Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Adverse Effects To Not Eating Wheat?


coriforia

Recommended Posts

coriforia Rookie

I've recently discovered I am gluten-intolerant, I have always struggled with allergies and anxiety and heard about the elimination diet and sure enough, I took out gluten and my allergies and anxiety are almost entirely gone. However, I am looking online to see if there are any adverse effects to taking out gluten (mainly wheat I guess)? Perhaps higher chance of a certain vitamin deficiency? Anyone know?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Most of the vitamins that are in wheat products are added during processing. It really doesn't have a lot nutrition wise to begin with. We do because of celiac have problems with vitamin levels before we are completely healed though. Many of us do supplement particularly the B's, calcium, magnesium and D. You could ask your doctor to do a panel to check your levels and to check for anemia if you haven't already.

homemaker Enthusiast

Thanks for posting this topic...I have wondered the same thing....It is a comfort to now that the Gluten Free diet is a healthy one!

I am between doctors right now and have not been tested for vitamin or mineral deficiencies as of yet...

But I intend on checking out my levels soon!

earlysu Newbie

I just had my first followup after finding out I have celiac d. four months ago. All my "levels" were greatly improved. I take Vit D, Magnesium/Zinc, Calcium and a multi vitamin (oh, and Omega 3). I feel much healthier and going gluten free changed my life (after six months of chronic diarreha). However, I've been having frequent anxiety lately, including racing heart beats. I've determined those episodes are probably not related to celiac disease, but something entirely different. I think sometimes when we have a new diagnosis, we try to blame everything on our new 'condition'. However, I am wondering if anyone has experienced an increase in anxiety or panic attacks? Mine come out of nowhere when I'm feeling just fine and I'd love to have something to blame it on.

homemaker Enthusiast
I just had my first followup after finding out I have celiac d. four months ago. All my "levels" were greatly improved. I take Vit D, Magnesium/Zinc, Calcium and a multi vitamin (oh, and Omega 3). I feel much healthier and going gluten free changed my life (after six months of chronic diarreha). However, I've been having frequent anxiety lately, including racing heart beats. I've determined those episodes are probably not related to celiac disease, but something entirely different. I think sometimes when we have a new diagnosis, we try to blame everything on our new 'condition'. However, I am wondering if anyone has experienced an increase in anxiety or panic attacks? Mine come out of nowhere when I'm feeling just fine and I'd love to have something to blame it on.

How long have you been gluten free? 4 months? I know that during the first few weeks of going gluten free, I also suffered from anxiety and irregular heartbeats etc... but I think that was due to "Gluten Withdrawal" more than anything else...I felt like I was in "detox"

you might look up gluten withdrawl....

Raven's Mum Newbie

Interesting. Raven was actually having a couple of episodes that seemed ''panic attack'' like to me. She's been gluten free for three months now. I never considered it might be a gulten withdrawl. She's on so many meds, that's usually the first place I look. lol

one more mile Contributor

I stopped eating gluten a year and a half ago. Other then withdraw the only problem that I have had is that my pants now fall off. Seems I have gone from 187 pounds to 163 ( not dieting, 5 "2' tall.)

When eating gluten I was not absorbing nutrition right and always felt like I was starving. I do eat gluten free oats now but did not add that till a year of no gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice

The only adverse effects I saw were having to buy new clothes from losing 170lbs and I really hate shopping. I was an overweight celiac.

nasalady Contributor
I've recently discovered I am gluten-intolerant, I have always struggled with allergies and anxiety and heard about the elimination diet and sure enough, I took out gluten and my allergies and anxiety are almost entirely gone. However, I am looking online to see if there are any adverse effects to taking out gluten (mainly wheat I guess)? Perhaps higher chance of a certain vitamin deficiency? Anyone know?

I've been gluten free for a little over a year. At first I was using the standard replacements for wheat: rice flour, corn flour, sorghum flour, etc. But these are all grains too....and it turns out that many people on this board (including me) feel better completely grain free.

You might be interested in trying almond flour, which is MUCH more nutritious than rice or sorghum or whatever. I've recently been baking with almond flour and coconut flour (grain free) because I discovered a couple of websites with great recipes and nutrition info:

Open Original Shared Link

Open Original Shared Link

If you decide that you're interested in learning more about the grain-free lifestyle, there's also the Specific Carbohydrate Diet thread on this board (which is a monstrous 160 pages long!!):

https://www.celiac.com/gluten-free/index.php?showtopic=62006

Good luck!

JoAnn

coriforia Rookie
I've been gluten free for a little over a year. At first I was using the standard replacements for wheat: rice flour, corn flour, sorghum flour, etc. But these are all grains too....and it turns out that many people on this board (including me) feel better completely grain free.

You might be interested in trying almond flour, which is MUCH more nutritious than rice or sorghum or whatever. I've recently been baking with almond flour and coconut flour (grain free) because I discovered a couple of websites with great recipes and nutrition info:

Open Original Shared Link

Open Original Shared Link

If you decide that you're interested in learning more about the grain-free lifestyle, there's also the Specific Carbohydrate Diet thread on this board (which is a monstrous 160 pages long!!):

https://www.celiac.com/gluten-free/index.php?showtopic=62006

Good luck!

JoAnn

Unfortunately I am allergic to nuts, including almonds so almond flour is out. I did notice a post on the specific carbohydrate diet and have requested the book at the library near me. I hope to get it soon! I also tested positive for an allergen to milk and have been trying to cut that out, it really doesn't leave much to eat if I cut out grains too!

tarnalberry Community Regular

Since much of our folic acid comes from added supplementation to breads, prepared cereals, and pasta, there are studies that show some celiacs who strictly follow the gluten-free diet can be deficient in folic acid (and sometimes iron). Of course, a well rounded, healthy diet can fix that. (Folic acid is found in large quantities in leafy green vegetables, and iron in meats, vegetables, and our old standby - cast iron pans.)

AndrewNYC Explorer

Are we supposed to eat cast iron pans? How do you prepare yours?

Since much of our folic acid comes from added supplementation to breads, prepared cereals, and pasta, there are studies that show some celiacs who strictly follow the gluten-free diet can be deficient in folic acid (and sometimes iron). Of course, a well rounded, healthy diet can fix that. (Folic acid is found in large quantities in leafy green vegetables, and iron in meats, vegetables, and our old standby - cast iron pans.)
tarnalberry Community Regular
Are we supposed to eat cast iron pans? How do you prepare yours?

Lol - cooking in cast iron pans transfers some of the iron to your food. Cooking acidic foods (like tomatoes) is particularly effective at this.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    3. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    5. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.