Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Side Effect Or True Reaction From Flu Shot?


chiroptera

Recommended Posts

chiroptera Apprentice

All this talk about shots made me think this would be a good place to ask this question:

A little background: My twin daughters never got the flu vaccine until 2003 when they were 4 years old. EVERY singe year they get it (and we haven't yet because one, our doctor didn't get it and two, we may be dealing with an antibiotic allergy and one of them has to complete allergy testing in December before they may be able to get the flu and three, I'm not so sure I want them or their brother to have either vaccine), they get severe, I mean entire upper thigh swelling, flaming redness and then entire upper thigh bruising that last for two to three months). There have been times we get the shots around Halloween and even in February their legs are still bruised and tender.

Do any of you or your children have this kind of site reaction? They have also gotten the side effects listed like a mild fever, etc but not very badly.

They are identical twins and their brother who is now 5 has gotten the flu shot since he was eligible at I think 6 months but he has no site reactions or had any side effects that we could ever tell.

Now I'm really wondering..............Thanks so much for any information/experiences!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Have you taken them to a doctor afterwards to get that checked?

It really sounds like a reaction to the vaccine, I wouldn't get another shot without seriously talking to a doc first.

tarnalberry Community Regular

Definitely a vaccine reaction. (I had a similar reaction, though not lasting as long, from the pneumovax. Only, it's a fairly well known reaction with the pneumovax.) Absolutely, tell the doctor - any type of significant reaction (something other than "I feel a little more tired" that shows the immune system is doing it's job) is worth at least *calling* to let the doctor know. Even if they don't ask you to come in to take a look at it, the reaction should be noted in their files.

Do you know if they have an allergy to eggs? Have they had this (or a milder) reaction to any other vaccines? They could be allergic/reactive to the growth medium (usually eggs), or an adjuvant, or (depending on the vaccine) the preservative. But, if it is an allergy, it really needs to be documented in their histories, and you should mention it any time they get any vaccination - not just mention, but briefly discuss.

I am definitely pro-vaccine; I support the idea of vaccination for the health of individuals and the population. (Vaccine schedules, and the number of vaccines is a different question. ;) ) But even I would consider this a reason to *not* do the flu vaccination for at least a number of years in the future (if not forever), and to ask questions about any other vaccines.

chiroptera Apprentice

Thank you so much for your feedback! Every year I call the doctors and since their bday is in November and often their thighs are still a mess and I just hear "oh, just give them some motrin and put some ice on it." I feel better knowing that my family and I are not the only ones thinking their may be another issue involved. I had one of my twins tested for intolerances as part of the gluten free issue and she came back also egg and casein intolerant. When I stopped those foods all her migraines, GERD and digestive issues went away (along with going gluten free).

tarnalberry Community Regular
Thank you so much for your feedback! Every year I call the doctors and since their bday is in November and often their thighs are still a mess and I just hear "oh, just give them some motrin and put some ice on it."

I would suggest telling the dr's - after you do these things - what symptoms remain, and if it's "they're worse", say that. Bring them in for a visual inspection if you feel your doctors don't "get it". And, consider switching doctors if you think they're really just dismissing you. There may be a case of misunderstanding, no matter how hard you are trying to convey what's going on.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,929
    • Most Online (within 30 mins)
      7,748

    Mike Rowicki
    Newest Member
    Mike Rowicki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.