Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rising Ttg Iga Levels Mean Anything

Smoly

Recommended Posts

Smoly Rookie
Smoly
Posted

I'm currently waiting to see a gastroenterologist (first appointment on March 4) but had a question about the TTG test. I was tested in June of last year because I have Type 1 diabetes and hypothyroidism so it was more of a screening process than anything else, no obvious symptoms at this time. My TTG IgA level was 0.2, reference range 0-10. I was retested in October because I had been having symptoms for almost two months that were indicative of celiac disease. My TTG IgA was 2.2 at that point, still normal according to the lab. The lab did not run any other celiac-related tests and I chose not to pursue further bloodwork since it isn't covered by OHIP in Ontario and I'm going to see a gastro anyway.

My question is, does it mean something that my levels jumped between the first and second tests? I know the numbers are still normal but I think it is odd that my antibodies would go from almost zero to 2.2 at the same time that I start getting symptoms. I'm more curious than anything else since I need to continue eating gluten anyway in case my gastro wants to do a biopsy.

Thanks for your opinions.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JennyC Enthusiast
JennyC
Posted

I would not worry about it. 2.2 is far from the upper reference limit of 10. Most doctors would not consider it significant. But there's nothing wrong with repeating the blood work periodically along with you diabetes monitoring. If your tTG continues to rise significantly then your doctor may choose to take action.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,535
    • Most Online (within 30 mins)
      7,748
    Nattific
    Newest Member
    Nattific
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Rosacea

      By Scott Adams · Posted

      Did your rosacea improve when you went gluten-free?
    • Nattific
      Not officially diagnosed but doctor doesn’t want me to do the gluten challenge, advice?

      By Nattific · Posted

      Hello, so back when I was a senior in high school (2020) I had about 8 months where I was completely unable to function, I was vomiting, lost over 20 pounds, had diarrhea and was really sick. This happened after I was hospitalized with cat scratch fever and cytomegalovirus. I have family members on both sides of my family with celiac and they told me my symptoms align really closely with what they experienced. I decided to cut out gluten and go gluten free.  It really helped, I was nearly normal again by 6 months. By the time I could finally see a doctor in person again I was already strictly gluten free for over a year. This doctor ran the blood tests, told me they were negative and that I just have a gluten intolerance. I assumed that was correct and stopped eating like I had an allergy as I assumed it was just an intolerance and that cross contamination would be fine. I would never eat gluten outright but I wasn’t careful at restaurants or even at home. Well now 5 years later and I’m back to being just as sick as I was back then (I’ve had lots of exposures that are my fault as I wasn’t taking it seriously because I didn’t think it was celiac). I was having a really severe reaction so I went to my doctor. I have a new amazing doctor who ran all my labs on Monday. My lipase is elevated, my liver enzymes are through the roof, all of my vitamins and electrolytes are low, and I’ve dropped 10 pounds since my last appointment. My doctor basically said all of this strongly points to a celiac diagnosis, but she doesn’t think it will come up on a blood test as I haven’t eaten anything with gluten directly in years. She told me she doesn’t want to do the gluten challenge (6-8 weeks of eating gluten) because of the signs that is damaging my other organs and she just put it in my chart as a severe gluten allergy. I’m just confirming this means I have celiac correct?    thank you for all your help Nate
    • Morgan Tiernan
      How to navigate living with dermatitis herpetiformis

      By Morgan Tiernan · Posted

      Hi all! Ive been away for a while navigating this new illness and also studying at university. But im back with so more updates and info, thank you all for your help and support.    Update: I suffered with an infection of my dermatitis herpetiformis a month or so ago. This resulted in a trip to a&e with an extremely swollen face, and a 2 week dose of doxycycline. Of course the infection went down but my dermatitis herpetiformis still remains to pop up every now and again. However, I’m coming up to almost a year being gluten free and I can honestly say the outbreaks are less often and more mild. But I’ve been eating extremely strict on a gluten-free diet (not much eating out and very cross contamination aware), so fingers crossed this continues.  As I am UK based, I have finally got through to dermatology and rheumatology in the NHS (no more private appointments which is great!) She was amazing and agreed on what sounds like dermatitis herpetiformis. However, she has also diagnosed me with chronic urticaria (hives) which will explain the swelling of my face, eyes, lips, and even sometimes tongue! So might be an allergy on the case, or perhaps another autoimmune condition due to the undiagnosed coeliac until this year. A skin biopsy has now been arrange for next month which is positive (there’s talks of me eating gluten for a day to activate the rash also, scary but they will have medication on site!)  Currently, I’m feeling more positive about my diagnosis and am so thankful to my hospital for the ongoing support I wasn’t able to get from my GP.  Things are looking up!
    • Morgan Tiernan
      Does anyone else have seborrheic dermatitis

      By Morgan Tiernan · Posted

      Hi there! This is something I’ve often wondered too! I’m still going through the process of getting an official dermatitis herpetiformis diagnosis, however I’ve been battling for 3 years and the dermatologists are pretty certain it’s dermatitis herpetiformis/celiac disease with it’s classic appearance and symptoms (it’s nasty stuff!) About 2 years ago before dermatitis herpetiformis was on the cards, I suffered with a terrible episode of seb dermatitis, it was absolutely everywhere and was probs left undiagnosed for months before I could get in with a dermatologist! I used ketaconazole and it seemed to do the trick. However, knowing what we do now, the dermatitis herpetiformis was definitely aggravating/causing this and I found that it was the use of too many steroid creams (they thought I had eczema) and heavy moisturisers bothering my dermatitis herpetiformis.  Since being gluten free for a year, I haven’t really suffered with an episode of the seb dermatitis for a while. Just trying to navigate the dermatitis herpetiformis outbreaks now.  But definitely feel there could be a correlation! 
    • smilebehappy
      nuts.com -- no longer Celiac safe?

      By smilebehappy · Posted

      Hi, just went to the Tierra Farm site and while no wheat or gluten is listed there was this: Ingredients Dry Roasted Organic Pumpkin Seeds, Sea Salt. *Processed in a facility that handles tree nuts, soy, sesame and milk.  So many of us have other allergies and sensitivities, always check and recheck. These may not be appropriate for all. I have been fine with nuts.com certified gluten free in the past but have not ordered anything in a while so things can change. Hopefully they will continue to be ok.  
×
×
  • Create New...