Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Baking / Teachers And School


seezee

Recommended Posts

shayesmom Rookie

I like your two modes. I was also a teacher and tried to see it through her eyes. We decided that she, as my daughter put it, 'just doesn't get it.' The day after Thanksgiving she asked if it was ok to give my daughter chocolate that she bought for the class even though it said 'that it may contain gluten' on the label. I told her it wasn't and reminded her that the school does not allow food sharing or candy. She said, "but I don't want her to look different than the other kids. How about I give it to her and then she doesn't eat it. She can give it to you later?" I think this teacher is having all sorts of trouble with making sensible decisions and I am not the only dissatisfied parent. We have a meeting with the head of the school next week. Wish me luck.

Wow. Not only is she not "getting" it, she apparently doesn't want to try either. Wow. It must be difficult going through life with such a rigidly set perspective.

It's also interesting to see how she justifies keeping her world in order. So much for "independent thinking" on her part. I suppose that there just isn't an acceptable alternative in her view? Is it that she just can't be bothered with all of this or she's of a generation who thinks that Celiac is really a bogus disease because food cannot possibly affect people so negatively? (I've met these kinds of people and they don't "get it" because they don't want to get it).

I do wish you luck with the meeting. I hope that you gently remind the educators there that they WILL be seeing more and more Celiac students in the near future. As painful as it may be, they'd be better served addressing this issue now than waiting for future legal action from families that will not be so tolerant when their child's rights are repeatedly violated.

And if it helps, there was a bill moving through the House and Senate dealing with food allergies/intolerances. If the bill passes, standards will be set in how to deal with food allergies/intolerance in schools and those schools who meet the standards would be eligible for extra federal funding. At that point, this teacher's continued resistance to accommodate a disability would negatively affect her school's bottom line.

Truly, good luck with this and keep us posted on how it goes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StacyA Enthusiast

And if it helps, there was a bill moving through the House and Senate dealing with food allergies/intolerances. If the bill passes, standards will be set in how to deal with food allergies/intolerance in schools and those schools who meet the standards would be eligible for extra federal funding.

Do you have any more info on this, or a link?

shayesmom Rookie

Do you have any more info on this, or a link?

Here's a link which outlines the bills in question: Open Original Shared Link

From what I am reading, the bills still are not out of Committee so they haven't been discussed on the floor. Probably would be a good idea for everyone here to contact their local Congressman to push this along.

strawberrygm Enthusiast

first off, i want to second the praises everyone is sending your daughter! she is being very responsible standing up for herself. i completley understand how hard this is for her, my daughter was diagnosed the summer before 5th grade, so we have been right there!

this thought kept popping in my head....

if this teacher is so sure that baking is an irreplacable part of her teaching that she simply cannot part with, then her entire classroom kitchen must be gluten free. not just a substitute for your daughter, but everything that everyone has must be gluten free. it nixes the chance of cross contamination, it nixes the worry that your daughter will be left out, it teaches the teacher and the children about food allergies. she must give you the money to go out and purchase the items she needs for the baking class, or at the very least let you approve all items before they ever hit the classroom. if another child in the classroom has a nut allergy, or soy allergy, or any allergy, then all items must also meet those requirements as well.

yes, i realize that this isnt a "real world" suggestion. but since she doesnt seem to live in the real world, maybe this will work in her world.

i also wonder after a month of purchasing all allergen safe foods for the entire class how her pocketbook will feel and if she keeps it up??

  • 2 weeks later...
seezee Explorer

I wanted to thank everyone for their great feedback. It really made me feel better.

To follow up, we had a meeting today with the director and he plans to work with the school nurse to create and implement a policy to enforce the existing no food sharing rule. He felt it would benefit everyone at the school and my daughter certainly isn't the only kid who has to have a special diet for medical reasons. He completely understood why I was so upset and agreed.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,007
    • Most Online (within 30 mins)
      7,748

    mlaabs
    Newest Member
    mlaabs
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.