Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ten Months Gluten Free And Still Having Slight Digestive Issues Regularly


tfrankenberger

Recommended Posts

tfrankenberger Apprentice

I am a mother of a teen with Celiac, so I thought I'd get some teen feed back on this. My 15 year old son has been gluten free for ten months and dairy and soy free for five months. He says that every night after dinner, within an hour, he still has issues. Most of the time they are minor and he doesn't even ask for pepto or anything like that. Sometimes he takes Pepto to get it to go away. Any idea why he would still be having digestion issues and only after dinner most of the time? We are very, very strictly on the diet. Our whole house is gluten free and we NEVER eat out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

Have you checked your vitamins, medicines, lotions, deodorants, toothpaste for gluten? Is there a food he has for dinner that he does not have during the rest of the day?

tfrankenberger Apprentice

We have checked all those things. This week we're going to try switching his "dinner" meal to lunch and his lunch meal to dinner time. If he still has issues only at the same time of day, we may at least be able to say it's not the food. The only thing I do differently at dinner is make things with a bit more in them such as seasoning, vegetables, etc. I've checked and double checked all seasonings we regularly use. He generally likes his meals more on the bland side, so I don't go too far with seasonings.

emcmaster Collaborator

Just a thought - when you say that he has digestion issues after dinner within an hour, I assume you mean he has to go to the bathroom? If so, could it be not that the dinner is causing a reaction but that it is stimulating him to have to go? For some people, eating makes their bowels move.

tfrankenberger Apprentice

What I mean by digestion issues is he will tell me his stomach is slightly upset and ask for Pepto or Tums. Sometimes that makes him feel better and sometimes it lingers until he goes to bed. There are nights he doesn't ask for anything, but he says he feels it most every night.

mysecretcurse Contributor

Its either 1) something he is eating or 2) everything he is eating, meaning that his body is just so broke down and damaged that digesting ANY food causes him problems.

If its the first option- have u thought about corn? I was gluten free for a long time before even considering that I had other sensetivies. I healed a lot just from being gluten free but still was having a lot of problems. I suspected dairy and soy but ended up giving up dairy, soy and corn all at once so I could test them individually for a reaction. I am still unable to tolerate all three but I find it interesting that out of all of them, CORN gives me the most violent reaction. I had no idea. It really sucks because corn is in everything. Soda, medications, candy... blah.

The only other thing I can think is maybe he is sneaking something somewhere and not telling you...?

tfrankenberger Apprentice

I try to vary all his grains and I keep a very detailed food journal. I don't give him straight corn because that's difficult to digest. When he has corn in things, like sprite or gluten-free cornbread, etc., he doesn't seem to have problems with it.

I'm positive he is not sneaking food. He is extremely strict on himself and will avoid all possibilities of contamination. He is very afraid of getting gluten accidentally. We home school, so I know everything he eats.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ahorsesoul Enthusiast

He could try a glass of oj, lemon water or a tablespoon of apple cider vinegar (not flavored but real apple cider vinegar) before eating. It may help him.

emcmaster Collaborator

I'm thinking it is a secondary intolerance of some sort. I'll be interested to see what you find when you switch his lunch and dinner foods around.

Sometimes it's a good thing to completely change your diet. We get into such a routine with what we eat.

GFinDC Veteran

You could look at the top 8 allergens lists to see if there might be something there he is reacting too.

McCormick single ingredient spices are ok, but spice blends (any brand) are possible problems.

Vitamin pills and medicines, sodas, tea, coffee, all that good stuff should be checked or eliminated by a trial abstinance.

There is most likely something sneaking in his diet daily that is affecting him.

Some of us have problems with oats also. Not Hall and Oats, but the kind you eat.

Preservatives and food colorings affect some people as well.

Then there is fructose malabsorption to consider.

Nightshades bother some people, and rice.

Just throwing out some ideas.

ang1e0251 Contributor

I have a hard time with alternate grains. I've eating a little saurkraut lately and that is helping with my digestion. If he's eating grains at dinner, that could explain it. That would be pasta, crackers, breads or anything with grain. Also some of those products have small amounts of gluten in them even though they are considerd gluten-free. You might stop anything like that for a bit and see how it works.

Chef16 Apprentice

Ask his doctor about taking digestive enzymes with his meals. I was having the same problem after being gluten free for a while, to the point where I couldn't even eat an apple without feeling sick. For some people (including me) your body is so damaged from eating gluten that is partially loses the ability to digest food properly and absorb nutrients. The digestive enzymes don't mask the symptoms, but rather help the body digest food until it can do it on its own. I noticed a difference right away and I could eat full meals without a problem. And after just a few months of thaking them with my meals I didn't need them anymore. Hope this helped!

  • 3 weeks later...
emilyailish Newbie

I'm having a similar problem although ive only been gluten free for 2 months. could anyone tell me how long it usually takes? I was told ten days

Squidge Newbie

I'm having a similar problem although ive only been gluten free for 2 months. could anyone tell me how long it usually takes? I was told ten days

Who told you that? It could take months depending on how much damage there already was. Your digestive tract can take more than ten days to heal. Furhtermore, there are other sensitivities that could be causing problems. Try eliminating milk, soy, and things that can irritate a healthy digestive tract, like corn, especially popcorn, and nuts. Start a food diary where you record everything you ate, every ingredient, and every allergy warning with dates and times. Also record how you feel, again with dates and times. Then look for patterns between feeling ill and what you ate. Eliminate possible causes and then if you feel better reintroduce what you eliminated to see if you get worse. Keep in mind that things can take some time to get where they cause problems, so look for time delayed symptoms as well. You have to figure the timing out on your own, because it can vary from person to person.

Squidge Newbie

I have a hard time with alternate grains. I've eating a little saurkraut lately and that is helping with my digestion. If he's eating grains at dinner, that could explain it. That would be pasta, crackers, breads or anything with grain. Also some of those products have small amounts of gluten in them even though they are considerd gluten-free. You might stop anything like that for a bit and see how it works.

If that's the case try mainly rice products. Alternate grains often acquire trace amounts of gluten from cross-contamination. Grains are usually processed close to where they're grown, and rice isn't grown anywhere near wheat. Wheat doesn't like quite as much wet as rice does. Also, General Mills, which includes Betty Crocker, has a rather novel, pretty much fool-proof way of dealing with cross contamination. They use a different building for all of their gluten-free products, including Rice and Corn Chex.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.