Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test And Gastroenterologist


CGally81

Recommended Posts

CGally81 Enthusiast

I went to a gastroenterologist, but I admit: I freaked out at the idea of having to eat gluten in order for any of the tests to be accurate. I asked what I could do instead of eating that poison for weeks before taking an endoscopt, and he suggested a I take a blood test instead.

I did, and he called me to say that the results came back normal, except for one thing that was slightly off, and my DNA test results are not back yet. I asked if the reason I didn't have any anti-gluten antibodies (because I tested for that), was because I'd been gluten-free so long. He said that was a possibility, and said that after my DNA results get back, he'll want to talk to me again and maybe recommend me to an immunologist, to get more conclusive results.

I really don't like the fact that you basically have to be eating gluten and letting it damage you in order for test results to be really accurate. My "hungry all the time" feeling is slowly starting to wane, and is getting better week by week, and could be gone within a month. No way do I want it to spike up again because I had to eat gluten to make my test results accurate!

I don't know... I'm going good at staying off gluten and repairing the damage done to my body, taking digestive enzymes before any remotely questionable meal or any big meal, and taking Pioneer's gluten-free vitamin/nutrient/mineral mix every day, which people have claimed helps with the hunger (it may or may not be making a difference, but my hunger is definitely going away faster). I definitely know I have celiac, or if not, then something celiac-esque. Gluten is the enemy, as I know from the times I've eaten it by accident. I'd just hate for every test to show up inconclusive, or worse, negative. Once a cure/treatment is available, not being properly diagnosed would make it difficult to convince my insurance to pay for it, even if I could convince my doctor (who believes me) to write me a prescription for it.

Well, waiting on the DNA test results and I guess I'll learn how immunologists work.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,066
    • Most Online (within 30 mins)
      7,748

    MamaMercedes
    Newest Member
    MamaMercedes
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.