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Just Started Gluten Free Diet


Gluteman

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Gluteman Newbie

I just started a gluten, dairy, and soy free diet about a month and 3 weeks ago. I got a blood test when I was a kid so I knew what I was intolerant to. For about the last 2-3 years I wasn't following a gluten free diet and my health suffered. Since I've been on this diet though, 2-3 days after I started, I began to get heart palpitations, fatigue, brain foginess, etc. The heart palpitations are very concerning. I'm am eating a very well balanced diet too. So my question is: why after almost 2 months am I still having these simptoms? Shouldn't they be gone by know? What am I doing wrong?

Things it could be: Zirtec, Zoloft, 2 cans of diet mountain dew a day, eating too fast, too big of portions.

I anybody has any ideas please let me know.

Take care,

Gluteman


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txplowgirl Enthusiast

I just started a gluten, dairy, and soy free diet about a month and 3 weeks ago. I got a blood test when I was a kid so I knew what I was intolerant to. For about the last 2-3 years I wasn't following a gluten free diet and my health suffered. Since I've been on this diet though, 2-3 days after I started, I began to get heart palpitations, fatigue, brain foginess, etc. The heart palpitations are very concerning. I'm am eating a very well balanced diet too. So my question is: why after almost 2 months am I still having these simptoms? Shouldn't they be gone by know? What am I doing wrong?

Things it could be: Zirtec, Zoloft, 2 cans of diet mountain dew a day, eating too fast, too big of portions.

I anybody has any ideas please let me know.

Take care,

Gluteman

Welcome to the forum.

Now, first off take a deep breath and just relax. It could be a number of things. You may be going through what we call gluten withdrawal, some of us get them some don't. It will take time for some anywhere from a few days to a few months. I would suggest a food diary. Log what you eat and how you feel. I love diet mountain dew but it dosen't love me, actually through process of elimination I found out the aspertame was what was really bothering me.

Now, have you checked your meds? They can have gluten in them. Try to call and talk to the pharmacist or call the company that makes the meds and ask them. Also, if you have teflon pans with scratches that can contain gluten, need to replace them as well as your toaster and definetly all wooden utensils, cutting boards and collander. Also lotions, shampoos, and soaps. Nightshade vegetables, which are potatoes, tomatoes, eggplant, and all peppers can cause a lot of pain, fatigue and swelling. MSG will also cause some problems. Try to eliminate all of the top allergens. That is gluten, dairy, soy, nuts, etc. I am sure I am forgetting something but hopefully someone will give you more info. Hope you get to feeling better.

Wolicki Enthusiast

I just started a gluten, dairy, and soy free diet about a month and 3 weeks ago. I got a blood test when I was a kid so I knew what I was intolerant to. For about the last 2-3 years I wasn't following a gluten free diet and my health suffered. Since I've been on this diet though, 2-3 days after I started, I began to get heart palpitations, fatigue, brain foginess, etc. The heart palpitations are very concerning. I'm am eating a very well balanced diet too. So my question is: why after almost 2 months am I still having these simptoms? Shouldn't they be gone by know? What am I doing wrong?

Things it could be: Zirtec, Zoloft, 2 cans of diet mountain dew a day, eating too fast, too big of portions.

I anybody has any ideas please let me know.

Take care,

Gluteman

My guess would be some seconary food intolerance. Have you added anything new to your diet to replace the things you can no longer have? A food journal is a great idea. Start with a very limited number of foods that you know are safe,then expand from there, adding a new food no more often than 4 days. You should be able to figure it out. There's an awful lot of caffeine and bad chemicals in diet Mtn Dew. Maybe replace with water for a few days? Be prepared for caffeine withdrawal though!

RiceGuy Collaborator

My first thought is that it could be a combination of gluten withdrawal and the meds you're taking. Many have found that they needed to lower or eliminate meds once they began to follow a gluten-free diet. After all, it is often the reactions to gluten which land people at the doctors office, and walking out with a prescription so they can put up with the symptoms.

So I'd suggest talking to your doctor about lowering and hopefully getting you off those meds. It would not surprise me one bit if you eventually don't need them whatsoever.

Also, I'd ditch the soft drinks. Whether it's sugar, aspartame, or any other artificial sweetener, your body doesn't need it. Aspartame does cause the kind of problems you've mentioned.

Lastly, some nutritional supplements can go a long way towards resolving the symptoms you've mentioned. If it were me, I'd start with a strong B-complex, separate methyl B12 sublingual lozenge, vitamin D3, zinc, magnesium, potassium, and probably some omega-3s.

It may also help if you give us an idea of the foods you're eating. Numerous members here have reported the very same symptoms after going gluten-free. If it's food-related, someone will probably be able to spot the culprit(s).

Gluteman Newbie

Great advice!! You all had great ideas. I'm gonna give 'em a try.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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