Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depression, Bipolar And All Other Celiac Crazies


JamieSims

Recommended Posts

JamieSims Newbie

First of all


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Don't have much time to deal with this today but yes a resounding yes!! One of the first places I noticed my "allergies" affecting me was my brain. Its also one of the first to go if I am at all off diet. EAting a basic whole foods diet without gluten or sugar seems essential for me. A paleo diet was very helpful with the addition of home made 24 hour yogurt using greek yogurt as a base. Can finally tolerate whole brown rice, but not tons of it due to candida overgrowth possibilties. Find olive leaf extract by the way a godsend--for getting rid of fibromyalgia/arthritic like symptoms especially with dandelion root. No alcohol extracts however. Boiling them up myself is best. I started a thread that might be useful to you called "Back to Basics". Most find eating more vegetables really helps, including the brain, emotions and the joints...

Bea

cat3883 Explorer

I was on anti-depressants and anti-anxiety meds for years and years. My celiac disease affected my brain more than any other part of my body. I had severe migraines (hospitalized because of them), constant brain fog, and of course the depression and anxiety I was being treated for. Let me just say this, after 13 months of a gluten free diet I am no longer on my meds, have no headaches whatsoever, and no brain fog. By the way, I am 50 years young. Make sure your meds are gluten free. Have your pharmacist contact the manufacturers. Don't forget to check your toothpaste, shampoo, anything that can touch your lips. Best of luck to you, but please please please be careful about stopping your meds. This can wreak havoc on your brain. Take care of yourself.

summerteeth Enthusiast

I just want to preface that this is my personal story and BY NO MEANS recommendation for others:

I was diagnosed with ADD at 8 years old. I was put on Concerta and took it religiously until the day I turned 18. I knew I did not have ADD, something else was wrong.

I was diagnosed bipolar just over two years ago. I was going through horrible things in my personal life that I will not go into on such a public forum. So August 2007, I lost about 20 pounds, fast. And I did not have much weight to lose. I dropped down to about 104 lbs (I am 5'6). I began "acting out" (doing things that I would not normally do, ie, heavy drinking, piercings, tattoos....). My mom and then-boyfriend (now fiance) made me see a doctor. I was an out patient and a mental facility for about two weeks, and was diagnosed bipolar. I was put on a slew of medications: lithium, depakote, xanax, seroquel, flexeril, etc. This made things WAY worse. I ballooned, weight wise. I think I gained 50 pounds. And it seemed like it was overnight. People at work would ask if I was pregnant, and in my fragile state, this made things worse. I was getting deeper and deeper into boughts of depression and anxiety.

May 2008 I decided to stop taking all of my medications, cold turkey. I stopped going to therapy. This was about two weeks before my 21st birthday. By June 2008, I felt two hundred times better (because I was no longer under a stupor from medication). The medicine made things drastically worse, but I was still getting the mild panic attacks and mild depression, similar to what I had before I was heavily medicated. I am not bipolar. I never was. I went to an AMAZING doctor, who was recommended by my mom, and she diagnosed me with celiac disease. I went gluten free November 2008, and now, the only times I get anxious/depressed is when I get glutened. I feel SO much better. One of the most detrimental effects of glutenings, to me, is extreme frustration/anxiety. I will be in a public place and, all of a sudden, feel a wave of panic (only after being glutened).

That being said, I am grateful for the therapist I saw throughout all of this. She helped me so much sort out the catalysts in my personal life.

Unfortunately, I too quickly got to the point that I would no longer listen to doctors. Medication was just pushed on me. And yes, I did need something to deal with the problems, at the time. But in retrospect, my problems had more to do with my diet than with my mental state.

That is just my two cents, though. And PLEASE PLEASE PLEASE do not pull stupid crap like I did: talk to your doctor before doing anything radical.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    2. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,260
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.