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Stupid Questions..

SabrinaLuvsGluten

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SabrinaLuvsGluten Apprentice
SabrinaLuvsGluten
Posted

Okay, stupid question #1- When you get tested for celiac via blood testing, will it also show up positive if you just have the gluten intolerance, and it hasnt escalated to celiac?

#2- Well, there WAS a question 2, but apparantly I am having a brain fart right now and cant think of what it was. Maybe I will think of it later!

Sabrina

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tarnalberry Community Regular
tarnalberry
Posted

To the best of my knowledge, there isn't a firm answer to your question. It appears that - in most cases - the antibodies are produced in the intestines. If there is no excess permiability in the intestines, then the antibodies can't get into the blood stream in order to be detected in a blood test. You may still be reacting gluten intestinally. Alternatively, it could be that you could have a moderate enough reaction that it doesn't test high enough to be positive.

pixiegirl Enthusiast
pixiegirl
Posted

My blood test were totally 100% negative for Celiac. However, I went on a gluten-free diet after the test and in 3 days felt about 85% better. I then sprung for DNA testing and found I carry the 2 main genes for Celiac. Every time I've had a gluten accident I'm sick in 20 minutes for a good 2 weeks... so you have to keep in mind that the blood test is not the gold standard.

Susan

cdford Contributor
cdford
Posted

I love your second question--welcome to my world! There is great variability in how much damage allows the blood test to come up positive. Other factors such as IGa levels impact it as well. While the gold standard is still the intestinal biopsy, many have also found that test to not clearly show how sensitive they are to gluten. Use the tests as a guide and study your body's reactions as well.

SabrinaLuvsGluten Apprentice
SabrinaLuvsGluten
Posted
  • Author

How can I get the testing done to determine if I carry the gene for celiac disease? I think Id like to do that if its not TOO expensive.

Thanks

Sabrina

mytummyhurts Contributor
mytummyhurts
Posted

https://www.celiac.com/st_prod.html?p_prodi...-30105295065.fa

You may want to read this article from celiac.com about DNA testing . :D

mommida Enthusiast
mommida
Posted

Thank you for pointing me to the dna article. I have to show it to my husband, our daughter has both genes. The pediatrician's office said it was possible to have both genes show up from "a genetic mutation". I told him it was more of a reason to get tested himself, even though I am symptomatic.

Some people don't want to get diagnosed.

Laura

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judy05 Apprentice
judy05
Posted

I have gluten intolerance, along with other food intolerances. My gene test came back negative but IGA elevated. I had no intestinal damage. If I had no damage to the intestinal tract then how could leaky gut occur? I've always been curious about how I developed the antibodies. I will bring this up when I visit my GI next month.

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