Aha Test Results Back!

[dbuhl79]

So after fighting with my doctors office, I finally got copies of my test results back. Good news is it does look legitimate I don't have Celiac Disease based on these findings. Maybe just a gluten intolerance? I don't know! I've been having a heck of a week digestively as it is, thinking I've snuck something in my diet my body isn't loving.. or maybe its just IBS, but I do feel frustrated.. Any thoughts.. .

IGA 150.00 mg/dl (units)

Transglutam IGA 5 AU

Sed Rate RBC 3 mm/h

C-Reactivev Prot < 0.1 mg/dl

Hmm.. what can I eat, is now what I wonder..

Thanks for your thoughts!

[Lesliean]

I wouldn't consider this a complete blood panel. I wouldn't rule out Celiacs based on this panel. Did the gluten free diet help you? What are your symptoms? See:

https://www.celiac.com/st_prod.html?p_prodi...-44105346207.ce

I'll wait for your post.

Leslie

[CMWeaver]

When we had my girls tested, they did it in two rounds. The first was the testing that was ordered for you. Their ped. had no idea what could be the problem. The only thing that came up positive at first for them was IgG which I didn't see.

The second round run by a GI was

Anti-tissue Transglutaminase Antibody (tTG),

Anti-Endomysial Antibodies (EMA), IgA:

Anti-Gliadin Antibodies (AGA), IgG

Anti-Reticulin Antibodies (ARA)

These came up positive. Initially, they thought they had a what "allergy". The second round of lab tests (which were positive) and a biopsy confirmed the celiac.

[dbuhl79]

Yes this was all I was tested for. I went off gluten for about a week or so approximately before visiting my GI. Suddenly allmy digestive issues halted, and were gone! (Thankfully) Unfortunately, I realized that if I was to talk my GI into testing me for Celiac, I would hav eto go back on gluten. I did for about a week before they did the blood test. (Which could be the negative results).

I was informed befor eleaving the doctors office that I need not worry and call them for my results, as they would be on top of this an eagerly contacting me. (HA!) I had to call, and call, and finally got a hold of a nurse who informed me that they were negative. That was it, no follow-up appt. to see why i was loosing weight, having horrible abdominal pain and diarrhea, mad dashes to the bathroom and literally shaking out of panic of not making it! They half-hearteldy mentioned IBS when they were seeing me initally as a possible cause, that and UC, and Chrons. Needless to say I went back to gluten-free diet as my symptoms passed.

It is only in this few weeks that I've had a gluten accident. I went back to my strict gluten-free diet and the symptoms subsided slightly, flaired up viciously last week and have had abomdinal pain all through the week. Even some what heartburn feelings too. so I am now questinoing if it is a gluten intolerance or just plain IBS brought on by stress. (a family member recently diagnosed with cancer).

I am debating going back to the GI as anxiety is taking over all my outings again, in fear I could have a nother "upset" and urgently need a bathroom. I mean, how frustrating is it to go somewhere and be counting the bathrooms along the way! I know you all can relate.. but I am so lost as to wha tI should or should not eat, if I have IBS, celiac disease, or goodness knows what.. I suppose its time to swallow my pride and see the GI again. Ahh this is what I get for being a stubborn woman!

Thanks for your replies and your support. If you think of any other possibilities that'd be great, or any suggestions on starting perhaps an elimination diet!

[gf4life]

Hi Dana,

IGA 150.00 mg/dl (units) ~ This is your total IgA. Adults usually have 90-450mg/dl, so you are fine with this. If you were deficient it would alter how they read your other Celiac tests.

Transglutam IGA 5 AU ~ This is the most "specific" test for celiac disease. That means if you are positive, then you have celiac disease, but if you are negative it does NOT mean that you don't have celiac disease or will never have celiac disease. You could be one of the many people who take a long time to produce the accepted positive level of this antibody, regardless of how bad the symptoms might be.

Sed Rate RBC 3 mm/h & C-Reactivev Prot < 0.1 mg/dl ~ Both of these tests check for inflammation in the body. They don't tell you if you have celiac disease or not.

I would get the rest of the Celiac Panel done if posible, or get the gene test done if you are already gluten-free. Going back on gluten is horrible after you have been gluten-free for a while. It isn't worth it in my opinion. You seem to already know that gluten is bothering you, so stick with that. You know your body better than anyone else.

God bless,

Mariann