Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those Of You With A Wheat Allergy


passionfruit877

Recommended Posts

passionfruit877 Apprentice

I react to gluten or wheat, and I was starting to think that I might actually have an allergy. My doctor didn't think so, but I'm starting to doubt it. The longer I am off gluten the more severely I react to it (Ive gotten dizzy and thrown up). I usually react within 15 minutes. Can those of you who have wheat allergy tell me what your symptoms are like?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Why don't you try allergy testing and see what shows up. My son ate a frozen pizza and vomited and got tiny itchy red rash on his hand so I took him in for blood and skin allergy testing and wheat showed a reaction so we tried gluten-free and his eczema cleared up. Came back when gluten was re-introduced so he's gluten-free now. It's not clear what is going on but we know that gluten/wheat bothers him. He was recently re-tested with skin testing for food allergies and wheat was negative this time-it's been a year since the last time and since he went gluten-free. We are looking at the genes to see if that gives us any clarification. We may not get a clear cut DX but he will remain gluten-free. It is possible to have both allergy and celiac disease from what I understand. If you get severe, immediate symptoms it may be important for you to know if it is an allergy that could become anaphalactic and require you to carry an epi-pen.

passionfruit877 Apprentice

I was going to request an allergy test, I was just wondering if I am on the right track. My doctor said an allergy would have been more obvious before now. I have been on a gluten free diet for almost 3 months now with good results, but now when I accidentally get wheat my reactions are worse. I have thrown up twice and got very dizzy one time, I didn't know if gluten could cause such quick reactions or not. I also sneeze if there is something like pizza cooking, and I already have sinus allergies. I think I want to try and get an allergy test done.

missy'smom Collaborator

We've found allergy testing to be very beneficial and our new allergist is current on celiac disease and gluten issues so we've been very fortunate in finding him. You should call around and see if you can find someone like that. Ask if they do testing for food allergies and how they approach it. Our previous allergist was completely uninterested in dietary changes unless an anaphalactic allergy was diagnosed. Our current allergist is much more interested in exploring food issues and making dietary changes and does the testing differently as well-unlike our previous one, they test more cautiously-just puddle first, then prick, do some things in small numbers/groups first and then add more so that they know exactly what we react to. You might want to ask questions like that before deciding on who you will go to, and unless you insurance requires it, you don't need to go through your doctor. You can just go on your own and fill him in on the results later. I mentioned some possible allergic reaction to my doc. and he kind of avoided it too. I think generally he's a good doc. but it just isn't his area of expertise and allergies can change and symptoms can vary.

My sinuses cleared up quite a bit when I took out dairy. I was suprized as I didn't realize there was a link. Testing has revealed other strong alleries that are contributing so I'm working on addressing that and will see if that clears it up further.

Good luck to you! I hope that you'll be able to find a good health care team member and get the answers that will help you.

passionfruit877 Apprentice

Thanks! I didn't realize you didn't have to go through your doctor. Even if I don't have a wheat allergy, perhaps they know a little about gluten then.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,530
    • Most Online (within 30 mins)
      7,748

    Philippa Duvenage
    Newest Member
    Philippa Duvenage
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JD-New to Celiac
      Although diagnosed with celiac and dermatitis herpetiformis, I was curious about the celiac genetics and had that testing done on my own. Unfortunately, the lab does not explain the results and any doctor I have asked said I would need to see someone specializing in genetics. I was hoping someone out there might help me understand. Here is what came back and although I understand the HLA DQ2 and HLA DQ8, I wasn't sure what the variants mean and why they repeat twice. Someone said it was a double marker meaning both of my parents gave me copies. I also read having this combination makes my celiac potentially much worse. HLA DQ2 - Positive | HLA DQ8 - Negative HLA Variants Detected: HLA DQA1*05 and again HLA DQA1*05 HLA DQB1*0201 and again HLA DQB1*0201
    • JD-New to Celiac
      Understanding that normal is <15, I started off with 250+, then using the same lab it took two years to get to 11, the last test was 3. So, it jumped back up for some reason which is why I suspected gluten in my diet somewhere. I do not do dairy, eggs, oats, or soy. I am vegan and gluten free, and take numerous supplements with the help of this forum.
    • Scott Adams
      I just want to post this new study here--it seems that for those who don't recover on a gluten-free diet may be in this group: https://www.science.org/doi/10.1126/scitranslmed.adp6812
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      It does seem like brushing would be needed, and like anything else, a little daily exposure can lead to serious issues for celiacs.
×
×
  • Create New...