Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sore, Sad, And Sick Of Getting Sick!

8Curvey8

By 8Curvey8
in Coping with Celiac Disease

Recommended Posts

8Curvey8 Rookie
8Curvey8
Posted

I have been gluten free for 3 years now and have had the best quality of life ever, until this past year... I got 2 stomach flus in the Spring that seemed to damage my intestinal track - has this happened to anyone before?

Slowly recovering I got glutened (sushi cc) and was again sick for another good 3 months of recovery. I was finally on track this fall, but got gluten'd at New YEars (sushi cc again).

My sweet husband got me some gluten free treats from a bakery that had CC and am back sick again on day 3 of recovery. I've officially decided to not eat anything I have not made myself anymore.

I have my parents watching my child all the time it seems, and I'm struggling through each day trying to run my business and take care of my family and home. It hurts that I need so much help taking care of my own child.

The fear of getting sick is also taking over my life as I have been sick, more than well, this past year. I don't even feel like eating anymore and no inspiration or energy to cook something.

Please tell me this is normal and will get better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


YoloGx Rookie
YoloGx
Posted

I have been gluten free for 3 years now and have had the best quality of life ever, until this past year... I got 2 stomach flus in the Spring that seemed to damage my intestinal track - has this happened to anyone before?

Slowly recovering I got glutened (sushi cc) and was again sick for another good 3 months of recovery. I was finally on track this fall, but got gluten'd at New YEars (sushi cc again).

My sweet husband got me some gluten free treats from a bakery that had CC and am back sick again on day 3 of recovery. I've officially decided to not eat anything I have not made myself anymore.

I have my parents watching my child all the time it seems, and I'm struggling through each day trying to run my business and take care of my family and home. It hurts that I need so much help taking care of my own child.

The fear of getting sick is also taking over my life as I have been sick, more than well, this past year. I don't even feel like eating anymore and no inspiration or energy to cook something.

Please tell me this is normal and will get better.

Hi Curvey,

I can really feel the pain of this. Have had my own difficulties this Fall after working too hard and getting exhausted. I am totally with you on not eating out. I take my food with me everywhere. It is just food after all; just tell whomever you are too sensitive for it to be worth the chance of getting ill.

The thing is to look at why you have gotten so sensitive. I suggest going back to square one and baby your digestive system. Thus go back to no grains at all for a while, no sugars and eat a basic cave man like diet. It is very healing of the gut.

I also think taking some healing herbs from time to time might help -- though of course they aren't right for everyone. But many are helped by marshmallow root for instance. You also might look into taking basic plant digestive enzymes. I have found enterically coated acidophilus to be a great help. As is making my own 24 hour fermented yogurt (I am not allergic to casein, but do have a problem with lactose--the long fermentation of the yogurt gets rid of the lactose).

Again, try eating lots of vegetables--they really help. If your gut is too sensitive for raw veggies, steam them. Also consider blending them now and then so you get the benefits of the uncooked enzymes.

I have also found that taking olive leaf tea and/or extract capsules regularly (make sure of course they are gluten free!!, i.e., no alcohol extraction) is really helping me to restore myself. Daily use Olive leaf counteracts bad bacteria, viruses and fungi that many other things miss. Initially you might get a Herxheimer effect where you feel worse after the first 2 or 3 days, but that is a sign its working. Continue and I am betting soon you will feel way better than you have in months. And of course, drink lots of water!

Bea

rueyn Apprentice
rueyn
Posted

I have been gluten free for 3 years now and have had the best quality of life ever, until this past year... I got 2 stomach flus in the Spring that seemed to damage my intestinal track - has this happened to anyone before?

Slowly recovering I got glutened (sushi cc) and was again sick for another good 3 months of recovery. I was finally on track this fall, but got gluten'd at New YEars (sushi cc again).

My sweet husband got me some gluten free treats from a bakery that had CC and am back sick again on day 3 of recovery. I've officially decided to not eat anything I have not made myself anymore.

I have my parents watching my child all the time it seems, and I'm struggling through each day trying to run my business and take care of my family and home. It hurts that I need so much help taking care of my own child.

The fear of getting sick is also taking over my life as I have been sick, more than well, this past year. I don't even feel like eating anymore and no inspiration or energy to cook something.

Please tell me this is normal and will get better.

Just wanted to offer a possibility for you to look into...

Small intestine bacterial infections (SIBO). My husband has had this before (once was from a stomach flu and once was from taking a round of antibiotics for a sinus infection). If you're not familiar with SIBO, Open Original Shared Link.

It can cause symptoms similar to Celiac (bloating, diarrhea, nausea, et cetera) and makes your stomach super-sensitive. They test for SIBO through a simple breath test, and you have to go on a course of special antibiotics to fix it.

8Curvey8 Rookie
8Curvey8
Posted
  • Author

Wow, thank you both so much! I have made a dr.'s appointment with my Natureopath this week, but maybe I should see my GP too for the SIBO - that could be it too! It is so hard to diagnose and differentiate between symptoms from Celiac or something else.

Just wanted to offer a possibility for you to look into...

Small intestine bacterial infections (SIBO). My husband has had this before (once was from a stomach flu and once was from taking a round of antibiotics for a sinus infection). If you're not familiar with SIBO, Open Original Shared Link.

It can cause symptoms similar to Celiac (bloating, diarrhea, nausea, et cetera) and makes your stomach super-sensitive. They test for SIBO through a simple breath test, and you have to go on a course of special antibiotics to fix it.

Karena Newbie
Karena
Posted

Wow, thank you both so much! I have made a dr.'s appointment with my Natureopath this week, but maybe I should see my GP too for the SIBO - that could be it too! It is so hard to diagnose and differentiate between symptoms from Celiac or something else.

I was diagnosed with SIBO and have had the course of antibiotics for treatment. I still have issues from time to time. It's a process of keeping the gut bacteria balanced and balancing soluble and unsoluble fiber in my diet. I also started taking VSL #3, a probiotic, that is sent refrigerated and been tested to deal with SIBO. I have seen a marked difference. Take one day at a time and de-stress in whatever way is best for you. Karena

YoloGx Rookie
YoloGx
Posted

Wow, thank you both so much! I have made a dr.'s appointment with my Natureopath this week, but maybe I should see my GP too for the SIBO - that could be it too! It is so hard to diagnose and differentiate between symptoms from Celiac or something else.

Just make sure if you go to the MD to make sure they do a culture. I would not be too quick to take antibiotics--they can mess you up, esp. if they are too strong (like what happened to me this fall--the antibiotic was worse than the ear infection and messed up my gut flora awfully).

No matter what I agree its good to get checked out esp. if something keeps hanging on and other remedies don't work.

Bea

8Curvey8 Rookie
8Curvey8
Posted
  • Author

I agree - I am on probiotics already and will try that Marshmallow root for sure ;) I heard slippery elm was good too, but I think it also makes you go to the bathroom? Maybe not good right now? I don't ever take antibiotics and I see a Natureopath, I think they won't prescribe that either, possibly some kind of alternative ~ I'm seeing her Thursday. Getting tested is the best start and this may be the bases of my problems that is weakening me and makes complete sense.

I can see why killing all your bacteria with antibiotics then replenishing only good bacteria may be the best answer though, which I am open too. I love all your feedback and time and care ~ much appreciated!!! Finding this forum has been making me feel like I'm not the only celiac out there...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I agree - I am on probiotics already and will try that Marshmallow root for sure ;) I heard slippery elm was good too, but I think it also makes you go to the bathroom? Maybe not good right now? I don't ever take antibiotics and I see a Natureopath, I think they won't prescribe that either, possibly some kind of alternative ~ I'm seeing her Thursday. Getting tested is the best start and this may be the bases of my problems that is weakening me and makes complete sense.

I can see why killing all your bacteria with antibiotics then replenishing only good bacteria may be the best answer though, which I am open too. I love all your feedback and time and care ~ much appreciated!!! Finding this forum has been making me feel like I'm not the only celiac out there...

You should also see your regular doctor and get stool tests done. You may have had more than just a stomach flu. If you had or have something like salmonella you may need an antibiotic to clear it up. I had salmonella once for over a month of misery and although my doctor insisted it was just my IBS getting worse after she finally did the stool tests I got a big apology and a script for antibiotics that cleared it up very quickly. If you make sure you consume some yogurt or other probiotics while you are taking the antibiotic it will prevent the die off of the good bacteria.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,620
    • Most Online (within 30 mins)
      7,748
    Loni75
    Newest Member
    Loni75
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend beyond typical IBS. The negative home test is not reliable, particularly given your concern about sample contamination and the fact that you were likely not consuming sufficient gluten at the time for the test to be accurate, which is a common issue. While probiotics like Bifidobacterium Infantis can support gut health, they cannot resolve an autoimmune response to gluten or heal intestinal damage caused by Celiac Disease. Your declining blood test results, even if still "in range," further indicate a trend that needs a doctor's investigation. Please do not hesitate to seek a specialist; a formal diagnosis is the first step toward getting the correct treatment, allowing your body to heal, and finally addressing your weight and overall health concerns. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Buckwheat

      By Scott Adams · Posted

      I would only add that cross contamination with wheat may still be a possibility, so it's still best to seek out buckwheat that is labeled "gluten-free."
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Hello, I've been diagnosed with IBS since I was little. I’ve visited many doctors because my intestines have always been very reactive to food. I have chronic swelling, and I struggle to gain weight. This year has been worse than others: I started noticing fatigue, loss of muscle mass, and many digestive problems, especially after consuming products with gluten. My doctor suggested that this might be due to some imbalance of gut bacteria, so I started taking Bifidobacterium Infantis supplements. However, my symptoms have been getting worse every day. I experience nausea, frequent abdominal pain, migraines, and palpitations after eating. I had these symptoms before, but now they are more intense. I thought I might have Non-celiac gluten sensitivity or Celiac Disease, so I took a home test for Celiac, and it came out negative (though there may have been an error—I was nervous and accidentally contaminated the sample with air bubbles). Based on your experiences, should I pursue further medical exams for Celiac? I’m worried about being underweight and about my blood test results, which, even if still within normal ranges, have been declining each year.
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.