Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

'normal' Thyroid Levels


Brittany2

Recommended Posts

Brittany2 Apprentice

Hello I hope everyone's well and excited for Christmas!

Anyways, I have never been diagnosed with Celiac disease, but the gluten free diet has been an amazing change. Auto immune diseases do run in my family so that is why I suspected it with the symptoms I had. They've since luckily gone away, but I'm worried about my persistently low thyroid levels.

In late August I went to a dermatologist for a number of reasons, one of which was hair loss. They said it was telgium effluvium which is caused by stress, malnutrition and low thyroid. So they tested my iron and thyroid levels to find my iron was low but so too was my thyroid.

Ferritin lvls: 11

range 10-143

TSH 1.4

Range .53-4.30

T4 Free: .8

Range .9-1.4

After that I went to my personal care doctor where he tested my blood for overall nutritional levels, Free T3 and Anti endomysial AB IGA, everything was fine in the normal mid range.

Free T3 355

Range 287-455

TTG AB IGA: 8

Just this week I had the three month review that my doctor wished for, a month into being gluten free. My iron levels have luckily improved

Iron: 84

Range 27-164

Ferritin 31

Range 10-143

TSH: 1.38

Range .50-4.30

T4 Free: .6

Range .8-1.8

It worries me since they dropped from .8 in August to .6 now. My doctor assures me I'm fine since my TSH levels have not increased, but he plans on checking in three months again.

Also, before I went gluten free my body temp was usually around 95, now since I've been gluten free its been at 98. I have always had an intolerance to cold, and need for adequate sleep, as well as dry skin (hands and heels) They've improved slightly but still linger.

Any advice or opinions would be greatly appreciated, especially from those who are more knowledgeable to thyroid diseases. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mindwiped Rookie

Truthfully the numbers I've always been told to watch the closest are the TSH #'s. The 'normal' rage they have listed is outdated, the newest range says that normal should be between 0.3 and 3.0, which both of your TSH #'s were. The fact that your regular body temp went up while gluten-free is a good sign! That means that you maybe self correcting with the gluten-free diet. I found a very technical link, published by doctors, that has good info if you need to take some with you to your next appt. Open Original Shared Link

maile Newbie

"It worries me since they dropped from .8 in August to .6 now. My doctor assures me I'm fine since my TSH levels have not increased, but he plans on checking in three months again.

"

first off your doctor is wrong, TSH is simply a test for pituitary function what you need to look at are your Free t4 and Free T3 levels.

Your Free T4 is VERY low, are you on any thyroid meds at all?

your T3 is also a bit low, it should be at about 3/4 to the top of the range.

try posting your results over at lowcarbfriends dot com in the thyroid section and Pam will be able to comment (she's a thyroid advocate and knows her stuff)

Roda Rising Star
"It worries me since they dropped from .8 in August to .6 now. My doctor assures me I'm fine since my TSH levels have not increased, but he plans on checking in three months again.

"

first off your doctor is wrong, TSH is simply a test for pituitary function what you need to look at are your Free t4 and Free T3 levels.

Your Free T4 is VERY low, are you on any thyroid meds at all?

your T3 is also a bit low, it should be at about 3/4 to the top of the range.

try posting your results over at lowcarbfriends dot com in the thyroid section and Pam will be able to comment (she's a thyroid advocate and knows her stuff)

I agree with maile on this one.

Brittany2 Apprentice

Thanks, yeah I really don't trust my doctors opinion that its fine as per what my TSH levels are, I've already read a ton of things and I'm worried as to what is causing it. I've come to be really skeptical with most doctors, they do know a lot but they cant know everything. One needs to be their own advocate! Many have just pushed me under the rug because I'm a busy 19yr old college student.

I did not realize my T3 levels were lower either, huh. But no I'm not on any medication at this point, my doctor did not see the need to prescribe anything yet, I suppose he's waiting to make his call three months from now... ugh I don't want to wait that long. I'll be in touch with an endocrinologist soon so I'll see what they say and if I cant make an appointment.

What I'm really worried about is the fact that auto immune diseases run in my family it could be Hash's.

I just want all of my issues gone! They almost all are, save for some tired feelings (luckily a great portion of my energy has come back), hair loss and dry skin.

nomad4life Rookie

Hi Brittany,

Try posting your questions on Open Original Shared Link They are an incredibly knowledgeable and supportive group of people. I was diagnosed with hashi's a year ago and have found that board to be a great help.

All the best.

RollingAlong Explorer

Not an expert, still trying various meds and dosages to get my thyroid straight.

I have found some of the postings at the Heartscan blog to be helpful. As I understand it, he aims for about 1.0 TSH for his patients.

Open Original Shared Link

Your #'s look good to me; but the important thing is - how do you feel?

Congrats on getting that ferritin up!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Looking for answers Contributor

Hey there,

I'm no expert either, but I had just about the same scores you have when I was tested four months ago. I do not want to be put on medication, so I've been seeing a naturopathic doctor. He suggested I have problems with adrenal exhaustion, which can led to immune system dysfunction, low thyroid, etc. Anyways, he ran a test and it turned out that I'm in a stage 2 adrenal exhaustion, which he attributed to my nearly decade battle with gluten intolerance before I was diagnosed. He put me on his regime and I'm feeling a million times better. I will get my blood tests retested in Janaury and would be happy to share them with you, if you're interested. This would follow six months of his treatment program (which is just taking some pre-cursor hormones and a metabolic-type diet - mainly organic meats and veggies).

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.