Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Latent Celiac Disease

Teddy's mom

Recommended Posts

Teddy's mom Rookie
Teddy's mom
Posted

Hi Everybody! I just had a intestinal biopsy which showed "latent celiac disease". The doctor ordered more blood work to test for the genetic marker and nutritional deficiences before she recommends a gluten free diet. I'm confused. If the genetic test is positive and there are no nutritional deficiences, should i go gluten free anyway? I guess gluten can't be good for you if you have the potential to become celiac. The doc said the villi looked flattened when examined, but the biopsy said latent. Has anyone else had this diagnosis?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

[b]Latent celiac disease refers specifically to patients who have abnormal antibody blood tests for celiac disease but who have normal small intestines and no signs or symptoms of celiac disease.

Did you have the blood panel for Celiac?

Teddy's mom Rookie
Teddy's mom
Posted
  • Author
[b]Latent celiac disease refers specifically to patients who have abnormal antibody blood tests for celiac disease but who have normal small intestines and no signs or symptoms of celiac disease.

Did you have the blood panel for Celiac?

Hi Lisa, I did have an antitTG test i think that was borderline, 14.3, near the cut off of 15 that is why the doctor did the biopsy. Does this mean i don't have celiac?

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi Lisa, I did have an antitTG test i think that was borderline, 14.3, near the cut off of 15 that is why the doctor did the biopsy. Does this mean i don't have celiac?

No it doesn't. I am wondering why they are saying latent, perhaps because the villi are not totally destroyed.....yet. I would advise doing the diet to prevent any more damage. If you wanted after six months or so on the diet you could ask to be reendoed and see if the damage that they found had resolved. That would be a clear indication that the diet was needed.

Teddy's mom Rookie
Teddy's mom
Posted
  • Author
No it doesn't. I am wondering why they are saying latent, perhaps because the villi are not totally destroyed.....yet. I would advise doing the diet to prevent any more damage. If you wanted after six months or so on the diet you could ask to be reendoed and see if the damage that they found had resolved. That would be a clear indication that the diet was needed.

Thanks for your reply. Boy you went through a lot to be properly diagnosed! I guess it is difficult. Good luck to you and your family. I'll keep you posted on my journey.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,062
    • Most Online (within 30 mins)
      7,748
    John Acheson
    Newest Member
    John Acheson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.