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New & Struggling.... Celiac?


Guest Pcphipps

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Guest Pcphipps

I have been struggling with GI symptoms and other symptoms for over 15 years. I have been diagnosed with the following.... Yeah - these ALL apply.

Fibromyalgia - Hashimotos - Major Depression - Brain Lesions (showed up 2 yrs ago) - Asthma - IBS (severe - had adenoma polups in '00) - Chronic Migraines - Hietal Herna / GERD - Insomnia - PTSD (domestic violence) - Carpal Tunnel - Cervical Disc Disease and others... yes there are more!

I am 39 and have been on medication for ALL of the above for years. I applied for SSI-DI and was turned down. I went to a pain clinic and the Dr. told me he thought I had MS or Celiac. I explained that I had blood test for celiac (10 yrs ago) and spinal tap for MS. He stated that bloodwork very rarely picks up on Celiac IF it is even done correctly ?????

I am going back for bloodwork again - and allergy testing - which has shown yeast anitbodies (that is the only one they test for at the Fibro Clinic)..... Anyone have an opionon on my medical issues?

I dont want to be sick. I have 5 children, and right now no income. I am thinkging of trying for SSI again. ANY HELP NEEDED AND APPRECIATED!

Recommended test? Opinion from Celiac Pros? Thanks!!! :(


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Wolicki Enthusiast

Your symptoms could be Celiac. At this point, you have nothing to lose by trying the gluten-free diet to see if it helps. Give it a strict try for 3 months. If it improves your symptoms, then you have your answer. I hope you feel better soon!

mushroom Proficient

Your symptoms certainly sound like they could be attributable to celiac. If you are intending to have the blood panel run again anyway, here is what should be ordered:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

The total Serum IGA is important because if this is low it can invalidate all the other tests. If you intend having the blood work done again, don't stop eating gluten until you are tested. Do let us know the results together with the lab's reference ranges..

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      But M&M's contain milk, and would not be at all like a Tootsie Roll.
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      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
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