Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having A Poor Me Day


SharonF

Recommended Posts

SharonF Contributor

Yes, it's great to be feeling better and not exhausted tired all the time, but man, why me? I just want to eat a piece of pizza. Or a bagel. And not those rice flour substitutes, which are just not as good. I just want a piece of Papa Johns pizza.

Grr.

/rant


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Is it really that bad? I mean look at other things you could be suffering from. What about alot of people that don't even have food to eat? Does it really matter that we can't have this crap? We can have food that tastes just as good and won't hurt us.

For everything with gluten there is something without it too.

There are bagels, etc..that are just as good that are gluten free

Think about it ...it could be worse.

There is a lady we know who is 41 I believe and she is a cancer survivor. Well she just found out not only did it come back but it spread to her liver as well. She has 3 young kids....6, 3, and 1. Looking at those situations really hits me hard...I have no right to complain..I have been so blessed.

I hope you feel better, I know how those days are..I had a lot of them when I first was dianosed.

Wandering Hermit Contributor

Yep, Kaiti is right, in the grand scheme of things celiac is not so bad. I have a friend with Ulcerative Colitis - yeah, he can eat bread and drink beer, but he will likely have to have his colon removed someday. I'd rather have this problem.

I have bad days too, so I totally sympathize. I walked by a pizza place a few days after going gluten-free and I almost strated crying from the smell.

The way I look at it, this wole thing is just an opportunity to make myself a better, mentally tougher person. I love challenges. Bring it on.

tarnalberry Community Regular

This just means it's time to find a new "I must have some" food that is gluten-free. Think of the taste exploration this means! :-D

Emme999 Enthusiast

Sharon,

I am sorry that you are having a rough day. I've had a lot of them myself lately.

We both know that there are a lot of other people who have it a lot worse and I don't think that either of us would be likely to change positions with burn victims or cancer patients or whatever. But *right now* hurts and I think it's okay to feel that.

I wish that I could be a nearby friend and we could go out on a screaming/ranting/damn-it-all rampage, but I'm not :( So, maybe you ought to do something that an old friend and I used to do when we came to struggles:

Make the maddest face you can, and then repeat: "I HATE my stupid life! I HATE my stupid life!" - do it until it gets you silly and you realize how dumb it sounds.

I'm certain you are a very intelligent person with countless beautiful qualities. Make a list of them. Make yourself feel better. Turn on your favorite music really loud and dance and sing your guts out.

But I don't think that denying yourself a little self-pity in the short-run is such a good idea. Just try to keep it short ;)

Honor yourself.

- Michelle

thomas3000 Rookie

Hey Kaiti,

I noticed you have graves disease...What are you doing about it? Did you know that gluten sensitivity and graves share the same genetic marker??I can steer you in the right direction if i'm aloud to post a website on here...It's a company that I've been working with...have a great day..

KaitiUSA Enthusiast

Hey~

The graves disease is in beginning stages so I am not on medication or anything yet. They are just monitoring it every couple months. What annoys me about it is that every test I have had done it has got worse so I'll probably have to get on meds at some point.

I know that thyroid disorders are common among celiacs. Do you have that as well? You can email me anytime as well....and yes you can post links on here :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast
There is a lady we know who is 41 I believe and she is a cancer survivor. Well she just found out not only did it come back but it spread to her liver as well.
There are a lot of people suffering from cancer... I mean prayer lists at my church and bible studies are growing with more and more people that have cancer. It's really sad.

In my opinion, I think that we are lucky in many ways. (1) I mean this disease won't kill us as long as we stick to the diet. (2) We are forced to eat a lot of veggies and fruits and scientists are finding now that veggies + fruits like broccoli, cauliflower, cabbage, tomatoes, blueberries, and cranberries are helping to slow down, prevent, and/or stop cancer. Personally, before I got celiac, I hardley ate enough veggies and fruits, but know I have no choice! and it's only for the best. (3) we've all found a lot of nice people on this site!

I still have days where I wish that I could eat fast food but overall, I am happy with the gluten-free diet and all the yummy things we can eat.

ianm Apprentice

Yes it could be worse. All we have to do is not eat gluten and we can enjoy good health. I am more than happy to give up pizza so that I can finally feel alive. It is not a hard sacrifice to make. Eat pizza=feel like crap or Don't eat pizza=feel alive.

stef-the-kicking-cuty Enthusiast
scientists are finding now that veggies + fruits like broccoli, cauliflower, cabbage, tomatoes, blueberries, and cranberries are helping to slow down, prevent, and/or stop cancer.

Hello Carrie,

did you find that on an internet page? If yes, would you give me the name? I'm very interested in that.

Hugs, Stef

KaitiUSA Enthusiast

I have heard as well from various sources that eating proper veggies/fruits etc. can help prevent cancer.

stef-the-kicking-cuty Enthusiast

Hey Kaiti,

I heard that, too. It just sounded like if medaka ment that those fruits/vegetables are even helping more than normal fruits/vegetables.

Hugs, Stef

Carriefaith Enthusiast

Hey stef_the_kicking_cuty, I am also very interested in this research. I have read/heard that broccoli, cauliflower, cabbage, blueberries and cranberries, and tomatoes have phytochemicals that help prevent cancer. I know people that do research on blueberries and cancer. I could ask for their journal article references if you are interested.

Here are some links from the net:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

I personally think that a lot of cancer can be prevented by proper diet and exercise. There are a lot of things that can cause cancer that we cannot avoid in certain situations like second hand smoke for example. But I think that eating healthy and excerising should help reduce this risk.

I also try and buy as much orgainc food as possible and if I can't, I'll usually just wash the non-organic stuff very well. It's just that non-organic stuff may contain pesticide residues and if not washed proporly you could injest them which = bad.

Hope this helps.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,205
    • Most Online (within 30 mins)
      7,748

    Butch68
    Newest Member
    Butch68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.