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Hopeful

martha37

By martha37
in Dermatitis Herpetiformis

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martha37 Newbie
martha37
Posted

Hi. I have been gluten-free for about a year. The rash is HORRID. :angry: No biopsy was done right, and no doctor has known what to do---though I have spent lots trying. :unsure:

For the first time, reading these blogs, I have hope of somehow finding the answer. :) I don't know anyone else either who has this rash, so it is nice to have this place to learn and share.

Thanks to all of you out there trying to find the 'cure' with me. I would love to wear a shorter skirt, or deck pants, or---beyond my imagination right now---a swimsuit.

Thanks again. Am going to try the med. suggested that my doctor will have to check out and call the company direct.

stay warm.

martha

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ravenwoodglass Mentor
ravenwoodglass
Posted

Hi. I have been gluten-free for about a year. The rash is HORRID. :angry: No biopsy was done right, and no doctor has known what to do---though I have spent lots trying. :unsure:

For the first time, reading these blogs, I have hope of somehow finding the answer. :) I don't know anyone else either who has this rash, so it is nice to have this place to learn and share.

Thanks to all of you out there trying to find the 'cure' with me. I would love to wear a shorter skirt, or deck pants, or---beyond my imagination right now---a swimsuit.

Thanks again. Am going to try the med. suggested that my doctor will have to check out and call the company direct.

stay warm.

martha

Martha, if you have been on the diet for a year and still have active lesions you have gluten sneaking in somewhere. Before going on a med please recheck all you are eating, make sure you are not getting CC'd in your kitchen, check all scripts and supplements and also check all your toiletries and lotions etc. If you have DH and are completely gluten free the outbreaks should stop without meds.

dh mom Newbie
dh mom
Posted

Martha, if you have been on the diet for a year and still have active lesions you have gluten sneaking in somewhere. Before going on a med please recheck all you are eating, make sure you are not getting CC'd in your kitchen, check all scripts and supplements and also check all your toiletries and lotions etc. If you have DH and are completely gluten free the outbreaks should stop without meds.

Hi, Although you could be correct in your anwser to Martha, it is NOT necessarily true the the DH rash will stop when gluten is eleminated. Even if you are perfect on your diet and environmental items, the dh rash CAN appear. This was explained to us at the Center for Blistering Skin Diseases in Boston, Ma. run out of Baptist Hospital.

Good luck!

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