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happygirl

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happygirl Collaborator

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

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jerseyangel Proficient

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

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Excellent article--thanks Happygirl ;)

CecilyF Rookie

After reading that article, I subscribed to the magazine! :D

jerseyangel Proficient

After reading that article, I subscribed to the magazine! :D

It's a very good magazine--I think you'll enjoy it. :D

Lynayah Enthusiast

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

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Hi, Happy Girl . . . happy new year to you!

Thanks for your post. I get the mag. and had read the article, but there is a wonderful video featured on your link, too. I enjoyed watching it. Much appreciated.

PS: For those who do not subscribe to LIVING WITHOUT, it is wonderful.

Takala Enthusiast

:ph34r: Uhm, what is that... scary thing that the woman is staring at in the accompanying photo ? It looks like compost on a plate.

Review of article.

Understand your disease. √

Build a Medical Team. "medical team?!" " nutritionist who specialize celiac disease ?!" uh oh, let's not go into that one as we don't have time for the saga today.

Join a support group. How about the internet as otherwise anything like this is too far away or just doesn't exist for many of us.

Check your pantry. √

Stock the basics. √ Okay, but as for using pre made mixes instead of from scratch, you have got to be kidding me.

Dust off your apron. No, WASH the apron. Wash the oven mitts. Throw out or give away some of your cookware, and buy new baking/cooking pans.

Buy a bread maker. Not unless you have all the allergies and intolerances figured out first, and even then, you may not need it. Your metabolism may not be geared for consuming high amounts of gluten free breads. Buy a 4" by 8" loaf pan.

Patronize local businesses. √ YES, with a caveat. Don't ever assume a big, name brand chain won't gluten you. A small local place, on the other hand, even without a gluten free menu, but with a smart, helpful waitstaff and chef, may be safer. If your local small grocery or health food store stocks gluten free items, praise them.

Don't settle. √ Of course our food is better. It's from scratch, and it tends to not have many additives.

Exhale. √ Yes.

happygirl Collaborator

Its a great magazine with lots of helpful, up-to-date information - I think you'll enjoy it, Cecily.

Happy New Year to you, Lynayah!

Hi Patti!!!


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Lynayah Enthusiast

:ph34r: Uhm, what is that... scary thing that the woman is staring at in the accompanying photo ? It looks like compost on a plate.

LOL! Well, if it is REAL chocolate cake and not gluten-free, it sure as heck is compost waiting to happen!

mysecretcurse Contributor
Build a Medical Team. "medical team?!" " nutritionist who specialize celiac disease ?!" uh oh, let's not go into that one as we don't have time for the saga today.

Haha... I like your posts Takala... I read that and had the same thought... my mind just went UGH.. PLEASE. I'm iffy about the rest of that article but some of it is good. The bread maker thing is annoying to me also because like you said so many people haven't figured out what their other intolerances are after going gluten free. The article is okay but it doesn't seem to address that most of us are intolerant to a lot of stuff due to our leaky gut damage from celiac...also I've read that magazine before and it has some good stuff in it but nothing compared to these boards or the interwebs in general. I also dislike the title, LIVING WITHOUT... just sounds so damn negative. I don't feel I'm "living without" ANYTHING other than a poisonous death.. I would prefer to see it called living free or finally free or something like that. Maybe its just me. :D

lynnelise Apprentice

Haha... I like your posts Takala... I read that and had the same thought... my mind just went UGH.. PLEASE. I'm iffy about the rest of that article but some of it is good. The bread maker thing is annoying to me also because like you said so many people haven't figured out what their other intolerances are after going gluten free. The article is okay but it doesn't seem to address that most of us are intolerant to a lot of stuff due to our leaky gut damage from celiac...also I've read that magazine before and it has some good stuff in it but nothing compared to these boards or the interwebs in general. I also dislike the title, LIVING WITHOUT... just sounds so damn negative. I don't feel I'm "living without" ANYTHING other than a poisonous death.. I would prefer to see it called living free or finally free or something like that. Maybe its just me. :D

I definately enjoyed the article but I have always thought the title Living Without is depressing! lol!

New-To-This Rookie

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

Open Original Shared Link

Good article for someone just starting out. However it should have given a web site or something on how to locate a support group near your home. I live in the middle of no mans land and don't have a clue where to turn for a support group that isn't 2 or 3 hours away. So far this has been my support group and where I get some of my information. One other thing it missed was suggesting books like "The first year Celiac Disease and Living Gluten Free" by Jules E. Dowler Shepard It walks you through the first 7 days than next 3 weeks than monthly afterwards. I wish I had found it when we first started this, not by seeing it in a store and deciding I was going to check it out of the library first. Which gets to my next point. Do lots of research and ALWAYS check a cookbook out of the library before spending your hard earned money on a book that will only disappoint you. I am having a hard time finding a remake of my old faithful betty crocker cookbook and am finding tons of books with stuff I never ate before and my husband is say "You want me to eat what?!? to, lol! Needless to say I am fortunate enough to love to cook and resourcefull enough to find alternatives so I can alter our old favorites myself. I may even write a remake of the good old betty crocker cookbook type cookbook when I am a good long ways into altering my recipes, lol!

Best of luck to all those first starting and everyone else too. Your best resources are web sites like this one!

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    1. - trents replied to barb simkin's topic in Related Issues & Disorders
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    • trents
      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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