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olivebee

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olivebee Newbie

This is my first time at this site and I have been reading through a lot of the forum entries. I feel like I fit into some scenarios and not others.

Since I was 14 (now 24) I have experienced several stomach cramps and bloating. Endless trips running to the bathroom. College was awful, always sharing a bathroom. The pains felt like contractions, severe stabbing pains, often leaving me in tears and embarrassed. I've have two colonoscopies before the age of 21. I was told I had diverticulosis and IBS (which is the most frustrating diagnosis). No matter what I never feel good. I am either constipated (for days sometimes) or running to the bathroom, I have itchy skin, eczema on both elbows, both shins and now both hands.

In the last two years, I have tried two detoxes, both of which got rid of my horrible Eczema (maybe DH? however not blistery)but it always came back. I eat a relatively low gluten diet but recently have not been caring much about it. My skin eczema came back (had been gone for almost a year) I am extremely fatigued to the point where I make it to work, then pass out on the couch until bed time, I get insanely bloated to the point where people will comment (I am a small female, so it is really noticeable) And in the last couple months I have started to have a stinky body odor...and...my teeth are chipping.

The first of the year I cut out gluten and caffeine. My elbows feel like they are clearing up and I do feel a bit more energy (maybe placebo?). Does this sounds like Celiac? Or anything similar? Please help! I'm really frustrated with my health, at 24 I can hardly stay awake sometimes.


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olivebee Newbie

I forgot to include a few things!

1. Acid Reflux

2. Severe Vitamin D deficiency (take supplements)

3. Got tested 4 years ago..came back negative, but the doctor kind of thought it was a joke asking to be tested so I honestly don't trust that...

Thanks!

lynnelise Apprentice

I forgot to include a few things!

1. Acid Reflux

2. Severe Vitamin D deficiency (take supplements)

3. Got tested 4 years ago..came back negative, but the doctor kind of thought it was a joke asking to be tested so I honestly don't trust that...

Thanks!

I am not diagnosed as my blood tests were negative but I have many of your symptoms. I have been on gluten-free diet since November and I really feel a difference. My acid reflux is gone. No more diarrhea. The rash on my legs disappeared. I've gotten glutened a few times by accident and each time I get the rash back so I don't think it's a coincidence or placebo effect. If I were you I would of course keep my doctors visits in case there is something else at play but otherwise stick to the gluten-free diet and see if it helps!

orchid1 Newbie

Diagnosed with celiac disease and having IBS, i happened upon several SCD sites (this one is the most informative). this was over three years ago. i read "Breaking The Vicious Cycle" and adopted their dietary recommendations. nearly all the symptons i had (and there were over a dozen-some being life threatening) are gone. the diet requires a total life style change. it is difficult to follow , but it saved my life. if interested start here Open Original Shared Link

Salax Contributor

It sounds like you might be one of us. If the gluten-free diet is working, stay off the gluten for as long as you can. If you get better and better, I would say you definitely have either a gluten intolerance and/or allergy or even celiac disease.

If a actual diag is important, you'll need to be eating gluten...if not, stay gluten free and be well! B)

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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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