Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Self Diagnosed, I Think.

bellis

Recommended Posts

bellis Rookie
bellis
Posted

My wife, 2 kids and i all got swine flu at the end of august. i was the only 1 to get diarrea from it. It didn't go away. I had this before, where i got ill and i had "The squirts" for 2 weeks in the past, so i didn't think much of it. i noticed my weight decreasing and i was constantly bloated and very gassy till early Oct. it would come and go for many weeks. Then i had some spagetti and meatballs and half a loaf of french bread. Woke up that night at 4am with intense cramps and diarrea(Iblamed it on the garlic!). went to work and felt better by noon, so i ate pizza! by 3pm on my way home i was covered in hives and had diarrea. I took benadryll and pill called allerplex that is supposedly good for your intestines when having a reaction to food. oops. It is loaded with Gluten. THe next three days were sleepless, foodless nights and days with intense cramps and bloating. The second day my wife read about a disease called Celiac. an answer!

I am a 35 year old Irish, italian native american. My mother had Thyroid Cancer, my Brother is anemic, and he and my sister both have acid reflux and have both been to the doctors numerous times with no resolve to their digestive problems. My sister has gone gluten free with me and has had no more stomach aches.

i have been gluten free for 5 weeks now, and with no cramps or bloating (with the exception of dairy which i have cut out now). my weight has sustained and i am eating well. My stomach seems slightly sensitive to acidic foods. No coffee, catsup, or dairy and i seem fine.

i refuse to eat gluten again. ever. My energy levels are up higher than i can remember and no longer run to the bathroom after meals. I don't think i would eat gluten agin even if i was proven not to be Celiac.

Any feed back would be appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nu-to-no-glu Apprentice
nu-to-no-glu
Posted

Hooray :) Isn't it awesome to finally put the pieces together? AND...you have your sister for continued support! I'm glad you are feeling better...loads of people here are also self-diagnosed and never going back. This is an excellent place for resources, and...I'd say that since you are so much improved from the diet, you are on the right track. I'm almost to my 3 month mark gluten-free, and I'm never going back, either!

mushroom Proficient
mushroom
Posted

Congratulations on completing the jigsaw puzzle :D Yes, many of us have to put the pieces together ourselves, and many do not believe we could have done it, after all, that is for the experts. But when the experts fail we do it ourselves, and once the puzzle is complete we don't break it apart again. How wonderful to have a sister to give you support and guidance; she will be an indispensable resource. Most of us are intolerant of dairy to start with, but down the road you may be able to add it back once you've healed. Your gut will still be sensitive for some time while it is healing, but eventually (from the sound of it) you will be good as gold :) If you run into any roadblocks or have any questions, don't hesitate to post a thread.

bellis Rookie
bellis
Posted
  • Author
Congratulations on completing the jigsaw puzzle :D Yes, many of us have to put the pieces together ourselves, and many do not believe we could have done it, after all, that is for the experts. But when the experts fail we do it ourselves, and once the puzzle is complete we don't break it apart again. How wonderful to have a sister to give you support and guidance; she will be an indispensable resource. Most of us are intolerant of dairy to start with, but down the road you may be able to add it back once you've healed. Your gut will still be sensitive for some time while it is healing, but eventually (from the sound of it) you will be good as gold :) If you run into any roadblocks or have any questions, don't hesitate to post a thread.

Thank you! My wife is possibly Celiac as well, runs in her family! We are all Going gluten free. My children (4 and 5) both display symptoms. My son after 2 weeks gluten free is no longer a crabby zombie after kindergarten all day! Now just to get through our first gluten-free Thanksgiving! i just found out we have a gluten-free bakery 3 miles from our home -PECAN PIE!!!

ang1e0251 Contributor
ang1e0251
Posted

You are so lucky that your sister is so supportive. Mine just gives me that glazed look.

and, seriously, pecan pie from a bakery? That's heaven!

ksymonds84 Enthusiast
ksymonds84
Posted

So awesome that you have the families support, that will be such a huge blessing for you all! Happy Healing!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    3. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues. The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves...
    4. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem. Just a few other thoughts. I had debilitating anxiety prior to my diagnosis. I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice: for depression, The Depression...
    5. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,902
    • Most Online (within 30 mins)
      7,748
    WOLINM
    Newest Member
    WOLINM
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.