. I was fine, I ate, my neck starting hurting within that 30 min. and it's just now starting to get better...about 18 hours later.

?? And by the way... how do I get that extra info on me and my journey to appear at the bottom of my post? I thought I did it but it's not showing up on my preview...

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ang1e0251 Contributor
ang1e0251
Posted

Oh yeah, you can react to gluten that fast. Is that your typical gluten symptom?

sparrow Rookie
sparrow
Posted
  • Author
Oh yeah, you can react to gluten that fast. Is that your typical gluten symptom?

I'm assuming it is bc chiropractics only relieves a little and very temporary...it continues to get worse... and that was the first thing I noticed that went away, almost completely for 2 days -- it's something that radiates from my shoulder blades up through my head, like severe tension and achiness...

It's settled down, but isn't completely gone yet...I just heard that it takes longer to get to the point where you can detect a trace amount...funny, unh? I wonder if that means I am VERY intolerant...are there levels??

jerseyangel Proficient
jerseyangel
Posted
?? And by the way... how do I get that extra info on me and my journey to appear at the bottom of my post? I thought I did it but it's not showing up on my preview...

Go to "My Controls" at the top of the page and select "Edit Signature"--after you put in what you want, don't forget to hit "update my signature" at the bottom or they won't show up.

lizard00 Enthusiast
lizard00
Posted
It's settled down, but isn't completely gone yet...I just heard that it takes longer to get to the point where you can detect a trace amount...funny, unh? I wonder if that means I am VERY intolerant...are there levels??

Some folks are super sensitive from the beginning, maybe you're one of them. Time will tell. In some folks the opposite happens; they get a little less sensitive over time. Who knows :huh:

The way my doc explained it was that a celiac/gluten intolerant person is just that; intolerant. Whether symptomatic or not, your body cannot tolerate gluten. BUT, there are varying levels of sensitivity, and that's where people differ with the disease. It's not that you tolerate gluten any better than the next celiac, but you may react differently than others, and more severely.

sparrow Rookie
sparrow
Posted
  • Author
Some folks are super sensitive from the beginning, maybe you're one of them. Time will tell. In some folks the opposite happens; they get a little less sensitive over time. Who knows :huh:

The way my doc explained it was that a celiac/gluten intolerant person is just that; intolerant. Whether symptomatic or not, your body cannot tolerate gluten. BUT, there are varying levels of sensitivity, and that's where people differ with the disease. It's not that you tolerate gluten any better than the next celiac, but you may react differently than others, and more severely.

Thanks! That makes sense...

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    • Scott Adams
      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
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      By Roses8721 · Posted

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