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Depression, Bipolar And All Other Celiac Crazies


JamieSims

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JamieSims Newbie

First of all


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YoloGx Rookie

Don't have much time to deal with this today but yes a resounding yes!! One of the first places I noticed my "allergies" affecting me was my brain. Its also one of the first to go if I am at all off diet. EAting a basic whole foods diet without gluten or sugar seems essential for me. A paleo diet was very helpful with the addition of home made 24 hour yogurt using greek yogurt as a base. Can finally tolerate whole brown rice, but not tons of it due to candida overgrowth possibilties. Find olive leaf extract by the way a godsend--for getting rid of fibromyalgia/arthritic like symptoms especially with dandelion root. No alcohol extracts however. Boiling them up myself is best. I started a thread that might be useful to you called "Back to Basics". Most find eating more vegetables really helps, including the brain, emotions and the joints...

Bea

cat3883 Explorer

I was on anti-depressants and anti-anxiety meds for years and years. My celiac disease affected my brain more than any other part of my body. I had severe migraines (hospitalized because of them), constant brain fog, and of course the depression and anxiety I was being treated for. Let me just say this, after 13 months of a gluten free diet I am no longer on my meds, have no headaches whatsoever, and no brain fog. By the way, I am 50 years young. Make sure your meds are gluten free. Have your pharmacist contact the manufacturers. Don't forget to check your toothpaste, shampoo, anything that can touch your lips. Best of luck to you, but please please please be careful about stopping your meds. This can wreak havoc on your brain. Take care of yourself.

summerteeth Enthusiast

I just want to preface that this is my personal story and BY NO MEANS recommendation for others:

I was diagnosed with ADD at 8 years old. I was put on Concerta and took it religiously until the day I turned 18. I knew I did not have ADD, something else was wrong.

I was diagnosed bipolar just over two years ago. I was going through horrible things in my personal life that I will not go into on such a public forum. So August 2007, I lost about 20 pounds, fast. And I did not have much weight to lose. I dropped down to about 104 lbs (I am 5'6). I began "acting out" (doing things that I would not normally do, ie, heavy drinking, piercings, tattoos....). My mom and then-boyfriend (now fiance) made me see a doctor. I was an out patient and a mental facility for about two weeks, and was diagnosed bipolar. I was put on a slew of medications: lithium, depakote, xanax, seroquel, flexeril, etc. This made things WAY worse. I ballooned, weight wise. I think I gained 50 pounds. And it seemed like it was overnight. People at work would ask if I was pregnant, and in my fragile state, this made things worse. I was getting deeper and deeper into boughts of depression and anxiety.

May 2008 I decided to stop taking all of my medications, cold turkey. I stopped going to therapy. This was about two weeks before my 21st birthday. By June 2008, I felt two hundred times better (because I was no longer under a stupor from medication). The medicine made things drastically worse, but I was still getting the mild panic attacks and mild depression, similar to what I had before I was heavily medicated. I am not bipolar. I never was. I went to an AMAZING doctor, who was recommended by my mom, and she diagnosed me with celiac disease. I went gluten free November 2008, and now, the only times I get anxious/depressed is when I get glutened. I feel SO much better. One of the most detrimental effects of glutenings, to me, is extreme frustration/anxiety. I will be in a public place and, all of a sudden, feel a wave of panic (only after being glutened).

That being said, I am grateful for the therapist I saw throughout all of this. She helped me so much sort out the catalysts in my personal life.

Unfortunately, I too quickly got to the point that I would no longer listen to doctors. Medication was just pushed on me. And yes, I did need something to deal with the problems, at the time. But in retrospect, my problems had more to do with my diet than with my mental state.

That is just my two cents, though. And PLEASE PLEASE PLEASE do not pull stupid crap like I did: talk to your doctor before doing anything radical.

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    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
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