Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By Synthyriod!

Tigercat17

Recommended Posts

Tigercat17 Enthusiast
Tigercat17
Posted

HI everyone,

I just wondered if anyone else felt that they been glutened by their synthyriod?

I' pretty sure my new dose of thyroid has gluten in it. I was taking the 137 synthyiod for about a year. I've only been gluten free for three & a half months. I did have my Ab, IgA antibodies tested on Nov. 20th and they were down to a 3. And they were 157 in Sept. 09.

Now I just started taking a new dose (125 synthyroid) been on it for two weeks & I feel horrible. My stomach hurts ( pains on both sides of my abdomen) , very bloated, I feel like I can't eat, anxious, tried and my acid reflux is back. It's the same symptoms I had right before I got diagnosed with celiac. So, I called my doctors & they ordered another antibodies test for yesterday Dec. 16th. This time my Ab, IgA was 67! So, I'm definitely getting glutened! I haven't done anything differently. I don't go out to eat at all & I make everything fresh. Everytime I take it I feel so bloated in the mornings.

Has anyone else have problems with the brand synthriod & felt that it had gluten in it? I called the company twice & they just give me the same answer about them not guaranteeing it's gltuen free. I'm going to call my endo tomorrow & see what else he can give me. I don't have a thyroid so my thyroid med is really important to me. I've been reading so many stories about the generic isn't that consistent. I'm not sure if it's true or not.

What are the guaranteed gluten free thyriod replacement drugs? My endo stats that none of them are guaranteed gluten free? Is that true?

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


YoloGx Rookie
YoloGx
Posted
HI everyone,

I just wondered if anyone else felt that they been glutened by their synthyriod?

I' pretty sure my new dose of thyroid has gluten in it. I was taking the 137 synthyiod for about a year. I've only been gluten free for three & a half months. I did have my Ab, IgA antibodies tested on Nov. 20th and they were down to a 3. And they were 157 in Sept. 09.

Now I just started taking a new dose (125 synthyroid) been on it for two weeks & I feel horrible. My stomach hurts ( pains on both sides of my abdomen) , very bloated, I feel like I can't eat, anxious, tried and my acid reflux is back. It's the same symptoms I had right before I got diagnosed with celiac. So, I called my doctors & they ordered another antibodies test for yesterday Dec. 16th. This time my Ab, IgA was 67! So, I'm definitely getting glutened! I haven't done anything differently. I don't go out to eat at all & I make everything fresh. Everytime I take it I feel so bloated in the mornings.

Has anyone else have problems with the brand synthriod & felt that it had gluten in it? I called the company twice & they just give me the same answer about them not guaranteeing it's gltuen free. I'm going to call my endo tomorrow & see what else he can give me. I don't have a thyroid so my thyroid med is really important to me. I've been reading so many stories about the generic isn't that consistent. I'm not sure if it's true or not.

What are the guaranteed gluten free thyriod replacement drugs? My endo stats that none of them are guaranteed gluten free? Is that true?

Thanks!

My room mate also has celiac and has to take synthroid. He gets a generic type called Levothyroxin that seems to be safe for him. the Manufacturer is "Mylan." He specifically insists that his thyroid medicine must be gluten free. I don't know if its guaranteed or not, however he is sensitive and hasn't had any problems with this as of yet.

Bea

Roda Rising Star
Roda
Posted

I take a generic for synthroid also. The generic name is levothyroxine and mine is manufactured by Mylan. I have not had any problem with this and I have been taking the same medicine from this manufacture before and after gluten free. My ttg was over 70 when diagnosed celiac and 6 months later it was down to 10. Also if anyone takes cytomel it is gluten free as is the generic for it liothyronine made by Paddock. I take the generic liothyronine too.

MaryJones2 Enthusiast
MaryJones2
Posted

Per the FDA website the starch is corn so it should be gluten-free. A lot of people are sensitive to the various dyes and different strengths often have different additives.

Open Original Shared Link

I don't know off the top of my head of a thyroid medication that is known not to be gluten-free.

Mtndog Collaborator
Mtndog
Posted

I would call the drug company first.

I don't know of any thyroid meds that contain gluten either (I took Armour and now a compounded version). Did you change anything else at all? Think hair and body products (shampoo, moisturizer, lipstick). Even if you bought the same products you always use, did you read the label? I get lazy and forget that shampoo ingredients can change at anytime and have been glutened by this more than once.

Any changes in routine? Could someone have accidentally used your butter, mayo, pb and forgot t tell you? I know it's frustrating- there's so many possibilities.

Tigercat17 Enthusiast
Tigercat17
Posted
  • Author

Thanks everyone!

My doctor did change my medicine yesterday to Levoxyl ( the brand name). It's made my King Pharmaceuticals. I called the King company yesterday & they told me it's gluten free & they clean their lines all the time. My doctor recommended this to me first & I though it sounded pretty safe. After he seen my Ab IgA levels raised from 3 to 67 in three weeks, he thought it was best to take me off the synthriod. I just started taking it yesterday & I already feel a little better. The pains I've been having in my abdominal area have lessened & I feel like I can eat a little more. I lost 4 pounds in two weeks after taking the syntryiod 125. I haven't done anything differently. I don't eat out & I have a gluten free kitchen. All my hair & beauty products are gluten free. The same day I started taking the new dose of synthriod I felt serve pains later on that evening. Of course I checked everything I ate for that day & everything was gluten free., but I never thought it was the synthroid until after two weeks of just feeling worse & worse. I was having a hard time eating (feeling very full) bloated, anxious, had trouble sleeping & the stomach pains were just constant. I know this was a glutening. And my antibodies raised in three weeks from a 3 to 67!

I know this sounds crazy, but there must have been a way it got contaminated or Abbott is not carefully monitoring their ingredient suppliers. I called them again & they told me the "synthriod is not marketed as gluten free, but they ask all of their suppliers if their product is has gluten in it." This statement doesn't sound very promising. I won't be trusting the Abbott company anymore & other people who are on the brand synthriod should be careful. I had no problems with the 137, but as soon as I switched to the 125 I felt horrible. They also told me the two ingredients in the 125 that are not in the 137 are: FD & C Red 40 and FD & C Yellow #6. I really don't think it was the color ingredients, but I'll keep it in mind & see if I have similar reactions when I digest these ingredients. I was losing weight again & all my symptoms came back from when I was first diagnosed, so I really feel there was a trace amount of gluten in them. I think I might be one of the sensitive ones. I can't drink the Almond Dream from the Dream company either. So, maybe that's why I felt such a strong reaction.

If I continue to start feeling better I'll know for sure it was the synthriod. I'll keep you all posted. Thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748
    tdouglas2901
    Newest Member
    tdouglas2901
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.