Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Baking / Teachers And School


seezee

Recommended Posts

shayesmom Rookie

I like your two modes. I was also a teacher and tried to see it through her eyes. We decided that she, as my daughter put it, 'just doesn't get it.' The day after Thanksgiving she asked if it was ok to give my daughter chocolate that she bought for the class even though it said 'that it may contain gluten' on the label. I told her it wasn't and reminded her that the school does not allow food sharing or candy. She said, "but I don't want her to look different than the other kids. How about I give it to her and then she doesn't eat it. She can give it to you later?" I think this teacher is having all sorts of trouble with making sensible decisions and I am not the only dissatisfied parent. We have a meeting with the head of the school next week. Wish me luck.

Wow. Not only is she not "getting" it, she apparently doesn't want to try either. Wow. It must be difficult going through life with such a rigidly set perspective.

It's also interesting to see how she justifies keeping her world in order. So much for "independent thinking" on her part. I suppose that there just isn't an acceptable alternative in her view? Is it that she just can't be bothered with all of this or she's of a generation who thinks that Celiac is really a bogus disease because food cannot possibly affect people so negatively? (I've met these kinds of people and they don't "get it" because they don't want to get it).

I do wish you luck with the meeting. I hope that you gently remind the educators there that they WILL be seeing more and more Celiac students in the near future. As painful as it may be, they'd be better served addressing this issue now than waiting for future legal action from families that will not be so tolerant when their child's rights are repeatedly violated.

And if it helps, there was a bill moving through the House and Senate dealing with food allergies/intolerances. If the bill passes, standards will be set in how to deal with food allergies/intolerance in schools and those schools who meet the standards would be eligible for extra federal funding. At that point, this teacher's continued resistance to accommodate a disability would negatively affect her school's bottom line.

Truly, good luck with this and keep us posted on how it goes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StacyA Enthusiast

And if it helps, there was a bill moving through the House and Senate dealing with food allergies/intolerances. If the bill passes, standards will be set in how to deal with food allergies/intolerance in schools and those schools who meet the standards would be eligible for extra federal funding.

Do you have any more info on this, or a link?

shayesmom Rookie

Do you have any more info on this, or a link?

Here's a link which outlines the bills in question: Open Original Shared Link

From what I am reading, the bills still are not out of Committee so they haven't been discussed on the floor. Probably would be a good idea for everyone here to contact their local Congressman to push this along.

strawberrygm Enthusiast

first off, i want to second the praises everyone is sending your daughter! she is being very responsible standing up for herself. i completley understand how hard this is for her, my daughter was diagnosed the summer before 5th grade, so we have been right there!

this thought kept popping in my head....

if this teacher is so sure that baking is an irreplacable part of her teaching that she simply cannot part with, then her entire classroom kitchen must be gluten free. not just a substitute for your daughter, but everything that everyone has must be gluten free. it nixes the chance of cross contamination, it nixes the worry that your daughter will be left out, it teaches the teacher and the children about food allergies. she must give you the money to go out and purchase the items she needs for the baking class, or at the very least let you approve all items before they ever hit the classroom. if another child in the classroom has a nut allergy, or soy allergy, or any allergy, then all items must also meet those requirements as well.

yes, i realize that this isnt a "real world" suggestion. but since she doesnt seem to live in the real world, maybe this will work in her world.

i also wonder after a month of purchasing all allergen safe foods for the entire class how her pocketbook will feel and if she keeps it up??

  • 2 weeks later...
seezee Explorer

I wanted to thank everyone for their great feedback. It really made me feel better.

To follow up, we had a meeting today with the director and he plans to work with the school nurse to create and implement a policy to enforce the existing no food sharing rule. He felt it would benefit everyone at the school and my daughter certainly isn't the only kid who has to have a special diet for medical reasons. He completely understood why I was so upset and agreed.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

    2. - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    3. - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

    5. - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,852
    • Most Online (within 30 mins)
      7,748

    LG2
    Newest Member
    LG2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.