Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein In Butter?


kdonov2

Recommended Posts

kdonov2 Contributor

I am casein intolerant and I was told by a doctor that because their is 0 protein in butter, that it is ok to eat. I can't help feel that he is wrong, but why is he wrong? Can anybody help me out?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

There are trace amounts of casein in butter. (Remember 0g on a nutrition label doesn't mean NONE. It means less than 0.5g per serving.) That said, some people who are casein intolerant do fine with moderate amounts of butter (I seem to, and I know I'm not the only one). It depends on how sensitive you are. (I'm assuming a 'standard' casein intolerance here, not a casein-induced enteropathy, which functions like celiac disease in causing intestinal damage.)

kdonov2 Contributor

hmm. well im not quite sure what to make of it. I have not fully understood my lab results. they said that I have an autoimmune reaction to cows milk. does this mean that milk will damage my intestines like gluten does?

mysecretcurse Contributor

Well, if you are having an autoimmune reaction then yes, there is damage happening to your body somewhere. The autoimmune system attacking your own body IS the reaction. So yes. I wouldn't eat butter either. I tried and still had a reaction to it. To me, dairy is dairy.

  • 2 weeks later...
jackay Enthusiast

I, too, tested positive to casein. My doctor told me it would be fine for me to eat dairy and sour cream. I haven't been totally gluten free for long enough to take the chance. I am hoping after some healing that I can tolerate both butter and sour cream because I sure could use the calories.

woodnewt Rookie

Butter has milk solids, so YES there is caesin in it. Not much, but it's there. If you want butter without the caesin, look into "clarified butter" (also known as) Ghee.

jackay Enthusiast

I read that you can clarify butter by heating it up and removing the cloudy stuff that separates. Has anyone tried this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



amberlynn Contributor
  kdonov2 said:
I am casein intolerant and I was told by a doctor that because their is 0 protein in butter, that it is ok to eat. I can't help feel that he is wrong, but why is he wrong? Can anybody help me out?

OK - my kid is severely allergic to dairy, and there is the protein in the butter. He is NOT lactose intolerant, he is anaphylactic to any and all dairy. So, we're not new to this, lol ;)

Do not try to clarify the butter either. There is still a chance of the protein being there and making you sick.

Smart Balance Light is casein free, and Fleishman's unsalted sticks I believe are as well (they have a lot of soy, which my son cannot tolerate). We love the Smart Balance, tastes just like butter.... at least what I remember butter tasting like, lol ;).

  • 3 weeks later...
Carolynmay2010 Newbie
  On 12/1/2009 at 2:41 AM, kdonov2 said:

hmm. well im not quite sure what to make of it. I have not fully understood my lab results. they said that I have an autoimmune reaction to cows milk. does this mean that milk will damage my intestines like gluten does?

Please could you let me know how you can be tested for an autoimmune reaction to c

  • 3 months later...
deezer Apprentice
  On 1/10/2010 at 3:40 AM, Carolynmay2010 said:

Please could you let me know how you can be tested for an autoimmune reaction to c

  • 7 years later...
Oceana Rookie
  On 1/10/2010 at 3:40 AM, Carolynmay2010 said:

 

 

Please could you let me know how you can be tested for an autoimmune reaction to c

Expand Quote  

I can't see your whole comment, but am assuming you're trying to find out how to be tested for any autoimmune reactions to foods.  I recently took my son to a functional medicine doctor because he isn't gaining much weight, even though he's been gluten free for over a year. (He is diagnosed with celiac).  She tested him with a series of stool samples and blood tests, which are not offered by a regular physician, but which show a very detailed IgG Food Panel with ratings between 1-3 on how intolerant someone is, or better described, how reactive the immune system is to that food.
We went back for the results and she's referred us to a fantastic  functional medicine nutritionist who is assisting us with a food plan so that the leaky gut can heal.  There are supplements coming as well, as soon as we go for a nutritional deficiency blood panel, and also we'll be addressing histamine reactions with a holistic doctor who uses sublingual treatment that strengthens the baseline for histamine response, alleviating his allergic reactions.

Meanwhile, they have him on certain supplements that begin to heal the gut naturally, supporting his diet, and cleaning out the reactive stuff in his body.

Within a week, he's already stopped having the terrible post nasal drip he suffered from for years, and his mood has lightened substantially.  We're excited to help him thrive and heal.

Of course, with celiac he will always have to avoid gluten obviously.  However, many of the other foods that showed up on the panel will eventually be reintroduced and he'll be able to tolerate them then.

I hope this helps to hear how we're dealing with it and what measures we're taking.  Today I'm making pancakes without eggs, butter, or milk, or vanilla.  Fun fun fun.  It's not easy, but as with a gluten free diet, one gets used to it and we find a certain flow to what we eat regularly and it becomes less intense over time.  Never as easy as navigating life without such a disease, but thankfully the world is beginning to catch up and offers so much more in terms of available gluten free options and education, etc.

I love this site and am so on my knees grateful for the one place I can count on to look things up as I support my child to better health.

  • 1 year later...
MrsTopkat Newbie
  On 12/20/2009 at 2:27 AM, jackay said:

I, too, tested positive to casein. My doctor told me it would be fine for me to eat dairy and sour cream. I haven't been totally gluten free for long enough to take the chance. I am hoping after some healing that I can tolerate both butter and sour cream because I sure could use the calories.

Expand Quote  

  I have an allergy to casein.  At first it started as stomach issues, then after a few years I started getting a sore throat. Then suddenly I had an anaphylactic response.  While my allergist said sometimes it may not bother me.  It’s like playing Russian roulette. My youngest also has the allergy. While so far he’s only gotten an upset stomach. He carries an Epi-pen too & allergy pills in my wallet.  Problem is casein is in everything, many breads, crackers and most processed foods, so best to carry an Epi when eating out.  I was recently at a chain restaurant and said no butter or margarine  on my steak. The manager said it was ok because it said non dairy. I took a bite and got a reaction. But non dairy doesn’t always mean it’s casein free. The waitress actually argued with me, until i asked for the label & I pointed out casein on it.    

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Beagirl replied to Beagirl's topic in Coping with Celiac Disease
      4

      New to this diagnosis

    2. - Scott Adams replied to HeloIP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      EGD with flatten mucosa

    3. - Scott Adams replied to Joel K's topic in Board/Forum Technical Help
      1

      Forum Rules

    4. - DanteZaffar posted a topic in Related Issues & Disorders
      0

      Young celiac person looking for advice

    5. - DanteZaffar replied to MelissaClinPsyD's topic in Coping with Celiac Disease
      5

      Refractory Coeliac Disease research to reduce anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,493
    • Most Online (within 30 mins)
      7,748

    Miela
    Newest Member
    Miela
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beagirl
      I thank all who have replied to my initial comment. After letting it sink in for a few days and since eliminating gluten I have to say I do feel some better so all is not lost. I have investigated and there are lots of gluten free choices I can make without giving up really anything. At some point I will attempt to make my own gluten free bread when I have nothing else to do and see how that works. I got to thinking even though annoying it's not the end of the world, this problem is manageable, and it can be a learning curve for sure. Maybe this is just another part of the aging process so I better get used to it. Thank you all again. 
    • Scott Adams
      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      if it is an event, you would need to post that in our calendar.
    • DanteZaffar
      Hello, I’m only 20 and recently got diagnosed with celiac disease. I’ve been gluten free for around 2-3 months now but still feel miserable with bouts of gi symptoms that can come and go. I’m not sure what I’m doing wrong since I’ve cut back on a lot of food and eat more Whole Foods alongside using my own plates and such to  avoid possible sites of cross continuation. Recently my gi symptoms seemed to have gotten better but now I’m having a tension headache and some bouts of anxiety which were characteristic of my state when I first started out in the gluten free diet. Am I doing something wrong for these symptoms to come and go randomly??? Or is this normal for the healing process...
    • DanteZaffar
      Does this require proof of having refractory celiac? I’ve been gluten free for a couple months but still feel miserable but I’m not sure if its refractory celiac disease.
×
×
  • Create New...